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Body Soreness

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#1 summer


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Posted 29 April 2009 - 06:51 PM

Hi, I have for sometime now have severe body/muscle soreness. It feels as though I have been badly beaten. There are no bruises, but If I touch any area of my body it is extremely sore. A while back, my rheumatologist tested to see if my muscle enzymes were normal, they were, but that was nearly one year ago, and the soreness has progressed.

I was wondering whether I am the only person that has this symptom. I have Crest/Limited Scleroderma, no skin issues, but lots going on internally.


#2 Margaret


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Posted 30 April 2009 - 12:59 AM

Hi Summer ,

Have you been tested for Fibromyalgia or similar conditions? Once you have one autoimmune disease, then the chance of another goes up.

Take care, Everyone.

#3 ozzy69


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Posted 30 April 2009 - 02:08 AM

Hi Summer,

I have muscle and joint soreness alot. Some morning I wake up and feel like I have been hit by a truck. I have always attributed this to fibromyalgia.

Hope you feel better.



#4 mando621


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Posted 30 April 2009 - 02:55 AM

Hi Summer,

While I don't know if I have exactly the same type of soreness, I have places on my body where I've been bruised, and they just don't seem to heal completely. The areas are sore to the touch, long after the actual discoloration is gone. I've got a spot on the base of my thumb on the left hand, and my right ankle. Both were bruised, but I can't touch those areas without feeling some pain.


#5 relicmom1


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Posted 30 April 2009 - 04:47 AM

I, too, have that run over by a mack truck feeling most days. I have CREST with minimal skin involvement and lots going on inside too. I also was diagnosed with fibromyalgia. I would see the doctor and see if this is possibly the source of your pain.
Peace :)
Barbara aka relicmom1

#6 WestCoast1


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Posted 30 April 2009 - 05:31 AM

Hi Summer,

Deep tenderness is a frustrating kind of pain. I too have this symptom, but it has never been medically attributed to any one source. If I work too long or do too much strenuous work, I definitely feel that my body has been rolled over by a Mac truck. On days where I can take it easy, my lower back, arms and legs are tender and can't be touched.

I have tried several medications that are supposed to raise my pain tolerance with no success. I have also been told that being in a constant cycle of pain can cause the body to "forget" how to break that cycle and will continue to be in pain even when there is no cause. I can't fully agree with that statment considering how true the pain is. I am sure you can relate. <_<

We have done xrays & MRI's that don't show a thing. I have also had the muscle enzyme lab test which also showed nothing. My SED rate is steady and normal, so I just do my best to ignore it (easier said than done) :-)

I do encourage you to see your doctor about your pain. Please let us know what you find out.

Take care~


#7 Jeannie McClelland

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Posted 30 April 2009 - 05:59 AM

Add me to the list! The ache and soreness waxes and wanes but never goes away entirely. At it's worst, the deep ache and tenderness is joined by a more superficial pain - if I were to run my hand down my arm or leg, just the lightest touch would hurt.

I've heard that theory about uninterrupted pain cycles too and asked a pain specialist I used to see about it. She said that, as an example, if you had a painful broken bone, the break itself might be completely healed, all the muscles have regained strength, etc. but because the pain went on so long, there is a sort of noise or static in the nerves and pain receptors that creates a kind of feedback loop. The original stimulatory injury is no longer there, but the pain is real. It does make a kind of sense, I guess. B)

Big, careful, gentle hugs,
Jeannie McClelland
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#8 Peggy


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Posted 30 April 2009 - 06:06 AM

I know exactly how you feel. I have terrible muscle pain and I don't know if its from the Systemic Sclero or the Polymyositis. I also have peripheral neuropathy and I have had the emgs and muscle tests and I have muscle damage. The pain I have is like you describe and its total muscle pain. As I type this I'm in bed today as it's just too much. I wear a pain patch that I change every 3 days that is supposed to provide pain relief at a constant basis. Today I increased the doseage and I'm still in pain. At my next apt in May with my sclero doctor I plan on addressing this as it is so hard to deal with. I so try to work through it and keep on doing and going but it is getting harder and harder. Between that and the total fatigue my days get pretty long. One thing is nice to know is that I'm not the only one and that this must be a part of the disease that some of us are so "lucky" (sarcasm intended) get to deal with.

Warm hugs,


#9 KarenL


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Posted 30 April 2009 - 10:29 AM

Hi Summer I had the body soreness to and was diagnosed with Fibromyalgia. I am currently on Cymbalta for it and it's helping. Good luck, it's a tough one!

