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Biomarker for Diffuse Scleroderma skin has been discovered!


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Chronic Obstructive Pulmonary Disease (COPD)


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#1 Snowbird

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Posted 31 August 2009 - 10:25 AM

Hi All

A question to throw out there. Does anyone know if Scleroderma can actually cause COPD? In my queries...it looks like smoking is the leading cause although some type A marker of some sort lacking in the genes can apparently cause it too?

Thanks!
Sending good wishes your way!

#2 janey

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Posted 03 September 2009 - 05:16 AM

Snowbird,
I found pretty much the same thing as you. According to the Mayo Clinic, the cause of COPD are various types of smoke and pollutants. It also states that GERD can aggravate if not cause it, so I guess in an indirect way, scleroderma patients with GERD can develop COPD. Normally, the lung condition caused by scleroderma is pulmonary fibrosis which is a scarring of the lungs, and is the consequence of untreated pulmonary inflammation (alveolitis). It is often also referred to as interstitial lung disease. (ISN pulmonary fibrosis).

According to NHLBI, in COPD, less air flows in and out of the airways because of one or more of the following:

* The airways and air sacs lose their elastic quality.
* The walls between many of the air sacs are destroyed.
* The walls of the airways become thick and inflamed (swollen).
* The airways make more mucus than usual, which tends to clog the airways.


Due to personal lung problems, I have found out recently that aspirating (which can occur with GERD) can cause the latter of these (mucus clogging airway).

Hope this helped to answer your question.

Big Hugs,
Janey Willis
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International Scleroderma Network (ISN)

#3 scampie5

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Posted 03 September 2009 - 08:03 AM

Hi Snowbird my scleroderma specalist told me that mine is hardening of the lungs due to sclero derma Lyn n

#4 Snowbird

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Posted 05 September 2009 - 02:12 PM

Thank you both!

Lyndylou....is your doctor still calling your condition COPD though...or is it pulmonary fibrosis? Sounds like they may be different...but what do I know? :unsure:
Sending good wishes your way!

#5 janey

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Posted 06 September 2009 - 09:50 AM

Snowbird,
I just got the summary of my high resolution CT on Friday. Here's some terms that were used: ground-glass appearance, honeycomb appearance, bronchiectasis is present, intralobular septal thickening, and then a large hiatal hernia. My last CT two years ago showed a small hiatal hernia. UGH! Anyway, in the conclusions the only findings are the prominent hiatal hernia and "findings compatible with interstitial fibrosis. I see my pulmonologist in a couple of weeks so hopefully she will explain all this in more layman's terms. I'll also ask her if scleroderma can cause COPD. She'd probably know since she does and has treated many scleroderma patients. I too would like to know if anyone has had their doctor call their lung problems COPD. Interstitial fibrosis and COPD sounds different to me in exactly how they damage the lungs. But then what do I know? :huh:

Big Hugs,
Janey Willis
ISN Support Specialist
(Retired) ISN Assistant Webmaster
(Retired) ISN News Director
(Retired) ISN Technical Writer for Training Manuals
International Scleroderma Network (ISN)

#6 Snowbird

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Posted 07 September 2009 - 01:43 AM

Hi Janey

Thank you...that would be interesting to hear your doctor's reply. I'm thinking it's different too? I'm sorry to hear that your hernia has grown UGH is right! :(
Sending good wishes your way!

#7 scampie5

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Posted 07 September 2009 - 08:32 AM

Hi yes he calls it opd that is what he writes on my blood test when I need them so not quite chronic even thou it feels like it to me my lungs are 50% damaged and he told me it was from hardening of the lungs due to scleroderma , maybe different specialists see it different my mum had copd but she had emphysema and they call it copd my sister has it as well Lynn

#8 Snowbird

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Posted 08 September 2009 - 01:09 PM

Thanks Lynn....that's interesting too....
Sending good wishes your way!