New Doctor in Seattle
Posted 21 October 2009 - 03:44 AM
Friday morning I have an appointment with a Dr. Peng at Virginia Mason Rheumatology clinic in Seattle. He specializes in treating lupus, scleroderma and vasculitis. He is associated with the Benaroya Institute which studies autoimmune diseases. The receptionist who booked my appointment said, "We see hundreds of scleroderma patients."
I would love to hear from anyone who has been seen/treated at either facility. I'd love to know what you think of the care.
So, I"m moving toward a diagnosis. It has been a lot of research by me and minimizing by my doctors. I need to stop this snowball of symptoms. A little scared, a lot hopeful. Sometimes vice-versa, truth be told. It's weird to go to work and act okay, and on the inside have such concerns each day. I believe they call it cognitive dissonance. I feel like I've been in a bad dream and I'm hoping that when someone can identify the real problem and work with me then I'll 'wake up' again.
Thanks for any input!
Posted 21 October 2009 - 05:35 AM
I am so excited for you! This sounds promising. Also, I would LOVE to know what you think of him etc. I see a rheumatologist in Spokane for which I keep thinking I'm going to get rid of. I'm from Seattle originally, so have no problems, driving over the pass to see someone.
Best to you!
Posted 21 October 2009 - 04:46 PM
Just to know that specialists (more than one to choose from!) are so close, and that the Benaroya Institute is doing clinical trials that look soooo patient centered feels good.
I'm changing my primary care physician as of 11/1, also. Don't ever want to be told again that gastroparesis, hypertension, fatigue, and awful joint pain are 'just what happens when you turn 50'. Can you imagine?!?!?
I'll let you know if it's worth the trip to Seattle. Hope the winter hasn't hit Spokane yet.
Blessings to you!
Posted 24 October 2009 - 09:16 AM
Please...keep us posted, as we are anxiously awaiting your news!
Posted 24 October 2009 - 07:31 PM
I have been seeing Rheumatologist Dr.Jane Buckner at Virginia Mason for 4ish years and I love her. She spends most of her time in research at Benaroya and is only in the clinic Tuesday mornings. I highly recommend her. Do an online search of her and see all that she's been up to in her career.
Yes, it would be worth a trip to Seattle - then I could meet you guys there and we could do lunch! Maybe even look up Peanut...
Posted 26 October 2009 - 06:46 AM