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My hand is shrinking


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#1 jaxs

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Posted 05 April 2009 - 11:45 PM

I know this sounds silly, but my right hand is shrinking. :o

I thought at first I was imagining it but its true: my fingers are getting very stubby and sausage-like. ;) It doesn't look like my hand any more. I suppose this is normal with this condition but a shock when you notice it. Just thought I'd share that. :rolleyes:

Hugs,

jaxsx
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#2 Jeannie McClelland

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Posted 06 April 2009 - 03:34 AM

Hi Jaxsx,

Just the one hand, huh? Have you spoken to your doctor about it? From reading the posts here on the Forum, it does seem that scleroderma doesn't have to affect things symmetrically, so I guess it could be sclero-related. Are you right or left handed?

I've got nice documentary evidence of hand size in the form of many tracings of the family hands (right and left) over the years - sort of like one of those growth charts to mark how tall a child is. (I've probably knitted a couple hundred pairs of mittens~) You might want to make similar dated tracings of your hands just to keep track of things.

I'll be interested to see if anyone else has had a similar experience.

Warm hugs,
Jeannie McClelland
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#3 jillatk

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Posted 06 April 2009 - 07:09 AM

My hands and feet tend to swell up symmetrically. But I think it can move around your body however it wants. I would pay attention to noticing if any particular activity tends to trigger it more in one hand than the other.

Jill

#4 jaxs

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Posted 06 April 2009 - 08:06 AM

hmm thanks ,

It's interesting to do that and a good idea. I'm right handed and that's the one I use most. And, it's more curled also, as well as puffy and tighter than my left. I have Raynaud's and it's worse in my right hand more than my left. I've never given it much thought really, but now its giving me something to think about.

Thanks and hugs from jaxsx
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#5 janey

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Posted 06 April 2009 - 08:21 AM

Jaxs,
It's strange that you asked this question today. This weekend the hubby and I were looking at my hands because he FINALLY noticed that my fingers were basically two difference sizes. My middle and index fingers on both hands are the typical sclero sausage, but the pinkie and ring fingers on both hands are the size they were 35 years ago! I can now wear my 4.5's! A couple of years ago all my fingers were 6.5 or larger so I couldn't wear any of my rings. Very weird. I have no idea what caused this change or any of the weird finger sizes we have. But they do make interesting conversation pieces. :lol:

Big Hugs,
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#6 Peggy

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Posted 06 April 2009 - 09:29 AM

My previous sclero doctor would trace my hands at each appointment. I never saw what she did with it or if she compared the measuring sizes after each appointment. So I'm sure there's something to it. My fingers are getting so curved in and so deformed that I actually hide them if I'm out and about. My right hand index finger is so curved under that it looks like I'm pointing down all of the time. My husband trys to make me feel better by teasing me when I'm pointing that I need to explain verbally what I'm pointing at because it looks like I'm pointing down. I guess that's what we have to do in these cases, try to find the humor when we can.

Warm hugs,

Peggy

#7 lizzie

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Posted 06 April 2009 - 10:27 AM

Hi Jaxs, my right hand is tighter and fingers more curled than the left- and the web space between the thumb and index finger is now smaller than on the left hand as well. I started tracing my hands last year when I first thought that the web space was shrinking - as much to convince myself that it wasn't all in my mind as anything else and now do them every couple of months. its interesting to look back and see how my handspan has gradually changed. I thought about taking pictures of my face every month or so to track the changes. I think it would be interesting to do , but decided against it as thought it might be too depressing!

Lizzie

#8 luvbnmom3

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Posted 11 April 2009 - 07:09 AM

That is an interesting idea to trace your hands & keep track! I haven't noticed mine being shorter (except when they look like sausages, then they look shorter) and my right is worse than the left as well - tighter.

Mine are tighter on the palm side & thick. I have less range of motion in the right hand than the left so I am going to track that!

I feel like I am shrinking from the inside out, except I look much heavier in the torso area.

#9 Jeannie McClelland

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Posted 11 April 2009 - 08:26 AM

Hi love,

You are the first person I have heard mention the palms being tighter and thicker than the backs of the hands. Mine are too and I thought it was strange. I'll have to try and remember to ask my rheumatologist why that is.

Hugs,
Jeannie McClelland
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#10 luvbnmom3

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Posted 11 April 2009 - 02:41 PM

Hi Jeannie,

My (fired) doctor says it isn't sclero because of that! It is taut on the back of the hand, thick & tight on the bottom, tighter on bottom. My hand is worse than my fingers, too. Tell me what your rheumatologist says once you ask him!

tootles!

#11 scampie5

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Posted 12 April 2009 - 07:46 AM

Hi. My hands have changed: they are very stubby and my fingers are sausage-like. My finger nails have started to club (that's what the doctor calls it) and the fingers are starting to twist. My mouth has also got smaller -- my husband says the noise coming out of it hasn't changed though, ha ha. :lol: Lynn

#12 susie54

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Posted 13 April 2009 - 01:17 AM

Hi,

This has been interesting to read. My index and third finger have changed over the years. I don't have skin thickening but index and third fingers on right hand are shorter and bend over. On left hand my index is longer and straighter and skinnier with flat nail and third finger is bent with latest ulcer healing on it. I have noticed the nails are shorter, wider and square and in two fingernails I have an indentation on one and beau's lines on the third. Sausage fingers on index and third.
I do find myself not using my hands any more to demonstrate stories. My husband does wonder if they can be fixed on the bending. I tell him it wouldn't be worth the trouble.

Susie54

#13 Amanda Thorpe

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Posted 13 April 2009 - 07:38 AM

Hello All

I don't think my hands are smaller just thinner with contractures everywhere!

What I have noticed is that the nails have become really tough, no bend it them at all. Funny that they should become tough now when I can't have long nails because they would end up really long as nothing breaks them!

Amanda
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