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#21 Buttons

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Posted 20 November 2009 - 01:27 AM

Hi Sweet

How are you now? I'm glad that you got rid of the itching but hope this other issue is being sorted for you.

Thinking of you

Buttons

#22 Sweet

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Posted 20 November 2009 - 02:16 PM

....still waiting.....

I saw my OB-GYN yesterday. I told him all about my maxillary fungal surgery, my coated tongue etc, during my exam he told me I had vaginal yeast as well, and put me on an oral anti-fungal for 14 weeks! Maybe by the time the Infectious Disease guys call me I'll be cured...we'll see.
Warm and gentle hugs,

Pamela
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International Scleroderma Network (ISN)

#23 CraigR

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Posted 21 November 2009 - 07:53 AM

When I've had itch problems, the only relief at the time of the itch is cream containing benzocaine.

Though I can't explain it, I seem to itch less when I shower rather than bathe in a tub(?)

Craig

#24 goldengirl4

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Posted 21 November 2009 - 02:05 PM

I hope these suggestions help the itching. I have it so badly sometimes. I add antiseptic oils to my bodywash, I have tried a popular brand's new moisturizing body wash, it does feel like you are washing with a body lotion, the feeling of moisture stays in the skin. And last is my solution after a shower: I tried putting extra virgin olive oil in a spray bottle and spray my body while I am wet out of the shower. Drying time is required before putting clothing on, but this really gets into the pores that way. Good luck.

PS, if you want to PM me, I'll let you know the names of the oils and bodywash.

#25 Shelley Ensz

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Posted 21 November 2009 - 04:55 PM

When dryness or skin itching really gets to me, I like to take a bottle of baby oil, leave the inner seal of the bottle on and punch a little pinprick in it.

Then at the end of my shower, I squirt the baby oil on (actually, any oil will do) and the water helps spread it around; this is particularly good for an itchy back as you can squirt the shoulders and the water will make it cover the whole back.

But, children, before you try this or any other stupid trick involving oil in the shower or tub, BEWARE because it can make the floor of the shower extremely slippery! Be sure to use a rubber mat and super duper extra caution. Filling the tub with some hot water and dish soap afterward can clean the path for the next victim person taking a shower.

So I think goldengirl's suggestion is even better, using a spray bottle after getting out of the shower. Certainly safer, by a mile.
Warm Hugs,

Shelley Ensz
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#26 Jeannie McClelland

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Posted 22 November 2009 - 06:29 AM

I like goldengirl's after-shower oil trick too and I'm going to say a kind word for the extra virgin olive oil. I look for the palest colored one on the shelves (least odor) and buy it in small bottles so it doesn't go off before I've used it up on me, not the salads. For some strange reason, I have a problem with the mineral oils, but not with olive oil. My skin likes it and so does my hair. When I've managed to fry it to a crisp with the blow dryer, I'll oil it up, stick on a shower cap, and let it sit for a while before shampooing it out. It kind of reconditions my hair, but the best thing is that it stops my scalp from itching for a while.
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#27 Sweet

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Posted 01 December 2009 - 08:10 AM

Hi,
Believe it or not I FINALLY got an appointment with the Infectious Disease Specialist. It's not until January 28th. 3 months coming.....wow
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#28 Snowbird

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Posted 01 December 2009 - 09:23 AM

Yippee!!! I'm glad they finally gave you an appointment Sweet! Good luck!
Sending good wishes your way!

#29 Shelley Ensz

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Posted 01 December 2009 - 09:48 AM

Well, Sweet, I suppose the next question is...will you still be properly infectious by then? My goodness, what a wait.
Warm Hugs,

Shelley Ensz
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The most important thing in the world to know about scleroderma is sclero.org.

#30 Buttons

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Posted 01 December 2009 - 09:43 PM

Glad you've eventually got an appointment, it does seem rather a long time though if it's infectious.

Take care Buttons

#31 Sweet

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Posted 02 December 2009 - 08:28 AM

Thanks guys,

Unfortunately yes Shelley I think I'll still be infectious. I've been on anti-fungal since Sept 15th.....nothing has changed....now they are wondering if it is fungal...hmm I do hope this guy will have something that works!
Warm and gentle hugs,

Pamela
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#32 CarriePan

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Posted 10 December 2009 - 05:15 AM

Hi, I know the scratching wants to make you go crazy for sure. I've been on prescription creams, regular anti itch stuff, etc.

I did find that when I put Eucerin cream, the thickest you can buy, for sensitive skin in the refrigerator and glob it on it feels soooo good :) just a thought. Not that it makes it go away completely but might give you some time to heal a little??
CarriePan :fairy:
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#33 judyt

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Posted 10 December 2009 - 10:33 PM

Hi Everybody,
I have just been reading the thread about ITCHING!! I think we all probably have some ITCHES a lot of the time. I have CREST and Sjogren's but don't have any skin involvement that I am aware of - for that I am thankful but I have suffered from itching. Many times I have thought I would like an in-house masseuse just to attend to me when I am itching - however that is not going to happen so I started to think about other remedies. I talked to a friend who has Lupus and she talked about becoming allergic to SULPHUR so I did some reading about sulphur and particularly SULPHITES which are the ones they use in FOOD as a preservative, and as a consequence of that I decided to cut out all sulphur derivatives from my diet. In this country we have sulphites as preservatives in Ham, Bacon, Salami - virtually any flavoured meat, dried fruits, fruit juices, fruit drinks (in fact almost any fruit product which is not fresh except canned fruit), toothpaste, the list goes on and on.

SO I decided to cut out any food with these things - I eat organic whenever I can, make my own breakfast muesli from organic cereals and dried fruit. I haven't touched ham, bacon,salami,smoked chicken or any of those meats for months. I bake my own bread every few days so rotate commercial bread and homemade every few days depending on my time.
The upshot of all this effort is that I have no itches, my skin is still dry but my prescription aqueous cream is enough.

Maybe you have all tried these things but nobody mentioned it and I am very happy with my skin right now.

Good luck to you all
JudyT