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Ocular Migraine

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#1 WestCoast1


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Posted 14 October 2009 - 09:31 AM

Hi all~

I am sure many of you have had a migraine. Last night I had my first ocular migraine. WOW that was horrible. It lasted for hours. I fought hard to not go to the ER. My hubby was very supportive as I waked around and cried. There is no way to stay still while in that kind of pain.

I had to take meds for my vomiting which made me pretty sleepy. After a long (and much needed) nap, it is finally gone. FEEWWWWW! :emoticons-yes:

So after this was over, I am left with a small (normal) headache and major stiffness and joint pain. What gives? I tried to read up and see if this is normal for people with Scleroderma, but it wasn't clear to me. Has anyone else had a residual stiffness and joint pain after this kind of ocular migraine?

Thank you~


#2 janey


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Posted 14 October 2009 - 10:38 AM

what a night! My heart goes out to you. It sounds excruciating. I'm glad to read that you were finally able to sleep and that the pain has lessened. I have no personal experience of what you went through so I can't answer you question. However, due to the tremendous amount of stress that you were under, I'm not surprised that you feel it throughout your body. I hope you continue to feel better and better and that you NEVER have one of those again!

Big, but gentle hugs,
Janey Willis
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#3 enjoytheride


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Posted 15 October 2009 - 05:15 PM

No advice from me either- it sounds just awful. I hope you are doing well now. :flowers:

#4 Amanda Thorpe

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Posted 16 October 2009 - 11:18 AM

Hello Erin

I emphathise with you as after a number of years respite I currently have anywhere from 1 to 3 migraines a week which last anywhere from 12 hours to 2 days. I don't get visual disturbance and never have I just get the pain and if I don't catch it quick enough the vomiting. I just had one yesterday actually and I think it trying to come back now. Well it can get lost! :angry:

I can relate to the walking around, this year I had the mother of all migraines :crying: , and I am no stranger to them, I was wandering around the bedrooms half dressed and muttering as I could not sit still. I was vomiting so could not take my sclero meds so everything started to hurt and I had to have my sister take me to the hospital.

I now have a regime in place that so far has prevented a really bad one and usually enables me to manage those I do get.

Were you able to take and retain any meds you usually take for sclero because if not this may have contributed to the joint pain and stiffness. Remember also that the migraines assult the whole body, the pain may be in the head but the effects of being unable to sit or move normally for a period of hours and spending time wretching and vomiting effect the whole body. My final suggestion is that we sclerodermians seem to be a little less resilient than others so things hit us harder than most.

I hope this helps and you have my sympathy.

Take care. :flowers:
Amanda Thorpe
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#5 Snowbird


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Posted 16 October 2009 - 11:40 AM


No advice from me either...but I am glad to hear you are finally feeling somewhat better! :)
Sending good wishes your way!

#6 WestCoast1


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Posted 16 October 2009 - 12:13 PM

Thanks for the support! This morning, my headache finally went away. I took 2 OTC pain killers and felt better. I may just give my neurologist a call since this was the first and worst headache of its kind that I have experienced.

As for the stiffness, that has not gone away yet, and I am thinking it may not be related to the headaches at all. This morning I woke to knees that wouldnt bend or straighten for anything. Of course after about 30 min. they came back to life. Who knows...just another day in the life.

Looking on the bright side, the sun is out today, I have no more headache and you all are here to share with.