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CHEST PAIN


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#1 kelowna52

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Posted 16 September 2009 - 03:23 AM

Good morning everyone, I have been having freqent pains in my chest area, left side and left arm. I have had pains in the chest area off and on since 2001. I seem to remember someone here stating that that goes along with this disease. I had a EKG and chest xray yesterday and that was okay. I was just wondering if anyone here has this problem.

Jackie

#2 ozzy69

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Posted 16 September 2009 - 09:21 AM

Hi Jackie,

I have had chest pain for the last couple years. All my test come out fine, so I am still trying to figure out what causes it. I do think sometimes I have Esophagus spasms at times and that causes the pain.
I hope this helps!
Hugs,
Nina

#3 Shelley Ensz

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Posted 16 September 2009 - 09:42 AM

Hi Jackie,

Although we tend to think of chest pain as only related to heart attacks, there are actually many other causes, and most of them are actually non-cardiac in nature.

See Causes of Chest Pain by Mayo Clinic. These things include heartburn, panic attacks, pleurisy, costochondritis, blood clot in the lung, fibromyalgia, pinched nerves, swallowing disorders, shingles, gallbladder or pancreas problems, and (rarely) cancer.

Now if that list isn't long enough to give you either a heart attack or a panic attack, I don't know what is. When scleroderma is involved, you'd particularly want to rule out issues like heartburn, esophageal spasms, pleurisy, costochondritis, and fibromyalgia all of which would probably be more likely than in the average (healthy) person.
Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#4 kelowna52

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Posted 16 September 2009 - 11:18 AM

Thank you so much Shelley and Nina for your replies. I didn't think it was reflux because I do experiance that often. This seemed differant from that. Maybe it was just spasms, who knows I will wait and see if anything shows up in the blood work. Thanks again.

Jackie

#5 Shelley Ensz

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Posted 16 September 2009 - 02:01 PM

Hi Jackie,

I can tell you from first hand experience that there is such a thing as heartburn and then there is heartBURN; and esophageal spams and esophageal oh-my-goodness-they-might-kill-me SPASMS. But of course, when there is any severe chest pain you can't sit around and try to figure it out yourself; the doctors and hospitals need to rule out the heart issues and hopefully figure out the real issues (sometimes, later on or after another episode that provides more clues.)

I can also tell you a children-do-not-try-this-trick-at-home story. My husband told me he had some chest pain and was pointing right to the center of his chest (not the left) which is exactly where I've had costochondritis in the past. He had already had a Nissen fundoplication surgery which was entirely successful, so I knew it wasn't heartburn.

So, having my Degree in Internet Medicine With Internet Telepathy (also known as DIMWIT), I told him he probably had costochondritis and to go to the E.R. to have it checked out, as it was the weekend. I swear, there was absolutely nothing that seemed important or urgent to me, with my DIMWIT degree and all.

So he drove -- our only car -- to the hospital.

Well, they kept him for 12 hours ruling out a heart attack, etc. and they called several times to let me know that nobody should EVER drive themselves to the hospital with ANY type of chest pain. They eventually decided it wasn't any sort of heart problem; that he had -- are you ready for this? -- costochondritis.

As of course any DIMWIT could have told them. But the moral of the story is, never mess around with chest pain no matter what. You never know when it could be serious or fatal and millions and millions of people have chest pain "false alarms" that are due to things other than heart attacks.

And never ever listen to a DIMWIT like me if they suggest you drive yourself to the hospital with chest pain.
Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#6 Sweet

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Posted 16 September 2009 - 03:46 PM

Hey Jackie,

It's really good to hear from you. Sorry you are having chest pain. I do have this quite often actually. I've had all kinds of cardiac testing and it isn't cardiac related. For me it's muscle spasms. If I keep up with my stretching I do much better. It also could be that your back is out. I hope you can work through it. Again, good to hear from you.
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#7 Morgan

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Posted 16 September 2009 - 08:07 PM

I have had this type of chest pain on and off for the past year and a half. I have only gotten my diagnosis here about two months ago. We are just putting the pieces together of thing that have been going on for what seems like many years. I too have been worked up for everything cardiac, esophageal spasms, and pleurisy. Good luck to you I have resorted to the fact that we cannot find anything major wrong and I am going to get these pains every now and again.

#8 Margaret

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Posted 17 September 2009 - 12:44 AM

Hi Shelley ,

Just getting around to reading this one. Thanks for the laughs this morning!!!

Jackie, Gareth use to have horrible esophageal spasms when first diagnosed. They gave him nitro tabs to take when they were really bad and they worked well for him. Perhaps you could ask your doctor for some and see if they work.

