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Spells of Waking up at 3:30 am - You too?


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#1 sandra

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Posted 01 October 2009 - 11:26 AM

Hi everyone,

Off and On this past year I seem to go through these spells that last about a week -wake up with the Bats! Today it was 3:30 threw the blankets back and got up -may as well make coffee! Feet hit the floor and my right ankle is sore to put weight on it & my wrists are achey when I move them, 2:30 this afternoon had a cat nap :yawn: (no doubt) , woke up made my Earl Grey Tea and now my right knee is aching :wacko: (just above the knee cap kinda behind it?) Well I know I have to see my specialist about this, I have an appointment booked. Do any of you go weird like this? Kinda not liken this symptom, oh well I guess I was riding the gravy train long enough, at least my teeth aren't breaking again(OOPS!) hope my teeth didn't hear that, sure don't need more broken teeth right now!

So any input appreciated , You are all GROOVY!

Sandra

#2 amberjolie

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Posted 01 October 2009 - 11:40 AM

I haven't had that myself. When I wake up at 3:30 it's because I've got a screaming 2-year-old who's decided he wants his bottle right then and there. So I'm literally falling asleep while stumbling into his room to explain to him it's not yet morning and to listen to him scream some more until he realizes I'm not caving in.

Although I'm tired through the day, one good thing I can say about myself is I don't have to deal with insomnia.

I'm sorry you're having to deal with it. My husband gets insomnia, and it doesn't sound fun.

#3 sandra

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Posted 01 October 2009 - 01:08 PM

Yikes Amberjolie!

I had to laugh Hah Ha Ha hah, I will keep nightmares and you can keep yours, I don't know how you do it, its hard enough with our health issues, then throw a 2 year old in the mix, Uh Uh Uh I give you Bunches and Bunches of credit Amberjolie! You can do it you're a good Mama!!

I wish a full nights sleep for you...

Sandra

#4 Shelley Ensz

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Posted 01 October 2009 - 02:01 PM

As I understand it, early awakening is actually a symptom that should be reported to your doctor. It can be due to many different things. Sometimes it is because our medications are wearing off in the middle of the night, sleep disorders of various sorts, untreated pain, depression, manic episodes, menopause....oh my the list goes on and on. The important thing is, if it seems to be some sort of pattern, it is worth discussing with your primary care doctor. Since you have scleroderma, your primary care doctor would, hopefully, be an internist.

The awakenings wouldn't actually be related or "caused by" scleroderma, however, we are more prone to sleep disorders and even certain mental health issues which can make a difficult disease even more fascinating to try to deal with. Top that off, most of us seem to be menopausal women (sorry, guys!) and away you go with a whole list of possible causes of early awakenings.

I have insomnia and it required extensive testing including sleep lab and a full neuro/psych work up, to get to the bottom of it so that I could get a better night's sleep, on average.

I hope this is just a temporary thing, and that you are getting a full, refreshing night's sleep <zzzzzzzz> very soon!


Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#5 imagine2

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Posted 01 October 2009 - 03:09 PM

Hi Sandra,

I also wake up at 2am, and then again around 4 am. I have the same pain in my knee, only its in the left leg, and as well my ankles don't seem to want to move. I often wonder if that was how the tin man felt in the wizard of Oz, and want an oil can for myself. Its been like that for about a year now. My wrists use to hurt as well, but I started wearing the gloves for carpel tunnel and that really helped.

I have actually never mentioned it to my doctor, just assuming it was sclero related, so I'm interested in what your doctor has to say. My sister keeps telling me its menopause, but I'm not ready for that so I don't listen to her :lol:.

Hope you get some answers.

Wishing everyone well.

Robin

#6 sandra

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Posted 02 October 2009 - 01:40 AM

Goodmorning Shelley!

Well up at 3 am today! Wrists and ankles sore still- knee is just short spouts off and on now. Menopause, yup I am around the age,( 49) But here's the confusion. When I was 25 I had a problem too many white blood cells- had a Hysterectomy they left a part of one ovary for hormones, so you think I will still get mentalpause? Sure don't want that thrown into the mix! :wacko: Hmm good point about meds could be wearing off at this time of the night, never thought of that one, see how valuable you are to all of us, I am going to the doctor with more informative questions, better to have a team of brains than trying to figure things out alone.

Shelley, I like your avatar pic it looks like you! The screaming baby emoticon is a hoot too! Anyone ever tell you you are amazing, I always wonder about you working so much for all of us, I hope you get enough rest Girl and all the other forum staff too, I see you all clicking and responding around everywhere, all the time. I don't want your jobs- too lazy!

Keep up the awesome work -we all need you.

Sandra

#7 sandra

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Posted 02 October 2009 - 02:09 AM

Hi Robin, its Sandra calling,

Hey Shelley you listening? Thought of having a 3am chat party, there's enough of us up at that time! COME-ON :emoticon-insomnia: Shelley you workaholic you can take another project on! Hah Ha ha just kidding -go to sleep!

Robin I hate dragging myself around all day feeling like a zombie, I guess I am not the only one! I hate taking pills too But lately I am almost ready for sleeping pills, not so much for myself though, every day I feel guilty looking at my husband sitting with me and me just looking at him and wanting to say "I am tired and I'm going to bed" (every day) when is this going to stop, I end up leaving him sitting in the livingroom alone most evenings :( Poor guy :wub: Guilt, Guilt, Guilt Do you carry the guilt like me. It must be lonely for our spouses. Anyway I am going to try my best to stay up till 10pm tonite okay 9pm, maybe I will get a better nights sleep!

