Lap Band Procedure?
Posted 22 October 2009 - 04:44 PM
Posted 22 October 2009 - 11:59 PM
I would like to welcome you to ISN forums. You will learn so much here and become part of a growing family. I don't think lap band surgery is something that those of us with scleroderma really should even consider, of course that is my opinion which is based only on what I have read in the past. You might wish to seek a few other doctor's opinion's and read everything you can on the topic, before making such a drastic decision. Other's may have some knowledge to send your way. You have come to the right place to learn and growth in strength and sometimes even Witt.
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Posted 23 October 2009 - 02:40 AM
Oh boy , Jackie, to me that sounds like a disturbing recomendation , if it were me I would surely Take Sheryl's opinion along with mine,I also would not even remotely consider Lap Band surgery, Scleroderma has many complicating symptoms, I now recently have digestive complications, and I don't know your situation, but Jackie if it were me I would look at the big picture, if sometime in your life, Sclero threw you gastric digestive problems (as it has done to many people) I could not imagine the distress having this procedure would cause down the road for you. I would not jump at this decision if it even has a remote chance of compromising my future health and care. I would first get a Rhumetologist who specializes in Scleroderma Patients opinion, and I would read everything there is related to Gastric & digestive complications, right here at Sclero.org with "real stories" from people before I would make a decision I am so happy you brought your concerns here Jackie before making your decision, I am sure you will get alot more opinions, so keep checking Ok, I do care about you and want to help anyway I can.
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Stay Calm, Sandra
Posted 23 October 2009 - 04:07 AM
I agree that seeking further advice from a GI surgeon who has had experience with scleroderma patients would be wise. It's my understanding that lap band surgery can be reversed so maybe it would be a possibility if you have absolutely no other GI issues going on or other contraindications. You'd also need to consider the lifestyle changes (especially dietary) that you would have to make and stick to 'forever' and the other issues raised by losing large amounts of weight.
Another thing I would do, if it were me, is get a second opinion on how much weight loss would improve your neuropathy and whether that opinion is a 'definite' or a 'might'. I can sympathize with you wanting some relief (I have neuropathy in both legs that seems to be worsening), but in my case weight isn't a consideration.
Best wishes and good luck in making your decision. (And nice to meet you!)
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Posted 23 October 2009 - 06:02 AM
Welcome to the forum!
I have no experience of lap band surgery what I do have is scleroderma and that would make me consider any operation very carefully, not just for the now but for the what might be as we never know how scleorderma will progress or not as the case may be.
Jeannie's idea to see a GI doctor familiar with scleroderma is a very good one and also to find out how much of an impact weight loss would actually have on your other conditions.
Whatever you decide please keep us posted and take care.
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Posted 23 October 2009 - 09:58 AM
Posted 23 October 2009 - 04:10 PM
Just an FYI -- I have sclero and my esophogus does not work at all and the flap at the stomach is gone. As a result of all this my acid reflux is horrible and sometimes not under control. My GI doctor recently had a probe inserted into my GI tract which recorded my acidity over a 48 hour period to an external device and the record will be reviewed. The thought is that if my stomach acid is very bad that I will need some sort of stomach reduction in order to produce less acid. I am assuming this would be some sort of lap band procedure. The concern is that I am in danger of developing Barrett's syndrome which can lead to cancer. The GI doctor that I see treats several sclero patients and is familiar with the disease. As such, I believe that the procedure can be tolerated by sclero patients. Hope this info helps a little bit. Good luck. Gidget