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Biomarker for Diffuse Scleroderma skin has been discovered!


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#1 Alexandra

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Posted 31 July 2009 - 05:40 PM

Hello all!

This is Alex in Surrey in the UK!

I am back from a sort of surgery/flare up/painful period of about a year.

It's a long story and I won't bore you with it (well not yet anyway!).

My return is of course to hopefully find some peace, comfort, joy and understanding that is sadly so often missing out there in the 'real' world, when one is struggling with Scleroderma.

I see we now have a UK forum section too,which is great ,though I'm not sure if this post will be going to only the UK or my friends in the rest of the world too?

Any way, it is 5 am and my elbows are sore on the table so I'm off to put the kettle on and cuddle the cat.

My love and gentle hugs to everyone.

Alex
xxxx

#2 lizzie

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Posted 01 August 2009 - 05:03 AM

Hi Alex, welcome back. There is nothing I love more than a long sclero related story, so get typing!

Lizzie

#3 Amanda Thorpe

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Posted 01 August 2009 - 10:23 AM

Hello Alex

I've just had a personal email from an Alexandra in Surrey so I am asuming that's you! If not I'll be suitably embarrassed! :blink:

As it happens you have posted on the main forum rather than the UK subforum and you're free to post on whichever one you want or indeed both. The UK sub forum is a great place to post topics particular to the UK for instance about the NHS or our benefit system but of course topics don't have to just be about that. Basically you now have two forums at your disposal!

Now then, when are you going to spill the beans about your sclero journey to date? Like Lizzie I love a good, long sclero story because everyone's so different and unique like those of us with sclero!

Take care and I look forward to more posts.
Amanda Thorpe
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#4 Sweet

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Posted 01 August 2009 - 03:34 PM

Alex, I am so glad you are back!!! I think of you everytime I order my mineral make up. I'm so sorry to hear you've had a rough go of it, and I hope you are feeling somewhat better.

Looking forward to hearing from you more often *hugs*
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#5 Alexandra

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Posted 02 August 2009 - 08:49 AM

Hi Lizzie, Amanda and Sweet!

Thank you for your welcomes!

Amanda yes it was me who emailed you, I am on a bit of a mission to start some supportive group hopefully close to me in Surrey. I shall post a new topic to relay my scleroderma history and the latest surgery etc..I 'm sure it may help someone with ideas etc!

Happy Sunday to you my friends.

Love
Alex
xxxx

#6 Shelley Ensz

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Posted 03 August 2009 - 05:55 AM

Welcome back, Alex! I'm glad Amanda has explained to you all the ins and outs of our U.K. subforums, too.
Warm Hugs,

Shelley Ensz
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The most important thing in the world to know about scleroderma is sclero.org.