Robin I could use an Oil can too, then maybe we could skip merrily down "The Yellow Brick Road" Lah La land- (Dreamer!)

Till tomorrow morning..
Sandra

#8 imagine2

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Posted 02 October 2009 - 03:57 AM

Sandy,
I like the yellow brick road idea, the skipping and hopping may be a problem, a slow stroll would be more my speed. I am divorced so I dont have to worry about a spouce thinking im lazy, but I am raising 2 children on my own, and they dont really no what to think when mom has to nap every couple of hours, just to get the energy to make dinner and help out with homework. I feel guilty all the time, im 42 and feel 90. I try to push myself for my kids sake and I just end up paying for it later. I get really depressed when they want to do something and I have to tell them I just dont feel good. I have always been so active, now I make my bed and I feel I just got done running a marathon. Its so cofusing how it just comes on so quick, and no matter how hard you try you just can't pull yourself out of it. I hope your doctors give you answers, I havent had much luck in that department with my own doctors. Please let me know what they say. Maybe ill meet you on here at 3am sometime, we can argue over who is going to use the tin mans oil can first. :VeryHappy:

#9 ozzy69

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Posted 02 October 2009 - 08:05 AM

Hi Sandra,

You can count me in on the waking up at 3:00am. I have been doing it for about 6 months now.. It did stop for a couple weeks. I use to think something was going to happen at 3:00am that I should be a wake for..LOL I already take sleeping aids and I still wake up. I had an Hysterectomy at age 24, and then had my ovaries out 4 years ago. I have been on compound hormones for years now, so I have a hard time thinking mine is related to menopause.

I also have pain in my ankles and wrist.. Sometimes my ankle hurts so bad I can barely walk on it. The next day I can jump on it and have no pain. My hip just started in the last week. It is very frustrating..

Hugs,
Nina

#10 sandra

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Posted 04 October 2009 - 07:16 AM

Nice meeting you Nina!

Sandra returning your call,

My hip ached so bad a few months ago that I couldn't sleep on it- icheewawa's.

My wrists have a constant mild ache that just keeps hanging on these days- I wonder if my friend "Raynaud's" is chumming up to me for the winter, our temperatures are dropping here in the Vancouver area, My middle 3 fingers is at the early stages and this past week is swollen and stiff in the mornings and red tips to the first joint. I have a cyst on what is left of the "part" ovary and the doctor's say "Lets just leave it there".. Hmm We should be called Midnight Bats! Tip toeing around the house, I want to start Posting, but I feel bad for our wonderful staff, putting them to work all hours of the night! So I try to wait till at least 5am!

You and I are really strangly similar, I was diagnosed 10 years ago with Lupus, rashy eyelids Lip and Inner mouth and throat, what about you?

Now its my new Roomates Sclero, and Ray, they bring me Watermelon.

Lets keep in contact,

Sandra

#11 Amanda Thorpe

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Posted 04 October 2009 - 11:04 AM

...Sclero and Ray they bring me Watermelon... :lol: :lol: Hilareous.
Amanda Thorpe
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#12 ozzy69

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Posted 04 October 2009 - 11:50 AM

Sandra,

It is nice to meet you too! We do sound alot a like. My hips, wrist, and ankle have been much worse this weekend and I am wondering if it has something to do with the weather getting colder.The last six weeks I have not felt too bad and have stayed really active and now my joints are killing me.. Oh well something to talk to the doctor about in a couple of weeks..LOL

I was told I had Sclero a little over a year ago. It took years doctors not sure what was wrong before I finally was told that I have sclero. My doctor seems to think I have more diffuse than limited but so far most of my tests have been coming out okay. Years ago I was told I have Fibromyalgia. I also have interstitial cystitis (IC) of the bladder. I have talked to my doctor before about night sweats and waking up but she never said much about it. I guess I will ask her again.

Yes, my hip also hurts just to lay on it.

Hugs,

Nina

#13 Deb1million

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Posted 12 October 2009 - 09:54 AM

hello everyone
Im glad Im not the only one who wakes up in the early hours of the morning! Its nearly always 3.30am (UK time) My poor husband is looking so tired, as he can't sleep if Im awake, he says he knows how Im feeling just by the change in my breathing, and he is also worried that I could have a hypo due to my diabetes. We only got married last year, after 5 years together, so its all a bit much for him to suddenly take in, bless him! :wub:

And I also have a very painful right hip. My rheumatologist diagnosed a cyst, called a bursar/bursitis. She injected into the hip joint with steroid, as it was too painful to sleep, walk or sit down. The effects are wearing off now, and Im not sure whether to have another injection as the steroids upsets my insulin control.
When I wake up, my legs feel 'wooden' and are so stiff until I get moving. And the first thing I reach for at 3.30 am or whenever, are my eye drops! They are the first essential thing, otherwise I can't open my eyelids! ha ha! What a state to be in! :D

Its so reassuring to read all your posts and know that Im not alone in all this. So many random things seem to be connected to our sclero, it can't be coincidence.

Keep the information flowing!

#14 Morgan

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Posted 12 October 2009 - 04:11 PM

MY time is between 2 and 3 every night. I have to be at work at 4:30. I spoke with my MD and we have adjusted my pain meds to taking them later at night. I do wake up in pain during the night. I hope we can all find answers. Best of luck to you. Keep in touch.