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CREST Syndrome, can't absorb magnesium?


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#1 Paula B

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Posted 04 September 2009 - 01:54 PM

Hi again everyone
I am having trouble with my magnesium. I already did a post but it got erased so I am doing another. Susie let me know that it was gone Thank you VERRRRY much. I was diagonsed with CREST about 30 years ago and I now have all parts of the disease--C<R<E<S>T. I've have alot of different problems but right now I can't seem to absorb magnesium. The doctors are pretty sure it's got to be connected with the CREST but don't have a clue why. The kidney doctor has ruled out my kidneys as being the problem. My stomach and lower GI are giving me problems of cramping.. srarted about 2 years ago and is now getting worse. Think it is all combined. I was woundering if anyone else has had problems like mine and if so, what did you do?? Again, thank you all!!!

Paula B

#2 Lillskuzi

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Posted 05 September 2009 - 03:58 AM

Hi Paula

Thanks for reposting! I don't have problems with my magnesium levels, but I know someone who does, so I have let her know your post is back up so she can have a look. It sounds like a pretty rare problem.

Warm regards
Susie

#3 janey

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Posted 06 September 2009 - 09:58 AM

Paula,
I can't speak personally about a low level of magnesium, but I found a couple of good links that might help with your question about "What to do".

Magnesium in diet: MedlinePlus

Magnesium: National Institute of Health, Office of Dietary Supplements

I hope you find something to help you. I'm a believer in trying to get what you can through your diet, but if malabsorption is the problem, then that might be hard. Please work closely with your doctor on this.

Big Hugs,
Janey Willis
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#4 LouiseJane1

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Posted 07 September 2009 - 02:48 AM

Hi Paula,
I also have CREST and have been told my magnesium is low - it was .28 at one stage! Am taking 700mg per day of supplements, and also eating a rich magnesium diet with lots of sea vegetables such as kelp. Am bathing in Epsom Salts -which is magnesium too but still having a problem with it - how strange.

Louise

#5 Amanda Thorpe

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Posted 07 September 2009 - 09:08 AM

Hello Louise

Welcome to the forum! It's great that with your first post you have been able to share your own experience with a view to helping someone else with scleroderma!

Now I have to ask...bathing in Epsom Salts...nice or not nice?

Take care and keep posting.
Amanda Thorpe
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#6 Amanda Thorpe

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Posted 07 September 2009 - 09:13 AM

Hello Paula

I don't have any experience of low magnesium but do hope that the posts so far help. Do let us know how you get on with this issue.

Keep posting and take care.
Amanda Thorpe
ISN Sclero Forums Senior Support Specialist
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