Posted 27 September 2009 - 01:45 PM
I have Crest, and among many related medical problems, I have very slow motilty. The foods I eat today will take days to make it through the entire GI tract.
An example of how slow my motilty is for any of you have had a colonscopy, you would know what the normal bowel prep is. It usually starts 24hrs. before test, so youll be cleaned out in time for test next day. Well with as slow as I move anything, I have to start my prep 3 days prior to test, cause with the prep I don't even start to go to the bathroom for 24 hrs after starting prep.
Well with that, what I'm trying to get at is im normally constipated, not where the stool is just stuck in the end of bowel, where you could do an enema and clear it, my constipation is up higher,the problem being getting the stool into rectum area.
Nomally it doesn't seem to bother me, but a few times ayear, it gets way backed up, to where I get bad cramps. Even then I can usually take a scoop of a powdered laxative once a day for a few days & I'll get back on routine.
Well, over this past week I've been experiencing this bad high up constipation, so 4 days ago at bedtime I took 2 suppositories, cause I was out of the other stuff. Well 24 hrs. went by & no results, so this night 3 days ago I tried 3 suppositories, and again 24 hrs. later, & no results. so by now I have bought some more fiber laxative, and being that I'm into about 10 days with no bowel movement I took a double scoop of the powdered stuff and 24 hrs. later still no results.
Now were at this past Friday and I took another double scoop of laxative and again by yesterday no results. By now my usually flat stomach is looking like im 3 months pregnant & is hard as a rock, plus I'm getting on/off very uncomfortable cramps, but by last night these cramps were becoming continuous, so I got a enema, and by 1a, not being able to stand the cramping anymore I did the enema. I did get small results, enough so that the cramps lessened, until today, now the cramps are back, ive taken another double dose of laxative, but besides all this I'm at wits end what to do to get this stool to move down.
I know the powdered stuff usually takes a couple days to work but with the double doses I've taken I would have thought if anything I would have diarrhea by now. I'm almost to the point of going to the ER, the abdominal pain is so uncomfortable but I dont want the Er DR.s to laugh about someone coming in with constipation.
Have any of you all experienced anything like this or have any sugeestions, I ll be waiting to hear from you all. I will deffinetely go to my primary or GI Dr. tommorow if no results or relief of this pain by tommorow.
Posted 27 September 2009 - 03:02 PM
This sounds pretty serious to me. I have a motility problem but not this bad. With me, it's more that I don't have the muscles to move stuff through but it still sort of slides down slowly. But I would really encourage you to get to the doctor a.s.a.p. Have you had any motility studies done? If not, your doctor needs to get you there. I hope that someone else has some more to add to this. I really think it's a serious matter. Keep us posted - Lisa
Posted 27 September 2009 - 11:15 PM
My issues with my bowels is leakage & urgency, I have sacral nerve damage & the inner sphinctre muscle is also damaged, the specialists think that some of my problems are caused by the SSc. I'm about to have a permanent Sacral nerve stimulation fitted next Monday. Interestingly on the information they've given me it also says that it can help with constipation as well.
Take care & let us know how you get on.
Posted 28 September 2009 - 11:38 AM
I too have CREST and I have had similar problems. I was supposed to have a colonoscopy three years ago and I did all of the prep, throwing up after half due to gag reflux. By noon the next day I still hadn't had a bm. I called in and they scheduled me for the next afternoon and gave me more stuff, but I still wasn't completely cleaned out. GI doctor said it was probably the best I would ever do. Lately, I've stopped using anything and I am going ( not every day), but the stools are very small and hard and I bleed a lot with my bowel movements because I strain so much and the stools are so hard. I take two stool softeners daily.
I don't want to go to my GI doctor because he says there is nothing else he can do. I think it would be great if you got in to see your doctor. My problems have been bad, but not that bad. Let us know how it goes. I am so sorry that you are suffering so much.
Posted 28 September 2009 - 01:10 PM
ISN Support Specialist
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International Scleroderma Network (ISN)
Posted 28 September 2009 - 01:34 PM
I am so sorry that you are having so much trouble. I too suffer from constipation (along with cramping and pain), but not to the extent you are experiencing. I hope you have gotten in to see someone, anyone as your problem seems to need immediate care.
Posted 29 September 2009 - 01:01 PM
The constipation is high up causing blockage in the upper intestines. They have been treating it with every 2 hr. soap suds enemas, mag citrate ,and gave me an injection that I dont remeber the name of but its suppose to reverse the process that pain medications cause to bowel at least temporarily.
The worst part is that the ER gave me some IV pain meds that reduced the awful pain I was having but my primary Dr. would not give me any further pain meds other than my usual that are not working on the agonizing cramps till we get the bowel functioning again.
Well the good news is the bowels are beginning to move, so cramping has become more tolerable, and hopefully theyll be functioning well enough for me to go home tommorow or Thursday. I have taken the powdered laxative pretty regurally in the past, & will have to go back to using it on an ongoing basis, not just when I feel im getting constipated.
Nina, I know what you mean, I have had at least 3 colonoscopies in the past, and each 1, I have never been clean, due to the slow motilty. the normal bowel prep they order never even begins to work on me until greater than 24 hrs. after I begin it. But now I have a very good GI Dr. and last colonoscopy he started my bowel prep 3 days prior to colonoscopy, and that time I was sucessfully cleaned out. and results were normal colonoscopy other than the slow motility.
Thanks again for your input, you all are great. I will let you know when im discharged! Patty
Posted 29 September 2009 - 01:21 PM
One of the reasons I seem to stop the powdered or any other daily laxatives, is it alaways seems that my stools turn to dairrhea and I start to leak, so then I will try to slow it down & take the laxative every other day then it doesn't seem to work at all. But I often for no reason at all(ohter than maybe the backup of stool to get some leakage. At least 2 or more x a month it happens. I hate that, its so embarrasing. Patty
Posted 30 September 2009 - 04:02 PM
Not happy to hear you are IP in the hospital, but very glad to hear you have a diagnosis and are getting treatment. You are in my thoughts and I hope you are released soon.
Posted 30 September 2009 - 05:18 PM
I have the same problem but , thank goodness, not to that extent. If things stop moving, I start throwing up and that relieves the pain a good deal. Who would have thought that was a good thing but I can see from your situation it is.