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Updated Story: Dorothy: Scleroderma CREST

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2 replies to this topic

#1 Judy Devlin

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Posted 12 May 2009 - 09:27 PM

(Update) Dorothy: Scleroderma CREST This is my 39th year with scleroderma so there is not much I do not know about it...
There are over 1,000 patient and caregiver stories on the main Sclero.org site.
Warm regards,

Judy Devlin
ISN Archive Committee Chair
International Scleroderma Network

#2 Amanda Thorpe

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Posted 13 May 2009 - 04:59 AM

39 years with scleroderma, way to go! Anyone newly diagnosed should read this personal story for encouragement.

Thank you Dorothy for posting it and updating it.

Amanda Thorpe
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International Scleroderma Network (ISN)

#3 debonair susie

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Posted 13 May 2009 - 09:03 AM

Thank you for posting this, Judy.

I couldn't agree with you more, Amanda.

It is so wonderful to read about someone, like Dorothy, who has become her own advocate and has the knowledge she does, about her own chronic illnesses.

My hat goes off to you, Dorothy and thank you!
Special Hugs,

Susie Kraft
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International Scleroderma Network (ISN)