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Disappointing Visit With The Ent Doctor


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#1 kiwimum03

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Posted 26 January 2007 - 07:47 PM

I finally saw the Ear, Nose Throat doctor on Thursday, after 5 months of waiting.
I sat in the waiting room for 30mins, and finally when he called me in, I was only in his office for 5 mintues!!!! Geeez, and 5 month wait for 5 mintues of his time.

I was going to see him for the Tinnitus that I have been having non-stop for the last 8 months, and its getting louder and I am having more headaches and dizzy spells.

I hadn't even sat down and the first thing he said to me was that he didn't have much luck with helping Tinnitus patients and probably wouldn't be able to help me!
He looked in my ears, took out a bit of wax and told me there was nothing wrong with my ears, and there was something else in my head causing it and he couldn't help me.

He gave me a leaflet of a Tinnitus specialist (who is an audiologist just like him) and said to give that clinic a call and they may be able to help me.

I wish he had just posted me that leaflet to me 5 months ago. Now I have a 3 month wait again to get another appointment.

On the bright side the specialist at the Tinnitus clinic is mean't to be the best in the country and he will spend an hour and a half with me, doing all kinds of tests and trying to find out WHY I have Tinnitus.......which I guess was was under the assumption that was what the first guy was supposed to do. But since the ENT guy is most just ears (and mine look fine so that is good) I guess he couldn't really help me in the end.

So I am disappointed that I have to put up with this for another 3 months, my headaches are bad and the dizzy spells increasing, but since I have had the dizzy spells for 15years and they haven't proved fatal yet, then another 3 months won't hurt.
I wonder if I should be seeing a Neurologist too?

hugs,
Irene

#2 Guest_Sherrill_*

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Posted 26 January 2007 - 08:12 PM

Hi Irene,

I've been wondering how you were getting on! I'm sorry to hear you didn't have any luck with the ENT doctor. I must say your symptoms do sound very like mine which is/was Meniere's. But I'd definitely go to see the tinnitus specialist. He sounds much more hopeful. Is he through the NHS, or private?

Actually when my Meniere's started I didn't have any luck with the first ENT doctor I saw either. But then I was recommended to another one who really sorted me out as well as he could.

How are all your other symptoms/problems? Have you spoken with the rheumatologist again yet?

Warm hugs,

#3 Heidi

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Posted 26 January 2007 - 08:12 PM

Hi Irene,

I am so sorry you had such a frustrating visit with the ENT. It is surprising that he didn't refer you to the specialist right off the bat instead of agreeing to see you! I don't know if you have read up on Meneire's Disease, but the tinnitus and dizzy spells may be due to that (I have been diagnosed with Atypical Meniere's....I get the tinnitus and vertigo as well.....only when it happens to me, it lasts for days on end rather then hours).

I certainly hope you can get to the bottom of it and get some relief. I am just sorry you have to wait so long for to see the specialst.

Warm wishes,
Heidi

#4 kiwimum03

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Posted 26 January 2007 - 09:34 PM

Hi Sherrill and Heidi!

Sherrill I went through the hospital system, which explains my long wait to see him.
I definately hope that the Tinnitus specialist can help me, I just wish they had refered me sooner, I wasn't aware there was someone who specialised just in Tinnitus, I just thought it was the ENT doctors job to sort it out.

Heidi, I have read up a bit about Meniere's, and it sounds like the dizzy spells cause loss of balance which doesn't happen to me.
For me, I feel like I have a violent shaking behind my eyes which lasts for 5-20 secs and then I feel sick after, but I don't lose my balance at all, but I did just read up on "Atypical Meniere's" and I guess I could fit into that.

I certainly would love to know the cause of my tinnitus, I guess my main worry is that it is a brain tumor or something really nasty, as both my aunt and grandmother dropped dead of a brain aneurysm at the ages of 36 and 64, so that really freaks me out.
But I do worry too much about everything, and they do say worry makes tinnitus worse, so I am out of luck..haha!!!

Thanks so much for your replies,

Hugs,
Irene

#5 Sweet

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Posted 27 January 2007 - 08:00 AM

Oh Irene, how terribly frustrating! I'm a bit too out-spoken, so I think I would have said something. Sounds like in the end you will get the appt you need however.

Hang in there girlie!
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#6 Guest_Sherrill_*

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Posted 27 January 2007 - 06:14 PM

Hi Irene, and also Heidi,

I have found some more links to webpages about Meniere's. They are now on the main website under Autoimmune Ear Disease

Here are two of them:
Ménière's Disease. Ménière's disease is an abnormality of the inner ear causing a host of symptoms, including vertigo or severe dizziness, tinnitus or a roaring sound in the ears, fluctuating hearing loss, and the sensation of pressure or pain in the affected ear. The disorder usually affects only one ear and is a common cause of hearing loss. National Institute on Deafness and Other Communication Disorders (NIDCD).

Symptoms and Incidence of Ménière's disease. Ménière's disease is usually characterized by 4 symptoms. 1) Periodic episodes of rotatory vertigo or dizziness. 2) Fluctuating, progressive, low-frequency hearing loss 3) Tinnitus 4) A sensation of "fullness" or pressure in the ear. Washington University School of Medicine.

The first one also says:
To test the vestibular or balance system, physicians irrigate the ears with warm and cool water or air. This procedure, known as caloric testing, results in nystagmus, rapid eye movements that can help a physician analyze a balance disorder. Since tumor growth can produce symptoms similar to Ménière's disease, an MRI is a useful test to determine whether a tumor is causing the patient's vertigo and hearing loss.

I had this testing done, and although MRI's were not available when I was tested, (over 30 years ago now), I did have a head X-ray to rule out any tumors. They said it would be a tumor on the hearing nerve if there was one. There wasn't!

The second link also has some patients' stories which are interesting.

Reading it all over I was quite a text book case when I first had it, though the doctors were suspicious because they thought I was too young to have Meniere's! (22!)

Warm hugs,

#7 Heidi

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Posted 28 January 2007 - 04:31 AM

Hi Sherrill,

Thanks for that inforumation...that was great! And, it does fit me to a T as well. The ENT I went to had me do an MRI right away to rule out a tumor but nothing was found. Luckily, I haven't had an episode in quite some time now.....

Thanks again!
Heidi

#8 kiwimum03

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Posted 28 January 2007 - 11:34 AM

Thanks for the links Sherrill!!!!

I really would like to have an MRI done, just to rule out anything nasty, and I hope the doctor at the Tinnitus clinic will refer me, as my own general practitioner doesn't think it is necessary, but I am going to see her tomorrow to see if she will refer me to the Neurologist at the hospital.

thanks again!!
Hugs
Irene