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Genital-anal Manifestations of Lichen Sclerosus

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Posted 21 January 2007 - 10:10 AM

While my form of Scleroderma is more of nuisance I have read a lot over the years on systemic, facial, hand and mouth forms of this disease. This started for me over thiry years ago when I though I was having constant genital yeast infections.
When the creams didn't help I was refered to the Gyne clinic at our local hospital and one look from the Gyne and Dermatologist they called it Scleroderma and gave me a cream. I was distraught knowing little so I looked in some pathology books and they suggested a biopsy would be the only sure way to diagnose this disease. My physician listened and sent me for a biopsy which confirmed the diagnosis. At that point I had know anal involvement and the Gyne remarked that that was unusual. A couple of decades later the skin around my anus got itchy just as this physician foretold. A referal to another Dermatologist said the itching would stop once the disease burnt itself out. I am still waiting and looking for other people that might have this unspoken form of the disease. I have other spots on my abdomen and small of my back that are pigmented and no longer itchy. My biggest fear is being the old senior in a nursing home clutching and groping at my itchy self....Not pretty..
Thanks for Reading.....

#2 Heidi


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Posted 21 January 2007 - 11:00 AM


Welcome to the forums! I am glad that you have found us, but sorry it is due to your diagnosis. I am wondering if the type of scleroderma you are referring to is what is called licehn sclerosus. Here is a page from our Sclero A to Z website on lichen sclerosus.

I hope there is some information here that is helpful for you. I am really sorry you are having to suffer with this pain and itchiness, but glad you found us. I am sure you will find everyone here very warm and supportive....and willing to provide information and advice when we can. Again, welcome!

Warm wishes,

#3 Sweet


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Posted 21 January 2007 - 12:09 PM

Hi Lynn,

Welcome to the Sclero Forums. I have to admit that I'm not that familiar with the type of sclero you have going on, but I almost must say it sounds miserable. I hope the link Heidi gave you is helpful to you. I'm also sure that if someone else here on the forums has any information, they will be sure to share it with you.

You will find a lot of support, information and friendship here. Really glad you have joined our family.

Take care,
Warm and gentle hugs,

ISN Support Specialist
International Scleroderma Network (ISN)

#4 Shelley Ensz

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Posted 21 January 2007 - 12:56 PM

Hi Lynn,

Welcome to the forum! I'm sorry you have lichen sclerosus and I hope the itching settles down for you soon in this round. There are some treatments for lichen sclerosus now, which might help quell things a bit.

Just so new forum members understand it, and as you know, lichen sclerosus is not any form of scleroderma. Rather, it is a separate skin disease which is sometimes confused with morphea scleroderma and which sometimes occurs in overlap with morphea scleroderma.

We serve people with scleroderma and related symptoms and diseases, so you are definitely in the right forum, but many people here will be referring to scleroderma and other skin and autoimmune diseases here, or just assuming you are referring to scleroderma. So I just want to let people know that the symptoms you describe are not due to any form of scleroderma, but rather, lichen sclerosus. Again, our link is Lichen Sclerosus et Atrophicus.
Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.




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Posted 03 February 2007 - 05:28 AM

Thank you! I was reading the wrong info, you have all been very helpful.