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Systemic Sclerosis & Graves Disease

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#1 Honey


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Posted 10 September 2009 - 08:10 AM


I was diagnosed with systemic sclerosis in January 09, and have been on methotrexate since February. I was taking prednisone for 5 months, but my new rheumatologist weaned me off of it. I am severely deficient in Vitamin D, and now taking 50,000 iu weekly. In August, I was diagnosed with Graves Disease, and am taking methimazole. I thought my 20 pound weight loss and 30 bpm increase in heart rate was due to the scleroderma, but more than likely due to Graves Disease. I find it disturbing that my cardiologist did not recommend the TSH test. I am also taking propranolol prescribed by my endocrinologist for my rapid heart rate. I am due for blood work in 3 weeks to see the progress of the meds.

My feet are severly scarred from the sclero, as well as my lower legs, including my knees, making it very painful to walk and stand. I have just received approval for social security disability, for which I am extremely grateful. I have posted a few comments to these forums, more when I was first diagnosed, and have found them to be very comforting.

Kindest regards,

#2 janey


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Posted 10 September 2009 - 08:21 AM

Thanks for updating us on your diagnosis. I'm sorry that you have had to add another disease to your repertoire, but at least now you know what might be the cause of your non-scleroderma like symptoms. I just checked out the ISN page on Graves' Disease and in the link to the Mayo Clinic on the symptoms of Graves', weight loss and rapid heart rate are listed.

You mentioned that you were surprised that your cardiologist didn't catch it. Well, from recent experiences with one of my "specialists", I'm not surprised. I guess that's why there are so many specialists. I just wish they would talk to each other once in a while and identify the overlaps in symptoms so we could all be diagnosed more efficiently and effectively. Well at least you got an answer. I'm sorry it was after such a weight loss. Of course in my case, a 20 pound weight loss would be welcomed! :)

Big Hugs to you Darlin',
Janey Willis
ISN Support Specialist
(Retired) ISN Assistant Webmaster
(Retired) ISN News Director
(Retired) ISN Technical Writer for Training Manuals
International Scleroderma Network (ISN)

#3 enjoytheride


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Posted 11 September 2009 - 04:51 AM

Hello- I found that vitamin D helped with a number of odd symptoms I was having, mostly fatigue and cold but other weird things too, things that I had for so long that I was surprised when they disappeared. I hope the vitamin D helps you too. It has been a year since I started the supplements of vitamin D- things are still improving slowly.
I think that the vitamin D lack causes so many other systems (the parathyroid for one) in the body to go off that it simply takes awhile for them to get "back on line."