Jump to content


Biomarker for Diffuse Scleroderma skin has been discovered!


Photo

Liver Pain


  • Please log in to reply
17 replies to this topic

#1 annkd

annkd

    Silver Member

  • Members
  • PipPipPipPip
  • 172 posts
  • Location:Sacramento, Ca.

Posted 29 January 2007 - 07:40 AM

I have been reading references to people experiencing "liver pain". Can someone explain to me what that feels like? many thanks! - Ann

#2 LisaBulman

LisaBulman

    Platinum Member

  • Members
  • PipPipPipPipPipPipPipPipPipPip
  • 1,135 posts
  • Location:Massachusetts

Posted 29 January 2007 - 09:55 AM

Hi ANn,
SOmetimes my liver feels like it just doesn't fit under my rib cage. It is like a swollen full feeling there. At other times it feels like I have a cramp under there. Other people mey have a different kind of pain so maybe they will jump in.

Hugs,
Lisa
Lisa Bulman
(Retired) ISN/SCTC List Coordinator
(Retired) ISN Sclero Forums Assistant Manager
(Retired) ISN Assistant News Guide
(Retired) ISN Fundraiser
International Scleroderma Network (ISN)

#3 kiwimum03

kiwimum03

    Silver Member

  • Members
  • PipPipPipPip
  • 242 posts
  • Location:New Zealand

Posted 29 January 2007 - 11:24 AM

Hi Ann,

my liver pain isn't sharp. It is usually like a dull ache, and sometimes feels like I have a brick tucked under my right rib, like it is swollen or stuck.
I also occassionally get pain around my back too.

Hugs,
Irene

#4 debz

debz

    Senior Bronze Member

  • Members
  • PipPipPip
  • 38 posts

Posted 29 January 2007 - 04:34 PM

I also suffer from liver pain. It sometimes feels as though my liver will burst. I seem to always have a nagging pain over the area just under my ribs. I do have a fatty liver, no one knows why as I only have an occasional drink (socially...not much at all).

Deb

#5 kiwimum03

kiwimum03

    Silver Member

  • Members
  • PipPipPipPip
  • 242 posts
  • Location:New Zealand

Posted 29 January 2007 - 06:10 PM

Deb,

I also have a mildly fatty liver and I don't drink at all!!!
I was also told that it shouldn't really cause any pain, but mine does.

My father had NASH ~ non-alcoholic steatahepatitis (I don't know if I spelt that right), which lead to his fatal liver cirrohsis, and as I have read this starts off as a fatty liver as well, although my doctors don't seem too worried about me, even though my father died from it.

Hugs,
Irene

#6 debz

debz

    Senior Bronze Member

  • Members
  • PipPipPip
  • 38 posts

Posted 29 January 2007 - 10:56 PM

Hello Irene,
I know that when the woman was doing the ultrasound on my liver she was shocked. She did say she has only seen that kind of liver on someone who is an alcoholic. My specialist didn't seem worried at all about it! I am though! I am seeing an immunologist next week, so hopefully, he will start putting all the pieces together somehow (I am hoping! With fingers crossed) and help me with all the problems I am experiencing. I hope they can help you too, especially as your father had this liver problem! Sending lots of positive hugs your way!

Deb

#7 debz

debz

    Senior Bronze Member

  • Members
  • PipPipPip
  • 38 posts

Posted 29 January 2007 - 10:57 PM

I hope this is o.k.! I was born in NZ also. I lived in Christchurch until my husband and I moved to Australia 26 years ago!

Deb :blink:

#8 Sam

Sam

    Gold Member

  • Members
  • PipPipPipPipPipPip
  • 640 posts
  • Location:Delta, Ohio

Posted 30 January 2007 - 10:41 AM

I was wondering why you had asked this question. Do you have a problem with liver pain. I have a pain on my left side rib area is that where you feel the pain at? I have had pain for three years and no one can tell me why. Sam
Sam

#9 Guest_Sherrill_*

Guest_Sherrill_*
  • Guests

Posted 30 January 2007 - 02:00 PM

Hi Sam,

The liver is on the right hand side, usually tucked up under the ribcage which protects it. Except for me..... they found my liver starts up under there but is very long and goes down most of my right hand side from my ribs! The doctor told me if I was in a motor accident it would be possible to badly damage it! :( About 5% of the population have livers like mine. :mellow:

Anyway, all that aside, if you have pain on your left hand side there are other organs there which may need some attention. Keep asking the doctor......!

Warm hugs,

#10 annkd

annkd

    Silver Member

  • Topic Starter
  • Members
  • PipPipPipPip
  • 172 posts
  • Location:Sacramento, Ca.

Posted 31 January 2007 - 09:50 AM

Hi Sam: The reason I asked the question was because I get this feeling under my rib cage and a full feeling even when I've not eaten. It's something I want to talk to my doctor about. I was under impression that all the blood work that is done, it would show up. I don't know. -Ann

#11 heddy

heddy

    Bronze Member

  • Members
  • PipPip
  • 16 posts
  • Location:Victoria Australia

Posted 02 February 2007 - 11:46 PM

Hello, it is interesting to see other people with organ pain. When I first saw my rheumatologist I told her I had pain in my left kidney. She very abrubtly said it musnt be kidney pain because organs dont cause feelings of pain.
Also, just responding to Sherrill, the liver is huge, the largest part of it sits on the right side of the body and tapers over to left. It nearly reaches right across.
Not that I have ever seen an open body, but my anatomy books say and show this.
Last week I had to take more analgesics than usual and I had heat and pain radiating out from my liver region. I also had this yucky taste in my mouth, like I had drank too much alcohol, but I dont drink.

