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Raynaud's in feet


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#1 living linda

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Posted 07 May 2009 - 04:29 AM

I have had diffuse systemic scleroderma for a number of years but now I am encountering a new problem. My feet are beginning to have Raynaud's attacks. My fingers have always had them but I now have numb feet when shopping in stores or eating in restaurants. I know which ones to avoid or hurry through. It seems if I wear tight shoes like heels that it's worse. My feet also have such calluses on the toes. Any suggestions would be appreciated.

#2 jefa

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Posted 07 May 2009 - 04:45 AM

Hi, Linda

Yes, it is possible (and common) to have Raynaud's attacks on the feet as well as hands and even other parts of the body as you will find on our main Raynaud's Main Menu page. Numbness and pain in the feet may not necessarily be attributed to Raynaud's though, especially since you mention that you have problems with callused toes. Make sure you are wearing comfortable shoes when you are out walking and that your socks also fit well and are dry. If your feet are warm before you put your well-fitting shoes and dry, well-fitting socks on, they are more likely to stay warm. You may want to carry a pair of warm socks in your bag to slip on if you are wearing sandals and find yourself in a highly air-conditioned restaurant.

I have had a lot of trouble transitioning from one season to another when it comes to shoes. :huh:
Warm wishes,
Jefa

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#3 MaryFanPhilly

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Posted 07 May 2009 - 05:04 AM

Hi Linda,

I too have Raynaud's in my feet, particularly after showering or walking barefoot on tile or hardwood. I try to avoid situations where my feet would be exposed, just like my hands. I wear fuzzy socks (sometimes two pairs) and shoes with linings to keep them warm. I also use a heated throw blanket almost year round since the key is to keep your core body warm.

Since I am also diabetic the circulation in my feet is not great, and my doctors all check my feet including that the pulse is strong.
Because I live in the north, cold weather is a serious problem for me, and I once had such a severe attack I actually passed out, so take your Raynaud's seriously!

Good luck,

Mary in Philly
Diffuse sclero; diabetes; hypertension; GERD with Barrett's

#4 Jeannie McClelland

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Posted 07 May 2009 - 05:17 AM

Hi Linda,

I've got Raynaud's in my feet too. Mary and Jefa have both given you good tips. About the only other thing I can add is that I've found it useful to chose shoes that breath. Many of the synthetic materials found in the more trendy or cheaper shoes can make your feet really sweaty and then they chill more easily. I can get away with the plastic (I think) clog type of shoes because they are loose-fitting, ventilated, and I can put a nice thick pair of tennis socks on with them.

Warm hugs and a nice foot massage,
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#5 janey

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Posted 07 May 2009 - 05:59 AM

Linda,

Ditto on everything that's already been said. Unfortunately, if you really want to reduce the effects of Raynaud's toes, you might have to give up the heels. You need that circulation to the toes and heels don't help. Because of the Raynaud's in my feet I can only wear close toed, wide toed flats. If you don't have a little movement in the toes with your shoes on, then the chances of getting numb, white or purple toes can increase.

Big Hugs,
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#6 living linda

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Posted 07 May 2009 - 06:21 AM

Thank you for all the responses. Very useful ideas from people who know what I'm talking about. One suggestion was to use a heated throw. I live in the south where we get hot temperatures in the spring and summer, but I cannot make it without my heated throw year round. It seems air conditioning affects me more than cold. We visit our children up around Seattle fairly often, and I left a throw there. The first trip I packed it in my checked luggage and confused the poor checkers of luggage when it went through the scanner. All those wires!

#7 debonair susie

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Posted 07 May 2009 - 10:46 AM

Yes, Raynaud's in the feet... count me in, too.

I also experience "color changes" in my feet, during and after showers. Mine blanch and then turn a grayish-blue, particularly the toes and heels.

I also find I have to be slow with increasing the water temperature, as it feels prickly on my feet as the water hits.

