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Congrats to Margaret, Platinum Member with 1,000 posts and 10 Years of Forums Membership!


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Happy Dance time


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11 replies to this topic

#1 Margaret

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Posted 16 April 2009 - 01:16 AM

Hi, Everyone.

I found out yesterday that Gareth's SED rate is 8 -- as in eight!!! It hasn't been that low since I started keeping his records 3 years ago! To think, also, it has been as high as 98 and was usually fluctuating between 30-40. He's been on 800 mg of Vitamin D daily for almost 2 months and I am wondering about the connection there.

Now, if we can just find the cause of his *heart attacks*, we'll be doing good.


Take care, Everyone.
Margaret

#2 Sweet

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Posted 16 April 2009 - 04:56 AM

Oh good news indeed!

Doing the happy dance for ya over here too. :)
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#3 janey

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Posted 16 April 2009 - 05:50 AM

Margaret,
That's such great news!!!!! Thanks for sharing it with us.

Here's a congratulatory hug for Gareth (((((((((((((((hug))))))))))))))
Janey Willis
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International Scleroderma Network (ISN)

#4 Shelley Ensz

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Posted 16 April 2009 - 08:17 AM

Hi Margaret,

That's absolutely wonderful! Please give Gareth an extra warm hug and keep doing what you're doing as obviously, something is working to quell the inflammation.
Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#5 Peggy

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Posted 16 April 2009 - 10:28 AM

A Huge CONGRATULATIONS! I couldn't be happier for you!!! Enjoy, Enjoy, Enjoy!

Warm hugs,

Peggy

#6 debonair susie

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Posted 16 April 2009 - 11:26 AM

This is awesome news, Margaret!

Thanks so much for sharing it with us!

{{{{{Big Soft Hugs}}}}} for both you and Gareth!
Special Hugs,

Susie Kraft
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#7 Penny

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Posted 16 April 2009 - 12:01 PM

Margaret,

That is some wonderful news! {{{{{{hugs warm hugs to you and Gareth}}}}}}

I am definately doing a happy dance here for our Gareth, complete with can-can skirt and a chihuahua racing in circles with castanets.

One major battle won and with this victory, finding the cause of his "heart attacks" will hopefully be done quickly so he can have relief.

#8 Jeannie McClelland

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Posted 16 April 2009 - 12:12 PM

Hi Margaret!

How wonderful is that?! I'll bet all of Gareth's doctors are nearly as pleased as you must be. That's truly tremendous.

Big hugs to you both,
Jeannie McClelland
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#9 Snowbird

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Posted 16 April 2009 - 02:33 PM

That's great news Margaret...so glad to hear it!!
Sending good wishes your way!

#10 bowbec

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Posted 16 April 2009 - 02:53 PM

Margaret,
That is great news!
Could Gareth's daily Vitamin D really be the key? I'm trying that!
Thanks for your info!!!
Hope heart issuse resolve quickly!
((hugs)to both of you))
Becky
Diagnosed with Diffuse Systemic Scleroderma May 2005
Raynaud's, GI, esophagus, skin and lung involvement.

#11 Kathy D

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Posted 17 April 2009 - 08:37 AM

Fantastic Margaret! I am so glad he's feeling better!

Where do you buy the Vitamin D at? Is it a special kind?

As of Tuesday my rheumatologist took me off my organic super duper multivitamins because they said "Immune Support" on them. I bought a different kind from the supermarket and was interested to see the supermarket brand has over double the amount of D than the previous.

KD
Diffuse Scleroderma Diagnosed March 2009

#12 Shelley Ensz

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Posted 17 April 2009 - 08:55 AM

Hi KD,

As I understand it, Vitamin D supplementation should only be done under the direction of a physician, particularly in scleroderma patients. They can easily run a blood test to see if you have a deficiency, or not. If you do, they can advise the proper dose and keep an eye on things, to make sure you don't reach toxic levels and also to advise an increase if the dose they recommend doesn't bring you back up into normal range.

Also, if you are not deficient, then adding D probably isn't going to help at all.
Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.