Jump to content


Do you want up to date information about Scleroderma? Check out our Medical pages at www.sclero.org for all your Scleroderma questions!


Photo

Guidelines Quick Byte


  • Please log in to reply
No replies to this topic

#1 Jeannie McClelland

Jeannie McClelland

    Senior Gold Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 1,706 posts
  • Location:in the Rocky Mountains of the USA

Posted 05 May 2009 - 04:12 AM

Hi Fellow Forum Members,

I’d like to introduce a new feature to help us all make the most of our forum experience: ISN Quick Bytes. These short posts are intended to clarify important points and serve as a helpful reminder. They may also help you to understand why certain things have been edited or even deleted in entirety.

The first series will deal with the Forum Guidelines (which, of course, you read and set to memory when you joined the Forums). The guidelines are always only a click away at the left of the purple toolbar at the top of every Forum page.

In the introduction, we are reminded that: This forum is a free service of the International Scleroderma Network (ISN) at www.sclero.org. The ISN is a nonprofit international patient and medical organization that delivers top notch research, support, education and awareness for scleroderma and related illnesses. All of these guidelines support the ISN's international and nonprofit mission.

Today’s Guidelines Quick Byte is Mainstream Scientific:

Mainstream Scientific We focus on proven remedies and legitimate studies from mainstream scientific studies, as covered on our main www.sclero.org website. We avoid discussions of vitamin, herbal and alternative therapies that have not yet been proven to be of benefit for scleroderma (Read More). To avoid malicious codes, we only allow links that are from and within our www.sclero.org website.

 

Many alternative therapies have been reviewed and discussed on the website pages linked above. The (Read More) link above leads to our list of Approved and Unapproved Alternative Therapies in the How To Forum. Our support staff uses this list when approving messages and will edit out mention of unapproved items.

Accessing certain sites can cause possible damage to your computer. Because of that, we only allow links in member posts that are already linked to the www.sclero.org site. If you have a valuable resource to share, please send a PM to Jo Frowde, our ISN News Manager.

Please bear in mind that we try to have the most current, most reliable information anywhere it might appear on the International Scleroderma Site and that includes all the Forums. As much as I think my grandmother’s recipe for wilted dandelion greens with hot bacon dressing will cure most of man’s ills, it’s not current, proven, or even studied beyond those members of my family who’ve been forced to eat this springtime delight.

Here’s that link again for those of you who just can’t wait for the next Guidelines Quick Byte to arrive: Forum Guidelines (link found in the purple toolbar on every Forum page).

Best wishes and happy posting,


Jeannie McClelland
(Retired) ISN Director of Support Services
(Retired) ISN Sclero Forums Manager
(Retired) ISN Blog Manager
(Retired) ISN Assistant News Guide
(Retired) ISN Artist
International Scleroderma Network