Posted 29 April 2009 - 06:51 PM
I was wondering whether I am the only person that has this symptom. I have Crest/Limited Scleroderma, no skin issues, but lots going on internally.
Posted 30 April 2009 - 12:59 AM
Have you been tested for Fibromyalgia or similar conditions? Once you have one autoimmune disease, then the chance of another goes up.
Take care, Everyone.
Posted 30 April 2009 - 02:08 AM
I have muscle and joint soreness alot. Some morning I wake up and feel like I have been hit by a truck. I have always attributed this to fibromyalgia.
Hope you feel better.
Posted 30 April 2009 - 02:55 AM
While I don't know if I have exactly the same type of soreness, I have places on my body where I've been bruised, and they just don't seem to heal completely. The areas are sore to the touch, long after the actual discoloration is gone. I've got a spot on the base of my thumb on the left hand, and my right ankle. Both were bruised, but I can't touch those areas without feeling some pain.
Posted 30 April 2009 - 04:47 AM
Barbara aka relicmom1
Posted 30 April 2009 - 05:31 AM
Deep tenderness is a frustrating kind of pain. I too have this symptom, but it has never been medically attributed to any one source. If I work too long or do too much strenuous work, I definitely feel that my body has been rolled over by a Mac truck. On days where I can take it easy, my lower back, arms and legs are tender and can't be touched.
I have tried several medications that are supposed to raise my pain tolerance with no success. I have also been told that being in a constant cycle of pain can cause the body to "forget" how to break that cycle and will continue to be in pain even when there is no cause. I can't fully agree with that statment considering how true the pain is. I am sure you can relate.
We have done xrays & MRI's that don't show a thing. I have also had the muscle enzyme lab test which also showed nothing. My SED rate is steady and normal, so I just do my best to ignore it (easier said than done) :-)
I do encourage you to see your doctor about your pain. Please let us know what you find out.
Posted 30 April 2009 - 05:59 AM
I've heard that theory about uninterrupted pain cycles too and asked a pain specialist I used to see about it. She said that, as an example, if you had a painful broken bone, the break itself might be completely healed, all the muscles have regained strength, etc. but because the pain went on so long, there is a sort of noise or static in the nerves and pain receptors that creates a kind of feedback loop. The original stimulatory injury is no longer there, but the pain is real. It does make a kind of sense, I guess.
Big, careful, gentle hugs,
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Posted 30 April 2009 - 06:06 AM
Posted 30 April 2009 - 10:29 AM
Posted 30 April 2009 - 07:05 PM
Margaret, yes I do have fibromyalgia, I have never thought that this could be why I have the pain. I do take in the evenings Amitriptyline 75mg, for depression as well as for fibromyalgia.
Are there any other treatments for fibromyalgia, beside pain killers?
Posted 30 April 2009 - 07:31 PM
Here is our page on Fibromyalgia. A comprehensive list of treatment options is on the bottom of the page.
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Posted 02 May 2009 - 01:57 PM
Posted 04 May 2009 - 07:15 AM
Fibromyalgia has been suggested, but I thought (and this may be wrong) that this could not be the case because bloodwork is normal with Fibro (one of the reasons that in early days some doctors considered it an imaginary illness). Many doctors don't seem to recognize the myalgia issue with sclero - but many with the disease know otherwise!
Acetaminophen seems to help somewhat. Caffeine (one cup of coffee in the morning) can also be helpful - though the extra activity it allows/encourages ultimately seem to slow the healing process (worse the next day). Caffeine is otherwise to be avoided - especially with Raynaud's.
NSAIDS (aspirin, naproxen, etc.) would probably be helpful, but I can't take them because I take blood thinner. Rest and avoidance of stress are imperative. Good, uninterupted sleep also seem helpful.
Years ago, for a really terrible attack, I took Prednisone (a steroid) - and it work like a miracle - but at a great cost. I (and my doctor) believe it caused an avascular necrosis in my hip, requiring a complete hip replacement (not fun). Also contributed to osteoporosis, which is otherwise not present in my family.
Some have had success with Plaquenil for fatigue - I wonder if it has helped myalgia?
Also, some members report help with inflammation from fish oil. Anything that reduces inflammation levels should helpful - especially if they avoid the dangers of steroids.
Posted 04 May 2009 - 04:52 PM