sclerosis specialist nurse
Posted 18 June 2009 - 10:14 AM
I saw mine recently, (there are two in the team) and she was brilliant! She had more time than the rheumatologist, and gave me her direct phone number for any queries.
This is a great addition to seeing the regular doctor each visit.
Posted 18 June 2009 - 10:57 AM
Yes there are a team of specialist nurse at the hospital my rheumatologist is at. They can be phoned any day for advice as well as be seen when I'm at the hospital.
The Scleroderma Society and the Raynaud's and Scleroderma Association both have the numbers of specialist nurses in their newsletters and I believe anyone can telephone them for advice.
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Posted 19 June 2009 - 03:16 AM
I get more information from everyone here and on the internet than I do with my rheumatologist!
Posted 19 June 2009 - 06:53 AM
Posted 25 July 2009 - 10:00 AM
iI am well concrolled so just see the other nurses .
I am luckey that my Rheumatlosist used to work at the Royal free in London .
i have a scleroderma overlap .