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Biomarker for Diffuse Scleroderma skin has been discovered!


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#1 PerkySandy

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Posted 02 July 2009 - 04:16 PM

In 1991, I presented with what appeared to be bruises under my
arms and on my back. When they did not disappear, I went to my
Primary Care Doctor. He referred me to a dermatologist in Spokane. The dermatologist took a look and a biopsy. When the results came back, he said it was the strangest thing he had ever seen and no one knew what it was. It didn't get any worse, so I ignored it.

In 2001, I again presented with what looked like bruises, but more and larger. I had moved to Idaho by that time. I contacted my Primary Care Physician and said that I wanted answers to this
problem. He sent me to a dermatologist in the Boise area. He took one look and said Morphea ! He gave me as much information as he could and said that the Morphea wouldn't be
my demise. But on future appointments, he suggested getting
a Pulmonary Function Test (breathing test) to have as a baseline.
He also had blood tests run for the first few years.

Once the internet came into my life, I started researching Morphea.
I ran across someone who had equated her onset of Morphea
with Tetanus shots. Then I realized that, after each Tetanus shot,
was when I presented with the Morphea. So I no longer take
booster shots for Tetanus.

#2 Jeannie McClelland

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Posted 03 July 2009 - 02:15 AM

Hi Sandy,

Welcome to the Forum. I hope your Morphea isn't too severe. Have you looked at the information we have?

Have you stopped getting new lesions since you stopped getting tetanus booster shots? Now that would be a very good thing! :)

Warm hugs and once again, welcome.
Jeannie McClelland
(Retired) ISN Director of Support Services
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International Scleroderma Network

#3 Amanda Thorpe

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Posted 03 July 2009 - 11:22 AM

Hello Sandy

Welcome to the forum!

I have morphea, bullous morphea and the systemic form of scleroderma. I think the morphea and systemic sclero came on at the same time so any guess as to the cause.

Hope to hear more from you soon.

Take care.
Amanda Thorpe
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