#10 summer


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Posted 30 April 2009 - 07:05 PM

Thank you so much for all of your replies.

Margaret, yes I do have fibromyalgia, I have never thought that this could be why I have the pain. I do take in the evenings Amitriptyline 75mg, for depression as well as for fibromyalgia.

Are there any other treatments for fibromyalgia, beside pain killers?

Many thanks

#11 jefa


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Posted 30 April 2009 - 07:31 PM

Hi, Summer

Here is our page on Fibromyalgia. A comprehensive list of treatment options is on the bottom of the page.
Warm wishes,

Carrie Maddoux
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International Scleroderma Network (ISN)

#12 doodlehead



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Posted 02 May 2009 - 01:57 PM

I seem to have a delayed then exaggerated response to injury. It started I n November 2008. I was drinking a calorie supplement (due to unexplained weight loss) and dropped a bottle of it on my foot. Well at first it felt like a dropped a bottle on my foot, a little sore but nothing abnormal. I was tired so I took a nap. Woke up 2 hours later and couldn't walk on that foot. I actually thought I broke it but it wasn't swollen or red. Next time I bumped the inside of my knee on a coffee table, same thing happened. I didn't hit it hard enough to cause a bruise but couldn't walk on that leg (right side this time.) Next time my cat bit my left foot (bad kitty) I cleaned it out, put antibacterial ointment on it, it just felt a little sore but no big deal. I went to bed and when I woke up the next day the pain was excruciating. I ended up going to the ER and they said I probably had a bacterial infection (common in cat bites) The doctor there could not believe the pain I was in from it. After I explained about my autoimmune condition he just chalked it up to that. They gave me antibiotics and sent me on my way. I refused pain medications due to GERD and IBS. I can't take anything but Acetaminophen which doesn't help much but I really have no other choice. Some things are really weird.

#13 CraigR


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Posted 04 May 2009 - 07:15 AM

I get this type of pain. I consider it to be an attack of myalgia (muscle inflammation). Usually there is a physical or mental stress situation that seems to bring it on. Generally starts in the neck and works down. The pain is somewhat like muscles that have been extremely overworked and thus very painful When it's in the chest/belly area, it can be painful to cough - or even laugh, and very difficult to find a comfortable sleeping position. Usually there is also general fatigue. If tested, my SED rate is always elevated - usually over 70 (I've gotten so I can guess my SED rate by how I feel).

Fibromyalgia has been suggested, but I thought (and this may be wrong) that this could not be the case because bloodwork is normal with Fibro (one of the reasons that in early days some doctors considered it an imaginary illness). Many doctors don't seem to recognize the myalgia issue with sclero - but many with the disease know otherwise!

Acetaminophen seems to help somewhat. Caffeine (one cup of coffee in the morning) can also be helpful - though the extra activity it allows/encourages ultimately seem to slow the healing process (worse the next day). Caffeine is otherwise to be avoided - especially with Raynaud's.

NSAIDS (aspirin, naproxen, etc.) would probably be helpful, but I can't take them because I take blood thinner. Rest and avoidance of stress are imperative. Good, uninterupted sleep also seem helpful.

Years ago, for a really terrible attack, I took Prednisone (a steroid) - and it work like a miracle - but at a great cost. I (and my doctor) believe it caused an avascular necrosis in my hip, requiring a complete hip replacement (not fun). Also contributed to osteoporosis, which is otherwise not present in my family.

Some have had success with Plaquenil for fatigue - I wonder if it has helped myalgia?

Also, some members report help with inflammation from fish oil. Anything that reduces inflammation levels should helpful - especially if they avoid the dangers of steroids.


#14 kaurie



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Posted 04 May 2009 - 04:52 PM

Hi. I am kind of new to the site but am currently going through the pain that you are going through. My ANA was positive for scleroderma but am waiting to see the rheumatologist to start the test and everything else for that. My regular doctor also thinks that I may have Fibromyalgia. Besides the pain I also have a lot of muscle weakness. it's worse in the mornings though. I don't know what kind of advice that I can give you because I am fairly new to this myself. Although I do want to let you know that everyone here as well as this site has GREAT information. Everyone's situation is a bit different and their stories and advice will help you with questions that you can ask your doctor about. They have helped me a lot. I have a list of them for mine when I go. :lol: ... I wish you best of luck.