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Interstitial Cystitis (I.C.)


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#1 Snowbird

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Posted 08 August 2009 - 03:47 PM

Hi Amanda

Was it you a while back that said interstitial cystitis (IC) is an autoimmune disease? I was always under the impression it was still sitting on the fence (my sister has a severe case of it)? If it was you....can you tell me where you found that information please? I would be interested in that reading. Thank you!
Sending good wishes your way!

#2 Amanda Thorpe

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Posted 09 August 2009 - 12:13 PM

Hello Snowbird

I'm so sorry I don't remember who told me, my diagnosis was 4 years ago. I, like yourself, went on the internet and found autoimmune interstitial cystitis (IC) that can be caused by scleroderma, fibromyalgia and lupus. When I was diagnosed with IC I also had the beginnings of scleroderma but obviously didn't know it.

I hope this helps and take care.
Amanda Thorpe
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#3 Snowbird

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Posted 09 August 2009 - 01:10 PM

Hi Amanda

I didn't realize that either....thank you so much!!
Sending good wishes your way!

#4 Shelley Ensz

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Posted 10 August 2009 - 07:21 AM

Hi Snowbird,

We have a page on our main site about Interstitial Cystitis (IC). I also have that, among many other things.

See: Interstitial Cystitis by ISN.
Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#5 Snowbird

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Posted 10 August 2009 - 09:23 AM

Thank you too Shelley!
Sending good wishes your way!

#6 ozzy69

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Posted 10 August 2009 - 09:45 AM

Hi snowbird!

The IC Network also has a lot of information. When my IC was really bad I was on their site everyday!
Hope that helps...

Nina

#7 Snowbird

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Posted 12 August 2009 - 09:28 AM

Hi Ozzy69...thank you!
Sending good wishes your way!