Jump to content


Do you want up to date information about Scleroderma? Check out our Medical pages at www.sclero.org for all your Scleroderma questions!


Photo

Watermelon Stomach treated with Argon Plasma Coagulation


  • Please log in to reply
12 replies to this topic

#1 jlph62

jlph62

    Newbie

  • Members
  • Pip
  • 4 posts

Posted 24 May 2009 - 08:00 PM

I was diagnosed with watermelon stomach in February. On Thursday May 28th I am going to have the Argon Plasma Coagulation. I was wondering if someone who has had this done could tell me a little about their experience. I have scanned the internet and cannot find any information; only the fact that watermelon stomach is treated this way.
Thanks
Joanne

#2 jefa

jefa

    Platinum Member

  • Members
  • PipPipPipPipPipPipPipPipPipPip
  • 1,325 posts
  • Location:Scotland

Posted 24 May 2009 - 10:41 PM

Hello, Joanne. While this is not your first post, I see that you have not been properly welcomed, so let me do that first with a big hug. You have most likely looked at our page on Gastric Antral Vascular Ectasia (GAVE), but there a number of Patient/Caregiver stories at the bottom which may help you.
Warm wishes,
Jefa

Carrie Maddoux
(Retired)ISN Sclero Forums Support Specialist
(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

#3 janey

janey

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 2,118 posts
  • Location:New Mexico

Posted 25 May 2009 - 07:26 AM

Joanne,
Welcome! Sorry I missed your first post. Jefa has provided a link to our Watermelon Stomach (GAVE) page. It will give you general information as well as pictures (but you probably already know what it looks like and certainly what it feels like). We do have a section on Treatment with a couple of abstracts concerning argon plasma coagulation. The last one in this section is one that Jefa sent me this morning. It talks about the procedures and has some great pictures. Apparently this is a pretty successful procedure (according to the abstracts on the ISN page on GAVE).

Good luck with your procedure. I hope it gives you some relief which is the most important thing! Please let us know how it goes.

Big Hugs,
Janey Willis
ISN Support Specialist
(Retired) ISN Assistant Webmaster
(Retired) ISN News Director
(Retired) ISN Technical Writer for Training Manuals
International Scleroderma Network (ISN)

#4 adensmore

adensmore

    Senior Bronze Member

  • Members
  • PipPipPip
  • 36 posts
  • Location:Raleigh, NC

Posted 25 May 2009 - 09:32 AM

I have GAVE and have bi-monthly endoscopies with argon plasma coagulation. I had the procedure at least a dozen times with no complications. It's quick and absolutely painless. They put me under with an amnesiac, pain medication, and a sedative, as well as an anti-emetic. I'm unusually hard to put to sleep since I take a prescription pain medication regularly, so I can't imagine that your doctor would have to use all 4 drugs like for me. The entire procedure lasts 45 minutes. I'm usually sleepy later that day, but otherwise, I've had no side effects. It has cut down the number of transfusions I've had to get considerably. I don't think you need to be worried at all.

Best of luck,
April

#5 Jeannie McClelland

Jeannie McClelland

    Senior Gold Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 1,706 posts
  • Location:in the Rocky Mountains of the USA

Posted 25 May 2009 - 09:35 AM

Hi Joanne,

I missed you too! Can you stand another hug? Here it is (((HUG!))).

It's only a couple of days until your procedure and I wish you all the best. I hope you'll post about the experience when you feel up to it.

Warm wishes,
Jeannie McClelland
(Retired) ISN Director of Support Services
(Retired) ISN Sclero Forums Manager
(Retired) ISN Blog Manager
(Retired) ISN Assistant News Guide
(Retired) ISN Artist
International Scleroderma Network

#6 nan

nan

    Gold Member

  • Members
  • PipPipPipPipPipPip
  • 649 posts

Posted 25 May 2009 - 02:58 PM

Joanne,
Welcome!!!!!!!!!!! I too have GAVE. I have had the argon plasma coagulation done twice. Painless procedure, I go to sleep very easily. They usually have trouble waking me up... I did have some discomfort due to whatever it is they put in your system. Let us know how you do. I am sure you will do well too.
Nan

#7 jlph62

jlph62

    Newbie

  • Topic Starter
  • Members
  • Pip
  • 4 posts

Posted 25 May 2009 - 07:21 PM

Thank you for all of the warm welcomes. I am a little less nervous reading that others have had no problem with this procedure. In addition to GAVE; I also have Raynaud's, GERD, lot's of inflammation, pulmonary hypertension, fibromyalgia, chronic fatigue, as well as some kidney issues. I am also a diabetic. Thank goodness I have a really good primary care doctor who got the ball rolling (it helps when your fingers turn blue in front of him). I now see a rheumatologist, nutritionist, and a gastroenterologist. It did not take long for me to get a diagnosis, the only hard part is since I look well on the outside nobody (especially family) really believes there is anything wrong with me.
Thanks for listening
Joanne

#8 nan

nan

    Gold Member

  • Members
  • PipPipPipPipPipPip
  • 649 posts

Posted 26 May 2009 - 12:51 AM

Joanne,

Sounds like you do have a lot going on. I have fibromyalgia, GERD, Raynaud's, Sjogren's along with scleroderma and GAVE. I think we all have a combination of stuff.

Take care,

Nan

#9 jlph62

jlph62

    Newbie

  • Topic Starter
  • Members
  • Pip
  • 4 posts

Posted 28 May 2009 - 07:44 PM

I had the argon plasma treatment today, and it was not as bad as I thought it would be. The only uncomfortable part was that I was not given enough to put me out and the tube really bothered me. I have to have it done again in 3 weeks and the doctor said she would be sure to see to it that I receive enough medications so it doesn't bother me at all. No pain afterwards just a long 2 hour drive home.
Joanne

#10 Jeannie McClelland

Jeannie McClelland

    Senior Gold Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 1,706 posts
  • Location:in the Rocky Mountains of the USA

Posted 29 May 2009 - 02:44 AM

Hi Joanne,

Great news that your treatment went so well! Did your doctor indicate how many sessions she thinks you'll need?

I'd definitely want more sedation - I'd like to be completely out for even a filling at the dentist~ :D
Jeannie McClelland
(Retired) ISN Director of Support Services
(Retired) ISN Sclero Forums Manager
(Retired) ISN Blog Manager
(Retired) ISN Assistant News Guide
(Retired) ISN Artist
International Scleroderma Network

#11 Margaret

Margaret

    Senior Gold Member

  • Members
  • PipPipPipPipPipPipPipPip
  • 997 posts
  • Location:Pennsylvania

Posted 29 May 2009 - 10:53 AM

Hi Joanne ,

It is good to hear that your coag session went well.

Take care, Everyone.
Margaret

#12 Sheryl

Sheryl

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 1,029 posts
  • Location:Brooklyn, Michigan

Posted 30 May 2009 - 12:44 AM

Joanne, hopefully in three weeks after your second treatment is complete and healed you will be a new women for quite awhile. I am happy things are working out for you. Keep us informed on your treatments.
Strength and Warmth,
Sheryl

Sheryl Doom
ISN Support Specialist
(Retired) ISN Chat Moderator
International Scleroderma Network (ISN)

#13 nan

nan

    Gold Member

  • Members
  • PipPipPipPipPipPip
  • 649 posts

Posted 30 May 2009 - 03:21 AM

Good news! I am sorry that you didn't get enough sedation.
Nan