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Cancer and Scleroderma

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3 replies to this topic

#1 Vanderhelm Clan

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Posted 28 April 2009 - 05:16 AM

Can you help me? My mother has CREST and has now been diagnosed with Non-Hodgkins Lymphoma. I can't find any useful information about how Chemotherapy will affect her. Has anyone got any advice. It seems impossible to make an informed choice as there are not details available. Thanks.

#2 Shelley Ensz

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Posted 28 April 2009 - 05:24 AM

I'm very sorry your mother has CREST and non-Hodgkin's lymphoma and send my best wishes to you and your family. Your mother will need to consult her scleroderma expert for specific advice. However, chemotherapy is sometimes used to treat scleroderma lung involvement. So you may want to study our pages on Cancer and Scleroderma (which includes non-Hodgkin's lymphoma) and on Cytoxan.
Warm Hugs,

Shelley Ensz
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International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#3 CraigR


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Posted 28 April 2009 - 09:32 AM

You will no doubt discover that there are many forms of Non-Hodgkins lymphoma. Some are very fast growing and some slow.

I had Burkitt's lymphoma in 2002, treated with chemo. It is the fastest growing of all lymphomas, but responds to chemotherapy. My doctor told me that lymphoma is "associated" with autoimmune disease, though they are usually low-grade lymphomas, not the type I had. You can probably find more information on this site.

The doctors (or nurses, since they are more communicative) can probably tell you what to expect of the chemotherapy. Different chemo drugs have different effects, and, of course, different people react differently. I found Cytoxan to be one of the mildest drugs.

There are different chemo regimens for different types of lymphoma, so you will probably want to get involved with the various treatments. I echo the recommendation of a good specialist - for both sclero and lymphoma.

Good Luck,


#4 janey


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Posted 01 May 2009 - 04:50 AM

Just wanted to jump in and say welcome. Shelley and Craig have been provided good advice - your mother should see a really good scleroderma specialist and lymphoma specialist that knows something about scleroderma. You might also do a search of this site for non-Hodgkins. I did it and several personal stories popped up of people that have had both scleroderma and non-Hodgkins lymphoma.

Please keep us informed on how your mother is doing.

Big Hugs,
Janey Willis
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International Scleroderma Network (ISN)