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Biomarker for Diffuse Scleroderma skin has been discovered!


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Welcome to All New Sclero Forums Members!


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#1 Shelley Ensz

Shelley Ensz

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Posted 02 October 2009 - 11:59 AM

I'd like to extend a personal welcome all new Sclero Forums members. This is a wonderful community where we can all get lots of great information and warm hugs, too.

In fact, have you noticed yet that our information tends to be rather stellar, based on sound principles, and free of "fake" cures for scleroderma? Yeah, me too!

One of the reasons for this is that we have a fabulous forum team -- aye, mate, I'd say the best sclero team on the planet! Our Sclero Forums Director is Carrie Maddoux (take a bow, Carrie) and she works heavily behind the scenes to keep everything running smoothly, her work also encompassing Sclero Blogs and Sclero Chats.

Jeannie McClelland is Sclero Forums Manager and she manages the forums area (only, not the chats or blogs areas) and trains and assists all our support specialists. It's a lot of responsibility but she always manages it with a great big smile.

Lisa Bulman is Sclero Forums Assistant Manager. Then there are our Sclero Forums Support Specialists, including Sheryl Doom, Susie Kraft, Pamela Roland, Amanda Thorpe (U.K.), and Janey Willis. Read our Support Team Profiles by clicking on the "Forums Staff" link that is in the green bar at the top of every forums page.

Sclero Forums Best Kept Secret is our Forum Guidelines!

Also in the green bar is a fabulous link to help you become a more educated, savvy and compliant forum member, it is called "Sclero Forums Guidelines". Now, you'd think guidelines would be a (yawn) boring and fruitless waste of your time, right?

Well, normally, maybe, for most forums, yes. But for ours? Nope! We explain, as best we can, the whys and wherefores for each item. Plus that is followed up with more juice -- including the inside skivvy on what Alternative Medicine topics we discuss (and importantly, don't discuss!) and exactly why.

So for example if you submit a post asking about some unproven remedy, you may be frustrated to see that it never appears on the forum. Maybe you post about it again and again, thinking something must be wrong with your post submission process. But, aha, a look into our Alternative Medicine section shows that such remedy has been proven to cause purple hair, rashes across your entire body and even into the hallway, and loss of consciousness, in scleroderma patients.

Well, lo and behold, you'll think twice before paying $500 for a one day supply of it, won't you? If so, consider donating your savings on worthless treatments to the ISN we always appreciate that. You know, the whole starving-nonprofit thing and all.

But, I digress!

You will understand and appreciate Sclero Forums more if you meet our staff and take a gander at our guidelines. And if you learned anything at all by reading any of it, will you let us know?

Thanks bunches!
Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#2 charliehorse

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Posted 02 October 2009 - 09:49 PM

:happy1-by-lisa-volz:

Thanks, Shelley, most informative and quite fascinating! You are right.

Cheers,

Charliehorse.
Charliehorse

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