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Welcome to new member Molly Elizabeth


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#1 molly elizabeth

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Posted 18 October 2009 - 02:56 PM

Sheryl thank you for letting me know you got my first message! I am a 46 year old mom of three boys. One 18, and two 13 year olds. One of my sons is my step son. Anyways, I have been suffering for several years and have some very active painful digital ulcers that prompted me to try to find a topical poultice to draw out the infections. Oral antibiotics work somewhat but then I get a yeast infection etc. Just been feeling very lonely about my disease and was so pleased to find this site and even more to see my specialist at the University of Michigan Hospital. People are obviously distraught when they see my hands. They have no idea why I have bloated, pus filled fingers but they definitely shy away.

Anyways, I have had scleroderma for like 12 years with Raynaud's. All sorts of gastro involvement. Pain at night, trouble sleeping, swollen joints, etc. I need to try to find a local rheumatologist in now that I've moved.

Molly

#2 Amanda Thorpe

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Posted 20 October 2009 - 05:39 AM

Hello Molly Elizabeth

Welcome to the forum and sorry my welcome's late!

It's always encouraging to hear of someone who has and is successfully living with sclero for a number of years. I am sorry you're having so much trouble with digital ulcers, I've never had one, only infections in both thumbs and that was bad enough. We have information here about digital ulcers you may find helpful.

Take care and keep posting. bye.gif


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#3 Jeannie McClelland

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Posted 21 October 2009 - 04:48 AM

Hi Molly Elizabeth,

I've moved your posts to the Main Forum so everyone can welcome you. I know I'm not the first, but allow me to send my welcome and best wishes along.

We use the Main Forum for mostly 'medical' issues and welcoming new members, the Sclero Den for fun things like comparing favorite books and movies, the Kitchen - well, for recipes. As you already know, we usually have an open Chat on Wednesdays and Sundays (although as you also know, we sometime have some glitches!)

Have you had a chance to read the Forum Guidelines yet? There are lots of tips for safe and happy posting on the Forum, and are worth being familiar with.

Warm hugs Posted Image
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#4 Jeannie McClelland

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Posted 21 October 2009 - 05:04 AM

Just a bit of brain cramp here, Molly. Your scleroderma doctor might be able to steer you to a good local rheumatologist, maybe even one who has referred patients to him.

Welcome again!
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#5 Sweet

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Posted 21 October 2009 - 05:32 AM

Hi Molly,

Welcome and I'm so glad you've joined us! So sorry about your digital ulcers. I have not had any yet *knock on wood* but I am having more than the normal amount of problems with my Raynaud's, so I hope this isn't the year I get one!

Looking forward to knowing you better.
Warm and gentle hugs,

Pamela
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#6 sandra

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Posted 21 October 2009 - 11:20 AM

BIG WELCOME MOLLY! :emoticon-hug:
Sandra calling, so happy you found us, My world got a whole lot brighter when my Doctor told me about this caring and supportive group, I went from "down" and lost :( and did a complete turn around :fairy: with everyone's help & support here, they lifted me back up in a hurry, I have so much more knowledge now on this disease, and feel secure, they make me laugh :lol: , some times cry :sick2: , teach me how to cook strange things!But most of all Molly this is the place for top notch support, we all care for each other, I love Sclero.org in a quirky kinda way - its kept me together, I now do the best I can every day,where as before I had lost hope. This is the best medicine for me! Stay Comfy Molly.
Sandra

#7 enjoytheride

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Posted 21 October 2009 - 04:58 PM

Welcome Molly- Did you successfully find that poultice? I love to hear that someone found something that works and is simple to do.
:flowers:

#8 debonair susie

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Posted 24 October 2009 - 09:24 AM

Hi Molly,

I also would like to welcome you here. Please know that all of us here are available to support "Our ISN family) with open arms and supply those (in need) with plenty of {Gentle, Soft and/or Special Hugs}.

It sounds as though you are in good hands and off to a great start in getting settled with doctors.

Pleasee...keep us posted along the way, as you get more news?
Special Hugs,

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#9 Shelley Ensz

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Posted 06 November 2009 - 03:50 PM

Molly, how did I miss you? Welcome to Sclero Forums and I'll give some extra warm hugs to help compensate for my delayed response.

Yes, you are very fortunate to have such a good scleroderma expert. If you haven't moved too far away, you'll probably find it is worth the trip back, as there is generally a gigantic difference between a regular rheumatologist and a scleroderma expert, and you've been spoiled with one of the very best.
Warm Hugs,

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#10 LisaBulman

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Posted 07 November 2009 - 04:48 AM

Welcome Molly Elizabeth!!

I can definately relate to you with the digital ulcers. I have been living with scleroderma for 17 years now along with that I have had Raynaud's and plenty of ulcers. As of today I still have two, which are slowly healing, but still very painful. You are not alone in your struggles. Hopefully you will find a rheumatologist near you who can offer help. I just finished up a study for ulcers. You might want to look into it, I'm sure you would qualify!!

Sorry I am having trouble attaching the link. If you go to my post about Just finished another study, you can find it there.
Good luck!
Hugs,
Lisa
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