Anticardiolipin antibodies (low positive)
Posted 17 April 2009 - 11:12 PM
I have just had my latest round of bloods done, and will see my rheumatologist in 2 weeks time (my general practitioner has given me my results).
My ANA is still positive, but my ENA which has been positive for a year has now switched to negative.
Also the only other new thing is that I am now low Positive for AntiCardiolipin antibodies IgG and IgM.
Hopefully my rheumatologist will discuss this with me, but since it is a only LOW positive, does this help him in any way towards a diagnosis?
And should there be more blood tests done to check this again?
It also came up that I have varied Lymphocytes in my blood and microcytes (which I always have).
I have had terrible bursitis for the last month in my left hip and right shoulder, could this affect my bloods in any way?
Thanks for any help.
Posted 18 April 2009 - 04:24 AM
You have formed your questions perfectly. Print out your post in list form and take it with you to your rheumatologist. Ask him to answer all of these points directly.
I don't have any experience which will help you with any of this but here is our page on Antibodies for you to research further. I suspect you have already spent some time there, anyway. Let us know how your appointment goes.
(Retired)ISN Sclero Forums Support Specialist
(Retired)ISN Sclero Forums UK Chat Host
International Scleroderma Network (ISN)
Posted 19 April 2009 - 03:27 PM
Mine were positive both times. I have done a lot of research on them though & have read that sometimes they can bepositive in other autoimmune diseases such as Scleroderma & Lupus. I hope that helps!
Posted 26 April 2009 - 01:44 PM
I am due to see the rheumatologist on Thursday so will pose all my questions to him then.
Will keep you posted!
Posted 27 April 2009 - 04:33 PM
Posted 09 May 2009 - 06:46 PM
Just to let you know how I went with the rheumatologist.
He wasn't concerned about the positive anticardiolipin antibodies, just noted it as interesting and that he will keep an eye on it. so that made me feel a bit better.
He gave me a cortisone shot in my shoulder, which has relieved about 45% of the pain, so it has taken the edge of it, thank goodness, I just hope it lasts.
He said that if my flares don't come under control he may have to add a small amout of Methodextrate in with the Plaquenil, I did a bit of reading about it and it sounds like a strong drug with side effects, so I think I will have to do more reading before I go on it.
thats pretty much it for now.
Posted 10 May 2009 - 08:28 AM
I am glad to hear that. If it were me, I wouldn't worry too much about the APS. Your doctor has you on Plaquenil which does have anti-clotting properties so that could cover the possible APS.
You might want to talk to your rheumatologist about taking a aspirin a day as long as you can tolerate that. The other drugs for APS can have more negative side effects.