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Bubbles?


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#1 betty32506

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Posted 07 June 2009 - 11:01 AM

Sometimes when I am lying down I have this weird sensation. It is hard to explain so will use imagination. Imagine in a hot tub You turn the bubbles on and they start at your feet and make their way up your body until they reach the neck. The bubbles envelope you. It is as though they were inside as well as outside of the body. They usually start at my feet, but not always. They make their cycle in about 4 seconds. They repeat this intermittently. I only notice this when I am still and quiet as this is a low intensity sensation.
Betty

#2 Shelley Ensz

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Posted 08 June 2009 - 05:17 AM

Hi Betty,

I may be wrong (I often am!) and please keep in mind I have no medical training at all. My first aid kit isn't even well stocked!

I haven't heard of anyone else reporting this sensation of bubbles before, in relation to scleroderma. It sounds to me like it might possibly be what is called a "sensory hallucination of touch" but who knows, it could also be many other things.

Sensory hallucinations can be caused by a very wide variety of things, including medications, high fevers (do you have the flu?), drugs, alcohol, zinc poisoning (especially in denture wearers), mental illness, post traumatic stress disorder, dementia, head injuries, or other serious illnesses, including end stage kidney disease.

You'd want to let your doctor know this symptom, and you'll probably need a complete physicial and some other testing to get to the bottom of it. If it reoccurs, please don't just let it go, as it might be a side effect of a medication you are on or a sign of serious kidney disease, which unfortunately is quite common in scleroderma patients.

Or, it could just be "one of those things". I really can't hazard a guess, having never experienced this or studied it, either.
Warm Hugs,

Shelley Ensz
Founder and President
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Hotline and Donations: 1-800-564-7099

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#3 betty32506

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Posted 08 June 2009 - 06:55 AM

Shelley,

I had not heard of this sensory problem. I appreciate your response. One thing mentioned as a cause could be kidney related. I am in kidney failure stage 3 at about the 2/3 point. Of course there are the other possibilities. Recently I have a lot of edema especially in one foot. It perplexes me that this would not be symmetrical. I am not scheduled to see the kidney doctor until the middle of September. I have only seen the kidney doctor twice and he gives the impression of at this stage why am I seeing him. I have an appointment with my general practitioner next week and wish I could have labs done before that but it won't work out that way. My kidneys have been very slowly declining so it is not likely, but possible, that they are failing faster.

I decided to post this crazy post wondering if any one else has such.

Betty

#4 Shelley Ensz

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Posted 09 June 2009 - 09:40 AM

Hi Betty,

Well, I do hope that your kidneys aren't any worse. Maybe it is "just one of those things" or due to something else. Let us know how it turns out. We're always here for you.
Warm Hugs,

Shelley Ensz
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Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#5 betty32506

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Posted 09 June 2009 - 12:13 PM

Shelley, thanks

#6 betty32506

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Posted 10 June 2009 - 10:00 AM

I have come up with a guess. My blood pressure is too low. Next time I feel like that I will check it then. I think to know what it is it would have to be caught in the act so to speak. I don't have a lot of confidence in doctor's answering :unsure:
Betty

#7 Cheryle

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Posted 12 June 2009 - 12:50 PM

Betty,
How curious!
Let us know if it is your low blood pressure next time it occurs.
Cheryle

#8 debonair susie

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Posted 18 June 2009 - 06:37 AM

Hi Betty,

How are you doing? I just wanted to check in with you and see if you have any new information?

Take care of yourself...
Special Hugs,

Susie Kraft
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#9 betty32506

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Posted 18 June 2009 - 12:02 PM

I haven't had that particular feeling for a few days but I have frequently found my blood pressure to be what I think is low.
Thanks for asking
Betty

#10 Shelley Ensz

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Posted 18 June 2009 - 03:23 PM

Hi Betty,

As I understand it, officially low blood pressure is anything less than 90 over 60 (on either number). However, if people feel fine with very low blood pressure readings, then it is still not considered a problem. But, if the blood pressure is less than 90 over 60 and there are also symptoms, like light-headedness, dizziness, and so forth, then it is (usually) medically treated.

If your blood pressure is higher than that, but you are experiencing symptoms, it may be something intermittent, like orthostatic intolerance. I have both labile hypertension with orthostatic hypotension. So, I can have very high blood pressure but still be very lightheaded or dizzy (with relapsing fatigue afterwards) when I move positions (like from sitting to standing) or when I am upright for too long, or too physically active. So, it is possible to have normal, high, or labile blood pressure and still have orthostatic intolerance.

I had testing, including a lot of neurological testing which included tilt table testing, to diagnose the orthostatic intolerance.
Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#11 jefa

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Posted 18 June 2009 - 10:02 PM

I have also had a problem since my teen years of orthostatic hypotension, even during times when blood pressure was higher (e.g. during pregnancy). When I was in boot camp I had to be moved to a lower bunk because at reveille I would scramble out of bed, scurry to the line and faint. I just have to remember not to get up to quickly and if I get dizzy, raise my feet above my head to allow the blood to flow back into it.
Warm wishes,
Jefa

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#12 betty32506

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Posted 19 June 2009 - 03:49 AM

That sounds a lot like me except since recently Plendal was added to micardis and now I am seldom high. I don't know if I had the "bubbles" feeling before that or not but I did, and still do, have the feelings to a lesser extent described in the orthostatic hypotension you mentioned. I have never fainted.

I had not looked into that. I have long had what I thought was positional hypotension. Recently I attributed much of it to medication and birthdays (76).

I will look into that more. Thanks.

Betty