I just had to throw away some slippers I dearly loved because the soles were only cloth...they were big Sharpeis. My brother and sis-in-law had given them to me several years ago.

My feet are so hypersensitive, if I don't have good-fitting shoes on, my entire body hurts, along with my feet.

On the topic of warm slippers, my first husband's aunts always made what were called waffle slippers for the great-nieces/nephews each year. I loved them and always hoped they would make me a pair, but I could never bring myself to ask :unsure:

I let my mom-in-law know and she said, "I'm sure that the reason they never made you any is because they think they aren't good enough :o . At any rate, they have both since, passed away, so I need to locate some somehow!
Special Hugs,

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#8 mando621

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Posted 07 May 2009 - 02:45 PM

Hi,
At first I thought it was just not able to handle the cold.

I was taking ice skating lessons about 4+ years ago, I don't think I could do it now without the toe warmers.

Toe warmers they make for hunters/outdoors people are great! But they are made to be worn inside a shoe that doesn't get much air, or they get too hot and can burn you. I used them a lot this winter. What a lifesaver!!

I keep some charcoal warmers in the car now, just in case. My toes can turn white when I get out of the shower, but they don't seem as bad as the fingers.

I also get the burning hot and bright red, but almost always in the evening when I'm just relaxing. My hands will be on fire, red and hot, and of course they also start to swell. I even melted a candle at an evening church service one time, forming a nice J with it as I played with the soft wax.

My ears get this way too, yet I've yet to see my ears turn white or blue.

Mando.

#9 living linda

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Posted 07 May 2009 - 04:06 PM

The bottoms of my feet burn at night. They feel like I have been walking on pavement barefoot maybe. Like right now. I have them covered in my soft socks with my feet up and they are hurting. I hope I am not getting neuropathy.

#10 jefa

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Posted 07 May 2009 - 09:46 PM

Hi, Susie. I had to look up your waffle slipper reference to see what you were talking about and I discovered that there are quite a few sources for them online, so have a wee search.
Warm wishes,
Jefa

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#11 MaryFanPhilly

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Posted 08 May 2009 - 01:52 AM

Hi again Linda,

I agree that the heels might have to go except for very special occasions .... think of the stress they put on healthy feet, let alone compromised ones like ours. My podiatrist frowns on flip flops too, just so you know, she said they put our feet at higher risk because they are exposed, and because we have to kind of clench our toes when we walk in them. Be very careful of any breaks in your skin on your feet as they are at risk for infection as much as our fingers.

You don't mention if you have arthritic symptoms with the SSD. My fingers and toes are some of the worst joints affected in my body-my toes are twisting like my fingers, so also take that into consideration when it comes to pain.

At least you know you are not alone by a long shot!

Lots of luck,

Mary in Philly
Diffuse sclero; diabetes; hypertension; GERD with Barrett's

#12 LisaBulman

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Posted 08 May 2009 - 02:43 AM

I have Raynaud's in my feet too!! Definitely give up the heels if you can. I totally agree with everything else the ladies have said so far. Although, I do love my flip flops in the summer. Just be sure to cover up when you are out and about. When I know I am going shopping or to the supermarket, I always wear shoes or sneakers because you don't have control over the temperatures in the stores. In the hot summer days I like to wear my flips, so if we are planning to go out to dinner, I make sure I have a sweater and either a little blanket or towel I can cover my feet up with.

Hugs,
Lisa
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#13 debonair susie

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Posted 08 May 2009 - 05:50 AM

Thanks, Jefa!

I hope to take a look a bit later! :rolleyes:
Special Hugs,

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#14 Buttons

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Posted 10 May 2009 - 09:47 PM

I also have Raynaud's in my feet. Like others have mentioned they often are triggered by getting into the shower especially if it is a tiled surface, the toes go white & then change to dark purple before eventually going bright red. I have not worn heeled shoes for so long because my feet became so painful every time I put them.

