Posted 25 October 2009 - 01:44 AM
I'm just soooooooooo tired.
Posted 25 October 2009 - 03:54 AM
You are a great Mom Amberjolie its one thing to be battling your disease, but being a Mom is a whole new ball game added into the scenario! You always find the strenth and I give you sooo much credit & respect. You are amazing in my books!
Wishing comfort for the 3 of you!
Take care Snookums, Sandra
Posted 25 October 2009 - 05:19 AM
I feel tired just reading your post...no wait a minute I feel tired anayway! You are one of many sclero mums on this forum and I just take my hat off to all of you who have scleroderma and raise children. I agree with Sandra you're amazing.
I hope you get some sleep soon and take care.
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Posted 25 October 2009 - 05:51 AM
Posted 31 October 2009 - 01:51 PM
Im currently staying with my daughter and my 2 grandchildren. I'm totally shattered, but want to visit while I can muster the energy.
When I had my 2 daughters, I only had a couple of autoimmune conditions to deal with, now I'm falling to pieces since they've grown up!
I couldn't have kept up with toddlers if Id had my sclero as well when I was a young mum, but I can help out with grandchildren in short energy spells and then rest a bit.
best wishes Amberjolie, and thanks for the message about Buster. :-(
Posted 02 November 2009 - 12:40 PM
I discussed this with my rheumatologist at my last apt. He said that this is such a constant complaint with sclero sufferers and unfortunately there's really nothing they can do to treat it. He said it just seems to be a constant issue he keeps hearing from his patients. So I guess there is some comfort in knowing we're not alone in this.
Posted 03 November 2009 - 12:51 PM
I'm so sorry your pains wake you up at night! That would not be fun. My big problem is that I can't really nap in the day (I work full time and become mom again when I get home), and in order to get everything done in the day and still spend some time with my husband I don't get to bed until between 11 and 12 at night, then I have to wake up at 6. My kids are usually pretty good at sleeping though the night, but the odd time one of them has a nightmare or something, which disturbs my sleep more. But I think I'd prefer that over having to deal with pain through the night...HUGS to you.