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New Story: Scott: Friend of Patient with CREST


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#1 Judy Devlin

Judy Devlin

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Posted 15 June 2009 - 10:04 PM

Scott: Friend of Patient with CREST One of her first doctors said she had five years to live. Why would he say such a thing? I have read story after story of people having CREST for decades...
There are over 1,000 patient and caregiver stories on the main Sclero.org site.
Warm regards,

Judy Devlin
ISN Archive Committee Chair
International Scleroderma Network

#2 nan

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Posted 16 June 2009 - 02:52 AM

Do you think she has PAH or lung issues? I am not a doctor, but that is just a thought. I thought there was treatment for these. I have CREST and the doctor didn't say I have 5 years.
Take care,
Nan