Jump to content

Hang onto your hat: Sclero Forums Upgrade May 14-21, 2017!! The Forums will be offline for up to 4 days, and then will return with an entirely new look and feel.



  • Please log in to reply
2 replies to this topic

#1 miocean


    Senior Gold Member

  • Members
  • PipPipPipPipPipPipPipPip
  • 920 posts
  • Location:NJ

Posted 08 July 2009 - 05:11 AM

When I was first hospitalized with kidney failure and a diagnosis of scleroderma I noticed that my hands would shake, especially when eating. That was five years ago and I am still shaking. At first I attributed it to weakness but it had gone on too long. My legs shake also when doing certain stretches. I went to a neurologist to find out what it was, with a concern that it might be Parkinson's disease. She ruled that out and said I had postural tremors. I see her again in a couple of weeks. She told me she could give me meds for this but that I am on so many already she hated to add to it

My questions is has anyone else experienced the shaking or is this a totally separate problem in relation to scleroderma? Please let me know.

ISN Artist

#2 Jeannie McClelland

Jeannie McClelland

    Senior Gold Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 1,696 posts
  • Location:in the Rocky Mountains of the USA

Posted 08 July 2009 - 05:48 AM

I don't think I've ever heard of tremor being linked to scleroderma in the absence of other conditions, but I'm sure not qualified to make a definitive statement. What did your neurologist think about scleroderma as a possible cause?

Hyperthyroidism can be associated with scleroderma and can cause tremor. We've got a good section on Thyroid Disease.

Another possible culprit is medication (drug-induced tremor). Cyclosporine and Reglan (Metoclopramide). There are probably more, but those are the two that come to mind.

Will you keep us updated on this? I'm really sorry you are having to deal with tremor on top of everything else. Good luck with your next neurology appointment.

Best wishes,
Jeannie McClelland
(Retired) ISN Director of Support Services
(Retired) ISN Sclero Forums Manager
(Retired) ISN Blog Manager
(Retired) ISN Assistant News Guide
(Retired) ISN Artist
International Scleroderma Network

#3 CraigR


    Senior Silver Member

  • Members
  • PipPipPipPipPip
  • 394 posts
  • Location:Escondido (near San Diego), Ca

Posted 08 July 2009 - 06:07 AM

I've had termors since I was a teenager. I'm told it is "essential tremor" (which basically means they don't know why... but it might be hereditary). I suspect that it might be related to a drug that I started about that time. It gets worse if I'm hungry, suggesting low blood sugar.

Regarding your doctor's mention of "postural" tremors. I don't know exactly what that means, but I was told that I have "intention tremors" (sounds the same as postural), which means that the tremor occurs when the muscle is put into action, such as when you lift your hand, or reach for something. This is in contrast with "rest tremor", which (obviously) occurs at rest, like when your arm is resting at your side. Parkinsonism is associated with "rest tremor", I am told. This may be why your doctor excludes Parkinson's. I am not a doctor, but this is what I have heard. There is medication that can help, should it be disabling.