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Should have known better-done too much !


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#1 Cheerful Carole

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Posted 27 June 2009 - 11:42 PM

Yesterday was a lovely day and I was feeling great. Found a shady corner where a lot of bushes needed trimming.
What did I do, got out the shears .... just do a little, and a little, and just a little more ... :rolleyes:
Today I am suffering ..... :mellow:

#2 Peggy

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Posted 28 June 2009 - 05:33 AM

This is the single hardest part of this disease for me. I'm a perfectionist and I do everything around the house both inside and out. I too am one that if I see something that needs to be done I try and forge ahead and do it and then I really pay for it the next day. This is the issue that I struggle with the most. It's so hard when before we were sick we were able to do whatever we wanted. Now that this disease is so ever-present we are hindered by the restrictions and its frustrating.

I so hope that you are resting today and feel better.

Warm hugs,
Peggy

#3 Deb1million

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Posted 28 June 2009 - 09:30 AM

Hello Carol, and Peggy,

Yes, I've done the same thing today in the garden. I've been feeling so much better since Ive been on the Cellcept and hydroxychloroquine, that I felt invincible today, and plowed through the weeds like a woman on a mission!

Now I'm sitting after a warm bath, wishing I hadn't gone so mad! :rolleyes:

Hope you are feeling better after a day of rest.

Keep smiling! :lol:

Debs

#4 Amanda Thorpe

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Posted 12 August 2009 - 12:04 PM

Hello All

Isn't it difficult to get the right balance between activity and rest! If I feel good I'll go past the point of no return and then of course be good for nothing the next day. I think part of what makes it so difficult is that you're never sure when the next good day will be so when they come along we pounce on them.

Oh well we live and learn!

Amanda
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#5 mammagigi

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Posted 16 November 2009 - 11:52 AM

Alleluhia!!!!
I hear you, sisters, as I'm new to this website & only ever had one other friend with the disease in the past 17 years who unfortunately died a few years ago. It's refreshing to hear the same problems.

These days I have my husband at home looking after me fulltime and the most enlightening thing since he has taken over is his admission that he still can't manage what I did & that he gets really tired. That makes me feel so much better knowing that it's not just the disease but more so trying to be a perfect mother & wife.vvI actually think we probably try harder & that is why we have our crash out days just to prove we can still function in our own ways.


But the best thing about having my husband at home is that finally my energy isn't just going on doing the dishes or laundry. I've actually been able to finish my uni degree this year. In the past I've pulled out & gone back depending on flare ups & hospital visits & needless to say struggled a lot trying to keep up with readings whilst constantly falling asleep from exhaustion. This semester my husband attended uni as my scribe & what an amazing difference. I'm happy to report I managed to get excellent grades. Although I had in the past, this time I could put in so much more & not crash & burn after!

The big tester now is my husband has to scribe for my exam & they've told me that I will have no appeal rights if he messes up because he is my husband...so the pressure's on!

Cheers all & enjoy those good days cos there is nothing better!!!!!!
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#6 Amanda Thorpe

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Posted 19 November 2009 - 06:06 AM

Hello Mammagigi

Well done with the studying! How great that your husband is able to make it a team effort and that you've found a way to keep doing something you want to do. You prove the point that sclerodermians are always the best people and of course so are our husbands. :girly1-by-lisa-volz:

Take care.
Amanda Thorpe
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