Jump to content


Congrats to Margaret, Platinum Member with 1,000 posts and 10 Years of Forums Membership!


Photo

Does Eosinophillic fasciitis increase mortality?


  • Please log in to reply
1 reply to this topic

#1 Robm

Robm

    Newbie

  • Members
  • Pip
  • 3 posts

Posted 13 September 2009 - 11:21 PM

Has anyone had Eosinophilic Fasciitis (EF) for a long time or been made aware of any data or trials looking at long term mortality or increased co-morbid illnesses associated with its presence?

Any feedback is greatly appreciated!

Rob

#2 Shelley Ensz

Shelley Ensz

    Root Administrator

  • ISN Root Admin
  • PipPipPipPipPipPipPipPipPipPipPipPip
  • 3,276 posts
  • Location:Minnesota

Posted 13 September 2009 - 11:45 PM

We have a section on Eosinophillic Fasciitis on our main site, including a selection of patient stories.

One of the articles there points out that, "Eosinophilic fasciitis does not always have a good prognosis. Ventilatory restriction, perimyositis and poor treatment response are not infrequent in a series of patients attended in a general hospital."
Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.