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Am I the only one with unbearable back pain?

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#1 WestCoast1


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Posted 10 September 2009 - 05:04 PM

Hi Fam~

This really isn't a serious complaint, considering everything else that could go wrong, BUT I am so sick and tired of the nagging pain in my back. I am pretty sure that a huge population in general has back pain, but how is it different in Sclero patients? For instance, mine hurts to touch all the way from the middle back to the lowest part of my back. Not only does it hurt to touch or push on, it hurts while sitting, standing and walking.

I had an MRI of the spine years ago and it was as clean as a whistle. This feels more like all the muscle surounding that entire area.

My doctors are always poking around my back to see how sensitive it is, (as I scream), and they have no answers for me. Am I the only one? Does anyone with scleroderma relate? I also wonder if it could be an overlap of other autoimmune dissorders...but again, not sure.

What do you all think?


#2 enjoytheride


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Posted 10 September 2009 - 08:20 PM

I have very little experience but can tell you I had very severe back pain, which was not normal for me, and it was resolved when my doctor gave me large doses of vitamin D. Just a thought as vitamin D is a cheap fix if it is that.
Whatever it is, I hope you find a solution soon.

#3 debz


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Posted 11 September 2009 - 01:39 AM

Hello everyone,

I have had bad back pain (feels like coccyx lower back pain) for the last six months. I have had mri, xrays etc all say nothing untoward.....gee tell my back that!! I have a lot of pain that I have now started on laser acupuncture, which hopefully, will help. The doctor said it could take 10 -12 sessions, before I notice a difference. I am willing to go with the flow, nothing else seems to be helping and as I can't take anti inflammatories, due to stomach issues, there really isn't a lot of options. My rheumatologist said maybe stronger analgesics, but I am going down the acupuncture route to see how it all goes and will cross other bridges as they arise!! Good luck to you all! I don't know if back pain is scleroderma or not, it is new to me and I haven't been diagnosed officially with scleroderma. It is miserable having continuous pain and no evidence of anything that could be causing it....I sympathise! Take care everyone!

Hugs Debz

#4 Sherion


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Posted 11 September 2009 - 01:40 PM

I also suffer from severe back pain. I do have degenerative disc disease in my lower back but my pain is all over. My rheumatologist and my general practitioner both say that the other pain is from fibromylgia. My back is so tender to the touch that I just about scream when anyone touches me. The pain is miserable and I feel so sorry for you all that have this.


#5 WestCoast1


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Posted 11 September 2009 - 05:03 PM

Thank you for your replies. While I am not happy to hear that others suffer this awful pain, I no longer feel like I am the onoly one. I looked at a map of the body and pinpointed the muscles that are so tender and for me they are the iliac crest and the sacroiliac joint. I still wonder if it is related sclero condsidering that it involves the connective tissues.

I wonder if there is a treatment for this type of pain?



#6 Sweet


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Posted 11 September 2009 - 05:20 PM

Hey WestCoast (Erin is that you?)


It's my number one complaint. However my rheumatologist ASSURES me it has nothing to do with my scleroderma. I've had X-rays, CT's, you name it, which a few months ago showed severe degenerative disk disease with some bone compression and nerve impingement and calcified growths off to one side. I've done chiropractic treatments with some help, but now I feel it's made things worse (progressing the DDD at a faster pace), massage, (that helps) Acupuncture has helped off and on, but the one thing that has really helped is physical therapy. I went twice a week for about 6 weeks and FINALLY someone took the time, to teach me how to strengthen my muscles and have some control over my back. He gave me exercises that I do daily. I still have pain, but it's not as bad, and once in a blue moon I actually don't have any pain.

I would talk with your doctors about starting P.T.

I'm really sorry you have to deal with this.
Warm and gentle hugs,

ISN Support Specialist
International Scleroderma Network (ISN)