Jump to content


Do you want up to date information about Scleroderma? Check out our Medical pages at www.sclero.org for all your Scleroderma questions!


Photo

Ear lobes shrinking?


  • Please log in to reply
9 replies to this topic

#1 living linda

living linda

    Bronze Member

  • Members
  • PipPip
  • 27 posts

Posted 06 May 2009 - 02:55 AM

Have any of you noticed your earlobes shrinking? I have always had smaller ears, but my lobes are to the point I can no longer wear earrings. Just wondering.

#2 Shelley Ensz

Shelley Ensz

    Root Administrator

  • ISN Root Admin
  • PipPipPipPipPipPipPipPipPipPipPipPip
  • 3,261 posts
  • Location:Minnesota

Posted 06 May 2009 - 04:26 AM

Dear Linda,

I may be wrong, I often am, but I think you are the first report I've encountered about shrinking ear lobes. People with widespread skin involvement might have experienced this with diffuse scleroderma.

I'd be interested to know if Razz has experienced this? In case you missed it, here is the link to her ISN YouTube Video.
Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#3 Amanda Thorpe

Amanda Thorpe

    Platinum Plus Member

  • ISN Senior Support Specialist
  • PipPipPipPipPipPipPipPipPipPipPip
  • 2,921 posts
  • Location:U.K.

Posted 06 May 2009 - 12:23 PM

Living Linda

Shrinking earlobes?? Oh great so I can add this to my shrinking mouth and become a one woman freak show, somebody throw me some peanuts! :lol: Seriously, I have diffuse SSc and can't say I have experienced this or know of anyone who has. You could be the first, you're a trendsetter!

I'll watch replies with interest because something has clearly made you earlobes shrink if you can't now get earrings in.

Take care.

Amanda
Amanda Thorpe
ISN Sclero Forums Senior Support Specialist
ISN Video Presentations Manager
ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist
International Scleroderma Network (ISN)

#4 Gidget

Gidget

    Silver Member

  • Members
  • PipPipPipPip
  • 201 posts

Posted 06 May 2009 - 03:18 PM

My ear lobes have shrunk as well. Gidget

#5 fragiledancer2

fragiledancer2

    Senior Bronze Member

  • Members
  • PipPipPip
  • 44 posts

Posted 06 May 2009 - 03:31 PM

Yup- 10 years diffuse, shrunken lobes-I try to stretch them gently or wear heavier earrings sometimes to pull them down. Also, thanks to all who replied to my Gleevec question.

#6 living linda

living linda

    Bronze Member

  • Topic Starter
  • Members
  • PipPip
  • 27 posts

Posted 06 May 2009 - 04:27 PM

Just when I thought I was going to be a trendsetter I hear I'm not the only one with the shrinking earlobes! I do think the side show might be something to think about though. You know todays economy and all. Would anyone be interested going on the road with me? You all do make me smile and laugh and that's a good thing isn't it.

#7 PrincessB

PrincessB

    Senior Bronze Member

  • Members
  • PipPipPip
  • 78 posts
  • Location:Strasbourg, France

Posted 06 May 2009 - 08:33 PM

My ear lobes have shrunk as well, and the holes had closed up completely and I had to repierce them.
Diagnosed diffuse systemic scleroderma December 2005 (on my 30th birthday, as if turning 30 wasn't enough?!)

#8 razz

razz

    Senior Silver Member

  • Members
  • PipPipPipPipPip
  • 344 posts

Posted 08 May 2009 - 06:32 PM

I didn't think my ears were that noticeable!

I guess I should add shrunken ears :blink: to my list. What's next....shrunken head probably. I've always had small ears and thought they were cute looking. Well, they did get a wee bit smaller to the point where I can't put earrings on anymore but it doesn't bother me. I was thinking about getting my ears repierced since I miss wearing my earrings.

Razz
Live well, Laugh often, Love much

#9 sclerolady

sclerolady

    Newbie

  • Members
  • Pip
  • 3 posts

Posted 09 May 2009 - 09:51 AM

My ear lobes have gotten smaller, but I can still wear earrings. I was diagnosed with CREST though.

#10 thisisme

thisisme

    Senior Bronze Member

  • Members
  • PipPipPip
  • 32 posts
  • Location:London uk

Posted 09 May 2009 - 06:55 PM

I didn`t reply to this, when I first saw it, Ears and noses, are the only part of our bodies, that continue to grow, or so I was led to believe! I looked at one, Nah! growing, then the other EEEk, it`s shrunk, I wear pearl studs and there is no lobe behind part of it. Good job no one can see both at once :-)
Take care.
Lynne

A trouble shared is halved, a joy shared is doubled