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Infection


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#1 Kiwi

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Posted 20 October 2009 - 10:33 AM

Hi there
I seem to be constantly fighting infection popping up in my wrists, knuckles and elbows. I take antibiotics (have tried many different brands)but they don't seem to work anymore.
My body doesn't seem to absorb properly. Does anyone know how to help the body absorb better? Or know about infection?
Thanks, Kiwi
Kiwi

Diagnosed 2006 - Diffuse Scleroderma
Skin and lung involvement

#2 northendpoet

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Posted 21 October 2009 - 03:32 AM

Kiwi,

I have no words of wisdom or brilliant solutions for you. I read your post and just wanted to send some empathy and encouragement.

I'll wave my wand and hope you're feeling better soon, and that it stays that way :fairy: (sometimes that works as well as anything else...)
Northend Poet

#3 sandra

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Posted 21 October 2009 - 03:57 AM

Hello Kiwi,


I have Mal Absorption, and anemic , very low iron, had ongoing infections, Fatigue,Dizzy lizzie, my results after truck loads of tests was "Watermelon Stomach" That may not be you though, If it were me,I would insist that I got a diagnosis, and beleive me it took 5 different specialists to figure me out, with persistance I know have great Doctors that understand my overlapping conditions,

Don't give up Hope
Stay comfy Kiwi, Sandra

#4 Sweet

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Posted 21 October 2009 - 05:47 AM

Hello my Kiwi friend, long time no talk. I've been to New Zealand twice and didn't connect with you. I'll be going again in a couple of months...who know, maybe I have see you and massage those wrist!
Warm and gentle hugs,

Pamela
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#5 Kiwi

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Posted 12 November 2009 - 05:33 PM

Hi Sweet,

So sorry for such a late reply and yes it has been a long time. I have managed to give up smoking, find an amazing guy and start a business with him so been a bit busy!

I am living on the Coromandel Peninsular in the north island.

I managed to stave off another full blown infection with more antibiotics and am now taking probiotics (good bacteria) on an ongoing basis. Next step dermatologist and ulcer specialist. Still can't get rid of the ulcers after giving up smoking and everything!

What brings you to NZ?

Cheers,
Kiwi

Diagnosed 2006 - Diffuse Scleroderma
Skin and lung involvement

#6 mammagigi

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Posted 14 November 2009 - 07:11 PM

Hi Kiwi...
Sorry to hear about the infections.

I suffer the same constant infections that take ages to get rid of. I've got a couple of tips or suggestions.

When they get really really bad like when you can't bear the pain anymore & the only way out is IV antibiotics, well there is a carry around IV bag of antibiotics that they can make for as long as you need. I had 3 months once. You just need to have a port put in & the hospital arranges home care. A nurse comes & changes it daily. Besides that you're free to get with your life.

This is also combined with another group of oral antibiotics - a double whammy. Tthe benefit of this is unlike when you take 1 or 2 courses that doesn't quite get rid of it all so next chance it gets it comes rushing back. It's a much better way of stopping the cycle & the combination helps with becoming resistant to any one type.of antibiotics. Most hospital pharmacies are able to make up this preparation & it's about as big as a baby's bottle

I've also had IV immunoglobulin(IVIG) for ongoing infections.

Hope this might help & by the way how did you give up smoking? I gave up for 10 years then took it up again..stupid or what!

Good Luck with it all.
Cheers
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#7 Kiwi

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Posted 15 November 2009 - 10:30 AM

Hi Mammagigi
Thanks for your reply. I am very hesitant to go down the IV antibiotic track, but if I can't keep the next infection at bay then I might have to. That's if they can get a needle into my tough arm!

What is IV Immunoglobin?

I now take probiotics (that's good bacteria) on a permanent basis so I'm monitoring that at the moment. Antibiotics strip so much from our systems.

