Systemic Sclerosis Score
Posted 22 April 2009 - 01:12 AM
1st. My systemic score is 8, 1+ in my face, bilateral hands, bilateral forearms, torso and both feet. Do you all know what yours is and what is high/low?
2nd. In his impressions he listed parotid enlargement and suggested checking SSA and SSB. Anyone know what these tests are?
3rd. In his impressions he suggested a Schirmer test and necessary staining for sicca symptoms. What is sicca and what is the test mentioned?
I will find out more on May 1st when I see my regular rheumatologist. Just wanted your input.
Posted 22 April 2009 - 03:55 AM
I don't know much about the first question you had.
Sicca syndrome refers to dryness of eyes, mouth, anywhere you produce moisture. SSA and SSB are the antibodies that often determine if you have the autoimmune disorder Sjogrens. The Schirmer (possible different spelling schmirr) is a test where they put a small strip of paper in your eye to see how much moisture your eyes are producing. A normal person would flood the paper with tears, (the paper is quite irritating). A person with sicca or Sjogren's will not produce tears, an abnormal reading is something less than 6 or 7mm of wetness. Mine were 4mm and 5mm, one of the papers even stuck to my left eye.
So far that is the only official diagnosis I have. I use Restasis drops and they help a great deal.
Best wishes getting this sorted out.
Posted 22 April 2009 - 04:17 AM
Posted 24 April 2009 - 12:46 AM
Posted 24 April 2009 - 03:27 PM
It was the test with the drops where my eye didn't water with the paper in it at all, and it stuck to my eye.
So far, I haven't had the lip biopsy like the doctors would like me to. I have symptoms like the dry eye and mouth, (dry everywhere actually) but no antibody markers so far. That isn't unusual as I understand 60-70 % do, which leaves 40-30% without the markers. I just had blood tests ordered to test again. The original eye doctor said it was Sjogren's, but other doctors want the biopsy or the blood markers to declare it as a diagnosis. Since they wouldn't do much about it that isn't already being done, I figure I don't need the biopsy.
It was nice to have actual physical evidence that this wasn't my imagination, so don't be afraid of the test. Even without the lip biopsy, I do have the sicca diagnosis which means dry.