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#1 eah


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Posted 23 August 2009 - 04:11 PM

Has anyone tried Imuran for sclero? I have sine scleroderma with sicca symptoms and nerve damage. I tried methotrexate and IVIG and no improvement.


#2 janey


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Posted 23 August 2009 - 05:39 PM


I tried Imuran for about 3 weeks and didn't like the side effects; however, I remember reading others that had no problem with it at all. I'm sure you'll hear from some of them. In the meantime, we do have a small information section on Imuran that you might check out.

I hope it works for you.

Big Hugs,
Janey Willis
ISN Support Specialist
(Retired) ISN Assistant Webmaster
(Retired) ISN News Director
(Retired) ISN Technical Writer for Training Manuals
International Scleroderma Network (ISN)

#3 Cheryle


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Posted 26 August 2009 - 07:30 AM

I've been on Imuran since Feb 2007, my dose was slowly increased to 200mg. No side effects, I tolorate it well, but it has not done anything for me. I have tried several times to lower my Prednisone and it has not worked, so I am ready to try something else....

#4 Deb1million


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Posted 27 August 2009 - 12:10 PM

hi eah
I was on Imuran for over three years, originally for Lupus and autoimmune hepatitis, then when I was diagnosed with diffuse sclero as well, I stayed on it for a while longer before my specialist also put me onto Plaquenil. Then the Imuran was gradually changed over to Cellcept 6 months ago. I also had bad neuropathy which has improved a bit, but not gone completely.
I did not experience any bad side effects with Imuran or the other meds.
good luck with you decision