Keep warm

Jensue

#15 nan

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Posted 11 May 2009 - 03:34 AM

I too have Raynaud's in my feet. I don't really have any good suggestions. Just watch your calluses to make sure they don't get infected. I know that my feet are numb so much that I can't always tell when I have hurt them. I know that I had a stress fracture in my foot that took 27 weeks to heal due to Raynaud's and poor blood supply.
Take care,
Nan

#16 living linda

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Posted 11 May 2009 - 07:30 AM

I am so thankful for the suggestions. I just left a grocery store that was so cold I had to leave almost immediately. It is 60 degrees outside and the air conditioner had the building freezing cold. Isn't that crazy? Air conditioning is harder on me than actual cold weather.

#17 Amanda Thorpe

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Posted 11 May 2009 - 09:09 AM

Hello All

I've just read this thread. I have Raynauds in my feet and it's worse than my hands. Regarding shoes, live in the now and kiss the nice shoes goodbye! I can only wear one type of shoe of which I have 2 pairs and they enable me to walk without using a walking aid. They are ugly and will always be ugly but there you go.

Apart from the Raynaud's I have no movement in the ankles and little in the feet which have thankfully left the hypersensitive phase. That was murder because everything hurt them even socks!

I recently went to a wedding and wore my lovely full length sleeveless dress, poking out from underneath it were my "special" shoes that look like a pair of platform trainers. Picture the scene, I have on a hat, dress, shrug, gloves, matching bag and jewellery and "special shoes"!! Did I care? No way!

I never thought I'd say it, being only 40 but when it comes to footwear comfort has to come first. :(

Take care

Amanda
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#18 Shelley Ensz

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Posted 11 May 2009 - 02:37 PM

Amanda, I also love your sclero-stylish ways!

I have only one pair of shoes now. They are very high quality German-made shoes with custom arch supports, from a shop that specializes in fitting difficult feet. They are perfect for wearing with either one or two pair of thick wool socks. I've had them for several years and would not trade them for anything in the world!

I know I need a pair of dress shoes, too, sooner or later, or surely I will end up at a fancy occasion in a dress with these clunkers. But so far I have managed to duck every really fancy occasion and just wear a nice pants outfit to the rest. Besides, you don't want me at fancy places; I get nervous and do the first thing that comes to mind, which is usually starting a food fight. And you think I'm kidding? Ha!

So the world is probably a better place for my feet only being happy in one special pair of custom orthotics. In case of fire, it's be a real toss up over whether I'd grab my purse or my shoes. I seriously don't know how I ever got by without them, and I know without a doubt they are key to relieving major pain from my toes to my neck.

One special pair of custom quality shoes cost about as much, usually, as about 4 pairs of tennis shoes or perhaps 2 good heels. But when I finally saved up and got my good shoes (I had my eye on them for over a year), I literally threw out all the rest of my shoes because I never wanted my feet/legs/back/neck to hurt that bad again.
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#19 Buttons

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Posted 11 May 2009 - 10:14 PM

I only wear a lace up shoe so that my orthotics will fit in and are comfortable. I wear trousers, usually with knee socks because they help to keep my lower legs warm as well as my feet. Even when I need to wear something a bit smarter I still wear my comfy shoes they don't look great with them but at least I'm comfy. My only problem is that they are nearly worn out and they have stopped making them so I keep looking for another shoe which will fit my orthotics and are comfy.

Jensue

#20 Honey

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Posted 12 May 2009 - 04:10 PM

Oh, yes, I have Raynaud's in my feet. It's hard to tell the difference between the sclero and the Raynaud's without touching. And they hurt all of the time. I, too, cannot wear socks without pain.

As far as shoes, only when necessary. I wear flip flops or barefeet. Of course, I live in warm weather nearly all year long. Only December, January and February can be cold, but even then, never below freezing, and mostly in the 50's.

HONEY