Jump to content

Do you want up to date information about Scleroderma? Check out our Medical pages at www.sclero.org for all your Scleroderma questions!


Just a Guidelines Reminder

  • Please log in to reply
2 replies to this topic

#1 Jeannie McClelland

Jeannie McClelland

    Senior Gold Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 1,706 posts
  • Location:in the Rocky Mountains of the USA

Posted 01 October 2009 - 04:12 AM


Just a reminder of a couple of our Guidelines:

Sales and Recruiting To minimize intrusive sales pitches, we only mention specific organizations, websites, products, brands or stores that are listed on our main www.sclero.org website. We use generic terms like "hand lotion" or "baby shampoo"or just bypass the topic altogether.

and this extract from:

Safety and Privacy Our forum messages can be read by everyone . . . . We avoid personal indications of taking pain medication or other addictive medications so that we are not victimized by drug dealers or abusers.

Our Forum Guidelines require that we not mention any narcotic pain relievers. The purpose of the guideline is to avoid mention of drugs that are sought by drug addicts, and pain medication (as well as narcotic-like substances, e.g., pain medication) often fall into that realm. Some drug abusers frequent message boards like ours trying to find members who are on "good" drugs so that they can befriend them and perhaps make an interesting purchase or a surprise burglary. So we just skip around the topic by discussing pain medication in generic terms only.

We no longer allow medication lists in forum signatures, as it is both a privacy and safety issue.

With best wishes,
Jeannie McClelland
(Retired) ISN Director of Support Services
(Retired) ISN Sclero Forums Manager
(Retired) ISN Blog Manager
(Retired) ISN Assistant News Guide
(Retired) ISN Artist
International Scleroderma Network

#2 Shelley Ensz

Shelley Ensz

    Root Administrator

  • ISN Root Admin
  • PipPipPipPipPipPipPipPipPipPipPipPip
  • 3,263 posts
  • Location:Minnesota

Posted 01 October 2009 - 05:03 AM

Well, Jeannie, if I can't toss out brand names or discuss my really cool pain med, I mean, what is there left to talk about? I feel inclined to throw a fit.


There now, that made me feel better.

I suppose you're right, in the end, all the guidelines do serve to help make this a fabulous forum. I really appreciate your gentle reminders, which of course for some of us is the first time we've ever even known about the Sclero Forum Guidelines. So it is nice to learn about them, have more explanations, and learn to appreciate the ways in which they help keep us all safe and sound.

Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#3 Amanda Thorpe

Amanda Thorpe

    Platinum Plus Member

  • ISN Senior Support Specialist
  • PipPipPipPipPipPipPipPipPipPipPip
  • 2,921 posts
  • Location:U.K.

Posted 01 October 2009 - 10:59 AM

Thanks for the reminder Jeannie. The forum guidelines make me feel one thing...safe. :thank-you:

Take care.
Amanda Thorpe
ISN Sclero Forums Senior Support Specialist
ISN Video Presentations Manager
ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist
International Scleroderma Network (ISN)