Many Thanks,
Kiwi

Diagnosed 2006 - Diffuse Scleroderma
Skin and lung involvement

#8 Jeannie McClelland

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Posted 15 November 2009 - 11:57 AM

Hi Kiwi,

IVIg (Intravenous Immunoglobulin) is a blood product extracted from the plasma of about 20,000 blood donors. It contains the pooled human immunoglobulin Type G (IgG) which are antibodies of the immune system. IVIg is used to treat immune deficiencies and autoimmune and inflammtory diseases.The plasma that the immunoglobulins come from has been vigorously screened, tested and found to be safe and free of HIV infection and the hepatitis virus.An IVIg treatment can take 2- 5 days, several hours a day. Its effect last between 2 weeks to 3 months.
Here's the ISN Page on Immunoglobulin.

Best wishes,
Jeannie McClelland
(Retired) ISN Director of Support Services
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International Scleroderma Network

#9 Amanda Thorpe

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Posted 15 November 2009 - 11:58 AM

Hello Mammgigi

Welcome to the forums, you're in the right place to get support and to give it, which you've already done!

Take care and keep posting.
Amanda Thorpe
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#10 mammagigi

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Posted 15 November 2009 - 02:32 PM

Hi Kiwi,

The probiotics sound good I have my oral antibiotics with yoghurt in fact that's how I take all my meds. It really makes it easy to get 10 tablets down a day and stops any adverse side effects from the antis especially like heartburn and reflux and then it doubles up with giving you the good bacteria that you get stripped of.

I see Jeannie has given you a response to the IVIG question so I'll leave it at that. You should check out the link and then ask your specialist about it.

As far as veins are concerned I ended up having a port put in it was the best solution for hunting veins and its probably the safest as I have had in for 6 years now with no infections ever....compared to the lines!

But if you've managed to hold off from IV antibiotics then you might just need to see an infectious disease specialist who can work out a better combination of orals for you. That's what my specialist did consulted with one and we did get better results.

Also I tend to monitor my infections and try and hold out as long as I can with no meds and just do constant wound dressing and lots of sterile squeezing sometimes I find it works and the infection subsides without having to reach for more antibiotics, but you do need to know what you are doing with wound care and unfortunately after 16 years I've become quite an expert, especially of reading my body and knowing when its hospital time as unfortunately the risk can be septic as I have experienced before.

Good place to start is seeing if you can get a wound care nurse to visit you. That's where I first learnt my craft!

So hope this helps some, and good luck with it!

Cheers
Mammagigi :happy-day:

#11 Vanessa

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Posted 17 November 2009 - 02:22 AM

Do you think eating just probiotic yogourt is enough before taking meds then?

I have been eating a bowl of rice with soya milk before tablets as I thought it had to be something pretty solid.

Having said that the old tum is growing steadily!

Vanessa

#12 mammagigi

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Posted 17 November 2009 - 12:41 PM

Hi Vanessa

The yoghurt is definitely enough with antibiotics as its supposed to be empty stomach so it just gives you a lining rather that fill it so that it can absorb quicker than with pred(steroids) from which I have had stomach ulcers from before.I found the yoghurt has kept it at bay since it's been 12 years without anymore complications.

But talking to your pharmacist I find always the best they can explain which need empty tummy, best times, order etc.I found my specialist normally is clueless with these details & it all does make a big difference as with my mother who has Parkinsons found out. She recently saw a dietician who set her up on an empty tummy ritual which gives her a whole half hour quicker effect this advise wasn't even listed on her med & the pharmacist missed it as well so sometimes a little more research needs to be done. In fact I'm going to see if I can get in to her clinic as they have such a good setup & with the similar muscle symptoms that we share it might be very advantageous they have a dietician, physio, occupational therapist, reg nurse & speech therapist. She got some great advise for combating esophagus problems they got her to chew various foods then after swallowing test to see what remnants were left if anything like seeds/nuts. they told best to avoid as this builds up & doesn't absorb or filter through properly, first I'd heard & I suffer from severe esophagus involvement so a dietician is on my list now but still yet to find out whether they'll except me at the Parkinsons clinic!!!
Hope this helps.

Mammagigi :happy-day: