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hot head


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#1 Theresa

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Posted 17 August 2009 - 11:51 AM

Hi, my name is Theresa. For about two months I have felt like my neck up is on fire. The other part of my body feels very warm. When I have a blanket over me from my shoulders down I can feel the heat flowing out from under the blanket. In order to tolerate the heat on my head I must spray my neck up with water and stay under a fan in the air conditioner at all times. Even at bed time I get so hot that I have to keep wetted down before I can fall back to sleep. Please if you have any information that might help, let me know. thank you

#2 Theresa

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Posted 17 August 2009 - 12:28 PM

Hi, this is my first time to be on this site. For about two months my face and head feel like they are on fire so I've been keeping my face and head sprayed with water and sit under the air conditioner and fan. The rest of my body is very warm but tolerable. The doctors have checked my thyroid and hormones but have not came up with an anwser. Has any one had these symptoms?

#3 nan

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Posted 17 August 2009 - 01:12 PM

Theresa,
This happens to me, but I am going through menopause. I don't know if there is a connection to scleroderma. My scleroderma doctor attributes it to hot flashes as does my gynecologist. Sorry I couldn't be of more help.
Nan

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Posted 17 August 2009 - 03:11 PM

Hi and welcome :)

I have the same problem!

I suffered from the opposite for many years, I was always cold..no matter what the weather, no matter how many layers of clothing I wore, I was always freezing.!

I suffer terrible drenching night sweats but I would always feel cold, then suddenly about 6 months ago, I began to feel extremely hot during the day! and it became constant. I feel the heat rise through my body from my feet right up to the top of my head and I can feel my back getting wet!

I have to wipe myself down with a cold flannel constantly! I too have had tests for thyroid trouble and hormone problems but there aren't any!

I suffer re-active TB and have begun to think that it's back again..until I read your post! now I'm wondering if it's SSc? Are you diagnosed with SSc?

I can relate to you about how awful and distressing it is! I can't bare it at times!

Lets hope we can find out why this is happening to us!

Best of luck and warm regards to you.

#5 jaateach

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Posted 18 August 2009 - 12:21 AM

Thresa,Hi. I am so sorry you are dealing with this symptom. I will share my experience with you, which might ramble so please forgive. I too have had the dreaded "hot head". I had sclero symptoms for near 20 years before being diagnosed with sclero, and through the years while pursuing a diagnosis I would tell doctors that perhaps the nastiest symptom within this spectrum of symptoms was this thing -- hot head. I used to walk around with an ice pack strapped to my head. Th rest of my body also feels warm but tolerable. My temperature is never high during the hot head and actually seems to run low, down around 96 or so, which never seemed to matter to the doctor. I was finally lucky enough to end up in the emergency room with chest pains where a doctor figured out my symptoms were consistent with sclero, particularly the vascular component. He started treating me with vaso-dilators ? (blood pressure pills) and I began to feel better. So... I never actually got a straight answer about what caused the hot head. I can say that since I've been on the vaso-dilators I have not had hot head. Here are my thoughts, and because I am not trained in medicine take is with a grain of salt.... My hot head always seemed to be at it's worst in the summer and was joined by fatigue and muscle pain. I think the ice packs on my head and the air conditioning exasperated the problem and prevented me from getting out of the "flare up". I do believe that it is somehow connected to the vaso-constriction. Are you being treated for what is essentially Raynaud's?I hope this helps. If you have any other questions please feel free to contact me. I am feeling rushed so I need to close. I hope you feel better soon. I know this is not much help but I do know how nasty this symptom is. It is maddening and used to bring me to tears. All my best,joe

#6 jefa

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Posted 18 August 2009 - 04:30 AM

Hello, Theresa,

Welcome to the Forums. I am sorry you are having problems with your head getting hot. I have combined all of your posts into one thread including the one from your post on an older thread posted by jaateach on the same subject, since he has answered your question with more recent information on this thread.

Jaateach's old thread on Hot Head.

I am not a doctor but this is an unusual symptom for which we won't be able to help you much with. Do you have a diagnosis of scleroderma? I would advise that you follow up with your doctors sharing joe's experience with them for reference.


Warm wishes,
Jefa

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#7 Jeannie McClelland

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Posted 18 August 2009 - 04:32 AM

Hi Theresa,

Welcome to the Forum!

I can't offer any insight into the 'hot head' - mine was definitely menopause related. I hope you get some relief soon, it doesn't sound pleasant at all.
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#8 mollie

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Posted 18 August 2009 - 10:04 PM

Hi Theresa...I have the very same symptoms that you described and having menopause symptoms as well, what you describe as "hot head" for me is really very different. My symptoms also seem to be worse in the Summer as well and can happen anytime throughout the day (I really don't have it at night). Part of my neck seems to be involved as well and a patch on my left side also flushes pretty bad (that side also has a different color to it when I'm not having a hot head episode and appeared a few years ago). This is a very uncomfortable symptom and I can totally relate...I'm so sorry that you are dealing with this. -Mollie

#9 Theresa

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Posted 24 August 2009 - 06:03 PM

Thank you for replying to my problem. What is SSc? I forgot to mention that I do not sweat when I feel hot. Wierd uh? I go back to the doctors wednesday I will let you know what they say. You said your tb is reactive? can they help you a second time? I hope so because you sound like a very kind person and deserve to have a happy life.

#10 Theresa

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Posted 24 August 2009 - 06:14 PM

thanks jeannie

#11 Theresa

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Posted 24 August 2009 - 06:26 PM

Hey Joe its Theresa again. I also forgot to mention that my symptoms are constent, were yours?

#12 Theresa

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Posted 24 August 2009 - 09:37 PM

Thank you

#13 Amanda Thorpe

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Posted 25 August 2009 - 06:29 AM

Hello Theresa

SSc is an abbreviation for scleroderma systemic sclerosis.

Take care.
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