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En coup de sabre

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#1 nmh



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Posted 13 May 2009 - 09:40 AM


I'm not sure if I'm in the right place..... maybe you all can help.

Recently I noticed that there is a small indentation in the form of a line that starts at my hair line and goes down about an 1-1.5 inches right in the middle of my forehead. Sometimes it looks as it there is a bluish purplish tint to it. I am the only one who notices it and it may have been there all along and I am just now noticing. When googling, en coup de sabre came up. I have no other symptoms of scleroderma but am in the process of trying to figure out if I have a thyroid problem and also recently went on a gluten free diet. I am a 32 year old female. Should I be concerned? Would it be rare to show up suddenly or is it something that is more likely found in a child? If it is something, would it most likely grow into something bigger/more noticeable?

Thanks for any help!

#2 jefa


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Posted 13 May 2009 - 09:56 AM

Hello, nmh.

Welcome to the Forums. I am glad you found us and hope you can learn something about your concerns which will help you find the treatment you need. Here is our page on En Coup de Sabre. From my brief scan, it does appear that this form of linear scleroderma is found in adults as well as children. I don't have any personal experience, but perhaps there are others who will share theirs.
Warm wishes,

Carrie Maddoux
(Retired)ISN Sclero Forums Support Specialist
(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

#3 nmh



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Posted 18 May 2009 - 03:25 PM

Anyone else have any information/opinions? This is really causing me a lot of anxiety.

#4 Shelley Ensz

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Posted 18 May 2009 - 03:50 PM

Dear nmh,

Welcome to Sclero Forums! I'm sorry it's because of concern about en coup de sabre and hope we are able to provide some help for you.

As it happens, it is very important to be seen by a scleroderma expert in order to be diagnosed and treated for any type of scleroderma, including en coup de sabre. You might want to start by seeing your primary care physician about it. Discuss your concerns and ask for a referral to an expert center. You might also want to consult a board certified dermatologist, along the way.

En coup more commonly onsets during childhood, I believe, but it can start at any age. However it is only the experts who could determine whether your indentation is natural or due to a disease. If you are not prone to hypochondria, then go with your gut feeling and pursue it, even if other people do not seem to notice it. Also, document it by taking photos on a regular basis, like now, and every few months, perhaps even with a ruler in the photo.

Sometimes, the start of scleroderma skin involvement can be rather crazy-making, as we can notice it and feel the skin changes before anyone else can, especially doctors who have never examined us before so they don't know what our "normal" is. So just summon the confidence to get it checked out by a pro! Hopefully it will be just a natural part of aging or perhaps due to weight loss or something. But if it is en coup, you'd want to know it and develop a treatment plan, if possible.

If your anxiety seems to be out of proportion to a small indentation, which might never amount to more than that, be sure to gather all the facts you can (as you are doing now), take a realistic look at them to ascertain threat to your health and safety (in this case probably rather minimal as en coup is not fatal and if you have it you would be catching it very early on). If you still feel you are over-reacting to it in a few weeks, then seek some counseling to deal with the anxiety, as it can be quite disabling and worse, in itself, than en coup.

Meanwhile we are all here for you! Please seek input from a scleroderma expert.
Warm Hugs,

Shelley Ensz
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International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.