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#1 Kathy D

Kathy D

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Posted 13 May 2009 - 11:59 AM

He hopes I get better but said there are no guarantees. He said disability is a long drawn out process so I should start now.

He also mentioned that if I do get it but start feeling better I can come off it and go back to work which made me feel better.

Today he started me on Amlodipine for Raynaud's but warned me to stop taking it if I get dizzy since my BP is normal/low to begin with.

He added DHEA, fish oil, and said we should consider Methotrexate but didn't want to shock my system with too many things at once.

If I am still not improving next month he is referring me to Dr Fischer in Denver, as Dr Cohen is booked out 6 months (both doctors are listed on this site for expert care).

Thanks for letting me share:)
Diffuse Scleroderma Diagnosed March 2009

#2 janey


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Posted 13 May 2009 - 12:33 PM

Thanks for the update. I too hope the medications help you feel better. What your doctor said about the disability thing makes sense. I know for some, it has taken a very long time. You never know. I can speak from experience that during the first year I was thinking about disability, but things did get better. I later found a really good part-time job that I can easily manage. Since I love to work, it's been a blessing!

Let us know how your doing on the meds!

Big Hugs,
Janey Willis
ISN Support Specialist
(Retired) ISN Assistant Webmaster
(Retired) ISN News Director
(Retired) ISN Technical Writer for Training Manuals
International Scleroderma Network (ISN)