Best wishes

#12 giorgigirl

giorgigirl

    Bronze Member

  • Members
  • PipPip
  • 16 posts

Posted 04 February 2007 - 07:42 AM

hi Anne,
I have had pain in my upper left side, and also, I find it hard to wear a bra as this causes pressure.
I have Primary Biliary Cirrhosis, along with the good old sclero, but I did meet someone with PBC and talked with her about the pain in the left side, and the issue about wearing a bra and she concluded that she experienced the same.
Its intensisty comes and gos but has always been more on the left than on the right.
My liver function tests are ok and I do not take any treatment as such specifically for the PBC but its monitored at the usual check ups, but I do believe that PBC and Scleroderma can go hand in hand so to speak.
I did have the camera down the throat, (cant remember the name of this procedure) and this also found H Pylori which I had treatment for, and I must admit, I have not had so much left sided pain since this, but it hasnt stopped altogether.
I think if you have M2antibodies then that more or less says you have PBC
Hope this may be of some help .
Regards

Giorgigirl

#13 annkd

annkd

    Silver Member

  • Topic Starter
  • Members
  • PipPipPipPip
  • 172 posts
  • Location:Sacramento, Ca.

Posted 05 February 2007 - 05:54 AM

Hi Giorgigirl - I guess you could say, that was a "light bulb moment". I can't wait for my next Dr. appointment. I have been telling my rheumatologist, my primary care physician, my nephrol., etc. that I can't wear a bra because of the pain and discomfort. The rheumatologist says it's from the fibro but I have been disagreeing with him for a year. I will resarch PBC and get as much knowledge on this subject before I go. Thank you so much for this information. It will be great to go into his office with another "possible" look at this problem.

#14 giorgigirl

giorgigirl

    Bronze Member

  • Members
  • PipPip
  • 16 posts

Posted 10 February 2007 - 01:47 AM

Hi Anne,

Glad you found the information useful and I just wanted to wish you good luck at your next appointment.

Sincere Regards

Giorgigirl

#15 tmgilbertpt

tmgilbertpt

    Bronze Member

  • Members
  • PipPip
  • 23 posts

Posted 11 February 2007 - 04:17 AM

Hello,

I had a liver biospy done this past Friday to see if I primary biliary cirrhois (PBC). It was done under conscious sedation and they stick a very long needle through the right side of your rib cage to snatch pieces of your liver. My GI doctor at the Mayo clinic says the biospy will confirm whether I have PBC or not as well as the stage of the disease.
All of my liver pain is felt on my right side of my ribcage. Liver pain can also radiate to the right shoulder area.
For those of you with the PBC, I am interested in hearing your thoughts about the disease and what you do to manage it/symptoms and all that good stuff. I also have systemic scleroderma and autoimmue hepatitis,
Thanks , Tammy

#16 giorgigirl

giorgigirl

    Bronze Member

  • Members
  • PipPip
  • 16 posts

Posted 12 February 2007 - 08:28 AM

Hi Tammy,
Sorry to hear that you had to have a biopsy. That is something that I have not had to experience at the moment as they think I only have mild PBC and have used the M2antibodies as confirmation of the desease and felt that a biopsy was instrusive and not needed in my case. They are just monitoring my liver function tests and presumably checking on Alk Phos for any indication of deterioration. I am in the Uk and perhaps they look at these things in a different way, I dont know.
Anyway, I know I am getting fed up with the pain on my right side and have an appointment coming up next month which I will push for something to be done.
I have also found belonging to a PBC support group here in the UK similar to this site helpful....perhaps if you havent done so, you could check them out.
I have also found that recently I have had an itch on the underside of my right breast, this comes and goes but I also think this is PBC related, and again will ask for this to be checked out. I do have multiple gall stones but they havent caused me enough bother for them to do anything either!!!.....perhaps if some of these doctors had to live with our symptoms on a day to day basis they would do more about these things.
I did find I had itchy skin for a number of months when I was first diagnosed but this has settled thank goodness as I know the itching can be a real problem for some people, I guess I have been lucky here.
I hope you get some more information from others on the board and like I said, check out support groups for PBC if not in your own country then check the ones out in the UK, I have found them so helpful, just like this one for my scleroderma

Sincere regards

Giorgigirl

#17 JG07

JG07

    Senior Bronze Member

  • Members
  • PipPipPip
  • 49 posts

Posted 13 February 2007 - 07:29 AM

I have a constant pain under my right rib cage - I have had it for years - they did a sono of my gallbladder several years ago and nothing - but now it is getting worse - I am sure it has to do withsclero - and I have prob had a liver problem all this time and it was missed just like everything else -

#18 giorgigirl

giorgigirl

    Bronze Member

  • Members
  • PipPip
  • 16 posts

Posted 13 February 2007 - 05:54 PM

oh dear, I keep getting my left and right side mixed up!!!!! the last post I sent should all read left side pain, and left side breast........doh sorry guys.....must be the tablets!!!

Giorgigirl