Take care, Everyone.
Margaret

#9 debonair susie

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Posted 17 September 2009 - 04:56 PM

This really IS a tough call to make, especially when one is experiencing such pain.

I, for another, had this very same experience. I am NOT an alarmist, yet it got to the point when I could not breathe, which caused my husband...and my DOG, to go into immediate "afraid mode".
When the EMTs arrived, I told them I could not breathe. In extreme pain, my blood pressure was quite high. I told them it was much more painful than past esophageal spasms I had had, which caught their attention. An EKG showed normal and once the ER dr learned I had taken a blood pressure medication, he seemed relieved and ordered a special "cocktail", which I drank and brought relief within 15 minutes.

There is a history of heart problems, on both sides of my family... My father and my maternal grandmother.
If I were to have another expereince such as the one I described, I would likely do as I did, besides the fact that the pain...on a scale of 1-10...was an 11.
Special Hugs,

Susie Kraft
ISN Support Specialist
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International Scleroderma Network (ISN)

#10 kelowna52

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Posted 18 September 2009 - 11:26 AM

Good afternoon to everyone. The chest pains are gone and all of the tests came back normal. As usual I'm confused, I guess eventually they will figure out what is going on with me. I see my Eye doctor on Monday, another field test, I failed the last one. I don't know what I will do if they won't refill my Plaquenil. Have a nice afternoon and take care.

Jackie

#11 Jeannie McClelland

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Posted 18 September 2009 - 11:34 AM

Hi Jackie,

I'll keep my fingers crossed that you pass the vision test and can keep the Plaquenil. I'm going through the same thing myself and would really hate to give up the Plaquenil~

Warm hugs,
Jeannie McClelland
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#12 Kamlesh

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Posted 18 September 2009 - 11:56 AM

I had Esophageal spasm couple of years ago and had to stay in hospital for awhile.

Nothing was wrong with my heart, but I now I carry Hyoscyamine tablets. I need to dissolve it in my mouth as when you have spasm you may not be able to swallow anything.
Kind regards,

Kamlesh


#13 smac0719

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Posted 20 September 2009 - 12:08 PM

This is an interesting topic as I was hospitalized this June due to chest pain, which scared everyone, but me because it was more left-sided. I really thought it was due to my gastric issues (severe reflux), but I agreed to go to the ER when none of my gastric meds provided any relief. They kept giving me nitro tabs and put the creme form on my leg, but all it did was drop my blood pressure extremely low. One doctor did mention he thought it was costochondritis, but no one confirmed that and I left not knowing what was going on and still in pain. It eventually went away on it's own after about a week and a half. I have been hospitalized for chest pain 4 times since 2004 and have had every test. At least I know my heart is in good shape, but those pains sure are scary!
I may have Scleroderma, but Scleroderma doesn't have me!

#14 Patty LaFave

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Posted 21 September 2009 - 10:36 AM

Hi Jackie,
Sorry to hear of your chest pain. I know the not knowing why can be scary and frustrating.

I have in various different times in the past have had very bad chest pains, which was unrelated to any heart related problems.
a couple of the episodes of chest pain I have had was found to be related to yeast infections in my throat. After being treated with Diflucan for a few days that resolved that pain. At about the time of one of the episodes with the yeast in my throat I was also found to have 2 ulcers in my throat.
Another few of the times I had chest pain, in which I would get this horrible drop you to your knees sudden pain across my chest where I felt like someone had a vice grip they were squeezing in my chest, the pain would come suddenly out of no where and last anywhere from like 1 -5 minutes. it would be so painful I would break out in a sweat,then I'd have this residual ache below & across the breast area. It would occur and then may occur again in the same day or not again for few days. Then my Dr. would order bloodwork & it was found that my liver enzymes were elevated, so the Dr. then did 1rst an MRI, and found that my bile duct was dilating. and because of that result my GI Dr. then did a test called an ERCP( they place a scope down throat into bile duct) and observed the dilating , so they ended up placing stints in bile duct for about 6 months then would remove them. This kind of chest pain occured on/ off for about 21/2 years & 2x I had to have the stints. This started to occur shortly after I had my gallbladder removed & I was told I was still producing gall-like stones even though I no longer had a gallbladder & they were trying to push thru the bile duct, causing it to dilate.
The 3rd type of chest pain I have had occured 3 different x over 3 years., it was usually either left or right side of breast area and was felt in the front of my chest & in my back at same level, even extremely painful just to take a tiny breath. Two of the times I was hospitalized after going to the ER, and there they did a CT scan and realized I had aspiration pneumonia. This usually occured about 2 -3 weeks after an episode where I wake up out of a sound sleep choking on reflux that I appearantly aspirate into my lung. Patty