Jump to content


Congrats to Margaret, Platinum Member with 1,000 posts and 10 Years of Forums Membership!


Photo

musle pain and skin patches


  • Please log in to reply
2 replies to this topic

#1 nata1979

nata1979

    Newbie

  • Members
  • Pip
  • 7 posts

Posted 08 October 2009 - 01:39 PM

Hello everyone,

Guys if somebody of you have this skin condition (morphea or whatever its called when skin went down) how it feels? Is it painful? My appointment in a month only and I don't know what to do now :(
I also have pain in that area (buttocks) like I've exercise a lot.

#2 Sheryl

Sheryl

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 1,029 posts
  • Location:Brooklyn, Michigan

Posted 09 October 2009 - 01:30 AM

Nata, maybe you can call this doctor and see if there might be a cancellation. Let the receptionist at the desk know you are having some pain issues and had high hopes of getting in a bit sooner. Like today or tomorrow if possible. They can tell you that they are totally swamped and over booked but to keep calling back each day and if a cancellation happens you can get the spot. You might ask what is the preferred pain medication that you should take in your situation. Just a few of my thoughts at the moment. You may have already tried this but I have done this on many occasions and was able to get in. Of course I use to live about 10 minutes from all my doctors. Now it is much harder as I am coming from 1 1/2 hours away. So, the nurse usually keeps my number on a sticky note and calls and tells me if someone has canceled for later that day and I work my way in at my leisure. I hope you get some attention soon.
Strength and Warmth,
Sheryl

Sheryl Doom
ISN Support Specialist
(Retired) ISN Chat Moderator
International Scleroderma Network (ISN)

#3 Shelley Ensz

Shelley Ensz

    Root Administrator

  • ISN Root Admin
  • PipPipPipPipPipPipPipPipPipPipPipPip
  • 3,276 posts
  • Location:Minnesota

Posted 09 October 2009 - 04:54 AM

Nata, you can try to get in to see the doctor earlier (like Sheryl suggested) but if that doesn't work you can also go back to your primary care doctor, if this is a new onset of pain.

Just because morphea does or doesn't cause pain in any other particular patients, doesn't mean that is necessarily what is going on in your case. There could be another cause of the pain in that area, even if you do have morphea. Such as, achiness from climbing stairs or bending. So please never assume anything is from any type of scleroderma until it has been evaluated by your medical team.
Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.