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Biomarker for Diffuse Scleroderma skin has been discovered!


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Foot padding


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#1 charliehorse

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Posted 26 October 2009 - 07:37 AM

Hello All,

Just wondering if anyone else feels that the padding under their feet is thinning a bit? I could be wrong but it feels to me like there's less flesh, shoes and floors feel harder, especially against my heels. I've done a search but couldn't find anything on the symptoms page.

I do get Raynaud's quite severely in my feet so I suppose it would make sense...? And if it's true, can you get it back once diminished?

:thank-you:
Charliehorse

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#2 Catty

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Posted 26 October 2009 - 09:46 AM

I have lost the padding in my feet also. If there is anything that can be done about it I am not aware of it. You can buy padding ( like gel inserts ) to go in your shoes that will help some.

I know how you feel it is very painful. I also get callouses that I believe is caused by the pads thinning. They cause a lot of pain. I have to work on them a lot. I never go barefoot.

If you ever find anything that helps you please post it or send me a private message

Thanks!
Catty

#3 Amanda Thorpe

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Posted 26 October 2009 - 09:51 AM

Hello Charliehorse

According to the UK Scleroderma Society's leaflet Scleroderma & the Foot:

Some people with Scleroderma experience a feeling of 'walking on pebbles',particularly when walking on uneven surfaces. This may be due to changes in the fibro-fatty pad which normally protects the ball of the foot.

My assumption (non medical opinion of a layperson) is that if the ball of the foot can be effected so can the heel. I most certainly have this issue and have bought shoes with thick soles on to make up for the loss of padding. Indoors I wear slippers, the more padded the better.

As far as I am aware the changes to the padding of the foot are permanent.

I found that if the skin on the underside of your foot has become sclero skin, thick and hard, this will make the loss of padding sensation worse. The skin on the bottom of my feet has now softened and the loss of padding sensation is now less painful although still there.

I hope this helps and take care.
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#4 Deb1million

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Posted 26 October 2009 - 10:35 AM

Hi Charliehorse, Catty and Amanda,

I have this problem with the soles of my feet. It feels like they are bruised and its painful to walk unless I have the thickest insoles I can buy.

I suppose I'm lucky in a way, as due to my type 1 diabetes, I get free chiropody/podiatry treatment from the hospital. I have just been referred for casts to be made of my soles, so that they can make special surgical grade insoles. I can't wait, as even the thickest ones I have bought do not comfort my feet for as far as I want to walk!

I don't want anything to slow me down, I want to do all I can while I can!

Debs

#5 amberjolie

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Posted 26 October 2009 - 10:55 AM

Hmmm....the bottoms of my feet seem to get sore quite easily compared to the way they used to be. I just figured it was because we moved to a new house which has more hardwood floors, and the carpet is older so the underpadding isn't that great. Maybe I'm losing padding on my feet too...

#6 WestCoast1

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Posted 26 October 2009 - 12:15 PM

Hi there, unfortunately, I am with all of you on this one. The skin on the heels are so cracked and painful that there are days I simply can't walk. On these days I put the extra large bandaids on them and coat them with a really good ointment.

At night, I slather my feet and I have special thick socks that I wear over it all night. I cut the toes off the sock so that my toes don't get too hot.

As far as walking on pebbles, I do believe it is a loss of padding. I wish there were a way to get it back...do they have botox for heels? :fairy:
*WestCoast*

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#7 Jeannie McClelland

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Posted 26 October 2009 - 01:35 PM

I've lost almost all the padding in my feet and it sometimes feels like I'm walking on bare bones. Posted Image I've heard that it can be a natural part of aging, but then again, quite awhile ago we had a number of posts from other members who've experience this. I don't think I have ever heard of the padding coming back, unfortunately. Sore and cracked heels are something else I have trouble with, but I'm really terrible about putting cream on them.



I always thought a good pair of hiking boots were much more important than trendy shoes, but I've now gone complete non-fashionable. My criteria for shoes are: are they warm, do they have room for warm socks, do they have thick comfortable soles, and are they non-skid. Posted Image

Warm hugs,
Jeannie McClelland
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#8 summer

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Posted 26 October 2009 - 05:38 PM

I also have this problem, mine looks and feels as though it is bone on bone, all under the feet. I have seen a podiatrist, which has suggested orthotic, I have tried these and they don't seem to work. I do though wear 2 pairs of socks and I find the best thing to wear is clogs. I know they look awful, but they actually work, I use these instead of slippers. I have a pair inside and a black pair which I sometimes wear when going shopping.

Regards
Summer

#9 charliehorse

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Posted 26 October 2009 - 10:04 PM

:thank-you:

Thank you for all your replies. It sounds like you all have far more of an issue than I do presently. I'm sorry to hear that. It's a scary thing, the notion of permanent damage to our mode of transport.

I am comforted, though, in knowing that I'm not mad. I think I only noticed it this year. I began feeling the soles of my shoes more and wondered what was going on. Now I know.

