Jump to content

Congrats to Margaret, Platinum Member with 1,000 posts and 10 Years of Forums Membership!


Stem cell transplant

  • Please log in to reply
8 replies to this topic

#1 Bird Lady

Bird Lady

    Silver Member

  • Members
  • PipPipPipPip
  • 118 posts
  • Location:Southport NC

Posted 22 June 2009 - 05:14 AM

Well Folks it looks like Birdman is going to have a allogenic stem cell transplant at Duke. They are testing his HLA with his siblings right now. We should hear within two weeks if there is a match. We will keep you posted!!
Hugs for All,

Julie (Bird Lady)

#2 Sweet


    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPipPip
  • 2,892 posts

Posted 22 June 2009 - 06:12 AM

Oh this is very exciting!

Looking forward to hearing more.
Warm and gentle hugs,

ISN Support Specialist
International Scleroderma Network (ISN)

#3 Margaret


    Platinum Member

  • Members
  • PipPipPipPipPipPipPipPipPipPip
  • 1,002 posts
  • Location:Pennsylvania

Posted 22 June 2009 - 07:13 AM

Hi BMW ,

I'm confused......doesn't take much for me in that area!!! Didn't Bird Man just have a stem cell transplant or am I mixing him up with someone else?

Take care, Everyone.

#4 ozzy69


    Silver Member

  • Members
  • PipPipPipPip
  • 169 posts
  • Location:Taylorsville, KY

Posted 22 June 2009 - 07:35 AM

That is exciting!! Please keep us updated!

#5 GocartMoz


    Silver Member

  • Members
  • PipPipPipPip
  • 164 posts
  • Location:Florida

Posted 22 June 2009 - 08:22 AM

Congrats Birdman. All my best. If I am not mistaken Margaret, Birdman was involved in SCOT, in the cytoxan arm of the study. The stem cell transplant, within SCOT, is an autologous transplant(your own stem cells). He must be receiving the allogenic transplant outside the parameters of SCOT. Good luck Birdman! You are in great hands.

#6 Sheryl


    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 1,029 posts
  • Location:Brooklyn, Michigan

Posted 22 June 2009 - 01:56 PM

Birdman and our birdman's wife. Please keep us informed on the procedures and how things are planned out. Anything to let us know what is going on with the stem cell replacement. I wish you the best birdman.
Strength and Warmth,

Sheryl Doom
ISN Support Specialist
(Retired) ISN Chat Moderator
International Scleroderma Network (ISN)

#7 janey


    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 2,118 posts
  • Location:New Mexico

Posted 22 June 2009 - 02:54 PM

Thanks for letting us know! It's great news and you know we will all have lots of toes and fingers crossed that everything works out for him.

Please do keep us posted.

Big Hugs,
Janey Willis
ISN Support Specialist
(Retired) ISN Assistant Webmaster
(Retired) ISN News Director
(Retired) ISN Technical Writer for Training Manuals
International Scleroderma Network (ISN)

#8 Shelley Ensz

Shelley Ensz

    Root Administrator

  • ISN Root Admin
  • PipPipPipPipPipPipPipPipPipPipPipPip
  • 3,276 posts
  • Location:Minnesota

Posted 23 June 2009 - 05:36 AM

Dear Birdman and Birdman's Wife:

I hope you get a match! I'll be eager to hear how it goes and am sending best wishes your way.
Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#9 jefa


    Platinum Member

  • Members
  • PipPipPipPipPipPipPipPipPipPip
  • 1,325 posts
  • Location:Scotland

Posted 23 June 2009 - 05:47 AM

Best of all possibilities for you both, my fine feathered friends. :D
Warm wishes,

Carrie Maddoux
(Retired)ISN Sclero Forums Support Specialist
(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)