Jump to content

Hang onto your hat: Sclero Forums Upgrade May 14-21, 2017!! The Forums will be offline for up to 4 days, and then will return with an entirely new look and feel.


Tongue Ulcers

  • Please log in to reply
7 replies to this topic

#1 summer


    Gold Member

  • Members
  • PipPipPipPipPipPip
  • 522 posts

Posted 16 August 2009 - 07:05 PM

Hi, I have been suffering from tongue ulcers for a couple of weeks now. Every time I wake up there is a new one, on a different side of the tongue, or, one goes, another one comes.

Does anyone know whether this Scleroderma related? :P

Many thanks

#2 relicmom1


    Silver Member

  • Members
  • PipPipPipPip
  • 208 posts
  • Location:Colonial Heights VA

Posted 17 August 2009 - 04:06 AM

I don't know if they are sclero related, but I get them too. They seem to happen in "spells".....
Peace :)
Barbara aka relicmom1

#3 Sweet


    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPipPip
  • 2,895 posts

Posted 17 August 2009 - 08:39 AM

Every visit to my rheumatologist involves a mouth evaluation. He always asks if I've had any mouth or tongue ulcers. I did only once and it was healed before I saw him, so I answered the affirmative and that was it. I've never thought to ask why he asks that. I see him next month and I'll add that to my list of questions.
Warm and gentle hugs,

ISN Support Specialist
International Scleroderma Network (ISN)

#4 alice1


    Senior Bronze Member

  • Members
  • PipPipPip
  • 47 posts
  • Location:North Caroline

Posted 17 August 2009 - 08:44 AM

yes it is SSc related. It is a yeast infection and I get them too. I take
clotrimazole generic for mycelex and it is gone in about a week of so.


#5 KarenL


    Silver Member

  • Members
  • PipPipPipPip
  • 213 posts

Posted 17 August 2009 - 10:05 AM

The mouth is part of the GI system which is affected by sclero. You can have ulcers anywhere along the alimentary tract, from mouth to anus, so yes, canker sores can be related. A good way to avoid them is to avoid sugar and faithfully take lysine 1000 mg every day.

#6 Jeannie McClelland

Jeannie McClelland

    Senior Gold Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 1,696 posts
  • Location:in the Rocky Mountains of the USA

Posted 18 August 2009 - 04:58 AM

Hi Summer,

We have a good link to oral care for dry mouth patients. It's the dry mouth that makes us susceptible to the infection that causes the mouth ulcers, as well as mechanical/chemical injury to the mucosa. (I had to stop eating those really rough crispbreads. That pleased the handsome hubby because I tended to have one as a bedtime snack and he hated the sharp crumbs in the bed. :lol: )

The mouth ulcers are generally believed to be caused by the organism Candida (good old Thrush), but this can be confirmed by taking a swab and checking it under the microscope. If it's done before starting treatment, and then afterwards, it also verifies the effectiveness (or not) of the treatment - usually an anti-fungal medication.

You might have a read of the Dental Involvement page - there are some interesting articles on the subject. And as always, check with your doctor before starting any treatment, even OTC products.

Warm regards,
Jeannie McClelland
(Retired) ISN Director of Support Services
(Retired) ISN Sclero Forums Manager
(Retired) ISN Blog Manager
(Retired) ISN Assistant News Guide
(Retired) ISN Artist
International Scleroderma Network

#7 smac0719


    Senior Silver Member

  • Members
  • PipPipPipPipPip
  • 377 posts
  • Location:Tampa, FL

Posted 18 August 2009 - 01:33 PM

I used to get them too, but haven't had them in a while now that I think about it. They can be painful and annoying.
I may have Scleroderma, but Scleroderma doesn't have me!

#8 betty32506


    Silver Member

  • Members
  • PipPipPipPip
  • 120 posts
  • Location:Pensacola, FL Extream NW FL_

Posted 18 August 2009 - 04:02 PM

I have sores in my mouth, more on the underside of my lips. They do not ulcerate although they look like they should. The sores do not heal and go away they just seemed to stay. The worst part of my mouth problem was that anything even remotely spicy burns like hot pepper. It became such that I could not find a toothpaste that I could use. When I saw the Endo and asked about it with no hesitation she said Sjögrens and prescribed Evoxac. It took about 3 weeks to show results and then it was very slow. I still have sores under my lip but I am now again brushing with regular toothpaste, using a non alcoholic rinse and avoiding spicy food.