I like the idea of botox! What about silicon inserts? :emoticons-yes:
Charliehorse

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#10 Jeannie McClelland

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Posted 27 October 2009 - 02:53 AM

Silicon inserts sound pretty interesting!

I don't fly enough these days to know if it is the case at all airports, but I saw a sign at one this summer that said inserts in shoes wouldn't be permitted through security and should be placed in checked baggage. Can you imagine having to toss your expensive orthotics? Posted Image
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#11 kellyA

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Posted 27 October 2009 - 05:41 AM

I get pedicures often and lately had to ask them to stop using the razor to scrape off the dead skin, days after it would hurt so bad. Last few pedicures I went without the skin scraping and it was wonderful.

When I brought this up to my Dr. she said Sclero rarely goes to the feet and sent me for x-rays of my heels for spurs, which were negative. Thought I was crazy or getting old.

KellyA

#12 Amanda Thorpe

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Posted 27 October 2009 - 07:04 AM

Hello All

Let's start a new craze, silcone implants for feet and botox! How long do ya think it would take Hollywood to catch on? :girly1-by-lisa-volz:

It's interesting to read that a doctor said sclero rarely effects the feet, every sclerodermian I know of has foot issues, unfortunately!

Well I guess all we can do is try to put our best foot forward! :lol:
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#13 Peggy

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Posted 27 October 2009 - 08:02 AM

I am so glad to see this post as this is a new development for me. At my 3 month apt with my rheumatologist I told him of the terrible pain I'm having in my left heel. He pushed down on it when he examined me and I almost went through the roof. He said I should see a podiatrist and I put it off for now. He said some type of shoe insert may be necessary. So now to see that this is a problem that others are having then tells me that this is just another part of this disease.

warm hugs,

Peggy

#14 charliehorse

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Posted 27 October 2009 - 09:29 AM

So is it best not to exercise on our feet then? Or walk too much? Do you think it might preserve the tissue to stay off them a bit more?
Charliehorse

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#15 janey

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Posted 27 October 2009 - 09:48 AM

Charliehorse,
Goodness no! We should exercise and as long as you wear good shoes and socks to provide a good pad, walking is a great exercise for us. I use to always walk barefoot but I can't do it now; however, all of my shoes, even my summer flip flops have thick soles and some have padded insoles. When I walk, I try not to walk on concrete surfaces, but rather the grass, treadmill or dirt trail. With a good pair of tennis shoes and thick socks, I have no problem with foot pain. Just another one of those things that we have to experiment with until we find something that works.
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#16 Catty

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Posted 27 October 2009 - 11:58 AM

Tennis shoes are the most comfortable for me also. But...please tell me what we are suppose to wear when we go somewhere where tennis shoes would not be alright to wear...like Church? I have had to quit going because of my feet.
Hugs,
Catty

#17 Helen

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Posted 28 October 2009 - 12:48 AM

Hi All
I have feet problems,too. I have an appt with podiatrist next week and she wants to cut away thick skin that has formed under my feet where I have lost padding :unsure: it sounds painful to me. Has anyone had this done and if so, how did it go?...not too keen on this idea.
Helen

#18 Deb1million

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Posted 31 October 2009 - 11:33 AM

oh, Helen, NO, dont let them do that to your feet! I had it done 2 weeks ago and Im still in agony! I only had a little hard skin but the podiatrist worked on my feet and the next day I could hardly walk! I couldn't bear shoes or any bedcovers to touch the tips of my feet until the next week. (I had to just suffer the Raynaud's)
My podiatrist is usually so good, and knows my medical history (its very involved) but she made it feel like she had cut my feet to the bone, I was in so much pain.
Please dont allow your feet to be treated like this, the sclero must have more of an impact on some people than others, but Id advise you not to have much done, maybe just gently remove a tiny bit of hard skin yourself over many days, and check how your feet feel after each tiny bit. And try to moisturise your feet afterwards too, maybe one of the heel balms that are sold in pharmacys/drug stores.
best wishes to everyone

Debs

#19 Snowbird

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Posted 01 November 2009 - 01:36 AM

Hi Everyone

My massage therapist put me on to a particular brand of pumice stone (actually made of glass, so it's antibacterial, can be disinfected after use, etc). It is the best I have ever used to rid me of hard skin that makes my heals hurt, simple and pain free! I just keep mine in the shower and use it 1-2 times a week or when needed. I've never had anything work as good. Not very expensive either and it lasts for years. I won't let anyone use a blade on a pedicure for me anymore either...did that once as well, big mistake, I was sore for weeks too!

If you want to send me a private message, I can tell you the brand.
Sending good wishes your way!

#20 debonair susie

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Posted 01 November 2009 - 10:06 AM

Hi Helen,

I'm in total agreement with both Deb and Snowbird. Please give Snowbird's method, using a pumice stone...a try?
Special Hugs,

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