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Hi, all

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4 replies to this topic

#1 Cheerful Carole

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Posted 24 May 2009 - 01:34 AM

What a fantastic forum - I found it just when I thought I was the only one in this world with this silly thing ..... :)


#2 chockers


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Posted 24 May 2009 - 03:04 AM

I am cheerful as well .

i like being cheerful.
Christine (new ) from Norfolk

#3 Amanda Thorpe

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Posted 24 May 2009 - 08:15 AM

Hello Carol

Silly thing? I take it you are referring to the mean and moody Mr Scler O Derma?

When diagnosed I felt like I'd been transported into a 50's black and white Sci Fi film in which I'd become one of THEM and was desperately seeking out other THEM! Little did I know that we're everywhere!

I am in Essex and I host a local group for the Scleroderma Society U.K. and still find it amusing that there are so many of us with sclero in one area. When you're diagnosed and told it's RARE you think you've got no chance of meeting someone else with this complaint.

Well I'm glad to say there's loads of us here and that this is, in my opinion, the best place to find out about scleroderma and one of the best to meet people not just living with it but having a rip roaring time of it anyway!

Take care.
Amanda Thorpe
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#4 debonair susie

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Posted 18 June 2009 - 07:25 AM

Cheerful people are great...especially those of us who can be...despite the reason that brings us all together.

In many ways, I feel we are fortunate, in that we are all "Family" :rolleyes:

{{{Extra Special Hugs}}} to all of you Cheerful Ladies!
Special Hugs,

Susie Kraft
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#5 Deb1million


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Posted 18 June 2009 - 08:54 AM

For such a "rare" condition, it is comforting to find so many 'sisters in sclero' (and brothers!) to give support to each other.
I think this site has saved my sanity after I got my diagnosis with no info given. But I did know that my cousin has sclero as welll as me, so already knew a little bit, but was still spooked by my diagnosis.

Debs - also VERY cheerful and always smiling!