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scleroderma renal failure


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#1 georgieoz

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Posted 21 October 2009 - 11:06 AM

g'day everyone , just wondering if anyone here can shed some light on my new situation ,I have systemic scleroderma and earlier this year I went into sclero renal crisis am now doing dialisis , the hospital recently did a CT scan and said my adrenal glands are quite enlarged (glands that sit on top of the kidneys) they said they would worry about that later as they were still busy trying to get my dialisis right .....so I wasn't too concerned until my g/friend told me that enlarged adrenal glands can be a sign of addisons disease which ya can get if ya have auto immune diseases like scleroderma/lupas etc , has anyone heard of this ? georgie oz

#2 northendpoet

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Posted 21 October 2009 - 04:49 PM

Georgie oz -

I have no info for you on Addison's, but my guess is that you'll find it in the MEDICAL tab.

Just wanted to say hang in there and I hope you're feeling better soon.

N. Poet
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#3 Jeannie McClelland

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Posted 21 October 2009 - 05:24 PM

And that's my cue to pop up with a couple of links for you: the Mayo Clinic has a good article on Addison's Disease (the links will take you to the article) and the USA's National Institute of Diabetes and Digestive and Kidney Diseases also has reliable, understandable information.


Here's a quote from the second link about autoimmune diseases and Addison's: "The gradual destruction of the adrenal cortex, the outer layer of the adrenal glands, by the body’s immune system causes up to 80 percent of Addison’s disease cases."


Of course, it would need tests to confirm a diagnosis of Addison's (and there is information about that in the links).


Good luck with the dialysis and I hope that everything works out OK for you. Keep posting and let us know how you get on, OK?


All the best,
Jeannie McClelland
(Retired) ISN Director of Support Services
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International Scleroderma Network

#4 georgieoz

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Posted 21 October 2009 - 09:35 PM

Thankyou ladies , that link was indeed understandable and informative , from what I understand ya can get addisons disease from autoimmune problems, ugh hope this is not my next 'gift' from scleroderma!!!!! Where does this disease draw the line? Even though I have a few of the addisons symptoms (main one enlarged adrenal glands, hair loss, pigmented skin, weight loss)I think for now I might just 'stick my head in the sand and stay focused on getting my dialisis right,I do the peritoneal dialisis and I started to leak 2 weeks ago they think I am leaking from the fallopian tubes!!! Bizarre .....soldiering on though ....... thanks for that link at least now I am aware of it and aware of what to watch out for. hugs georgieoz