Have new severe Pain
Posted 27 October 2009 - 04:20 PM
Posted 28 October 2009 - 04:10 AM
I'm sorry you are experiencing these symptoms and hope you feel better soon.
Have you thought of mentioning this new severe pain to any of your co-workers? Or being seen in E.R. for it? They have a tremendous advantage over us, as we have no medical training. Any of us could be having the same type of pain or ankle swelling or fatigue but that doesn't mean it is due to the same thing, or even that it is due to scleroderma. Similar symptoms can be caused by many other illnesses or even by medication side effects.
Please let us know what you find out from your doctor.
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Posted 28 October 2009 - 12:29 PM
I have to say that I am so sorry for the pain you are going through! This kind of pain is something that doctors have such a hard time dealing with becuase there is no "evidence" other than our very real pain. First, I hope you are able to find a doctor that can really listen and try to help you.
I also have this awful pain in my muscles. What I have been told recently by a doctor is that it is my brain registering false pain. I have had migraines for so many years that doctors have not been able to cure, so this pain cycle has gotten way out of control. I now have a pain similar to a fibromyalgia pain, but not fibromyalgia.
They have recommended that I take a medicine typically prescribed for this and see if it can help.
I can't say if this is what you are going through, but I really hope you are able to pin point the problem and find relief.
Posted 28 October 2009 - 12:30 PM
Sorry, I can't help answer that but I do hope you feel better soon. I think you should always go with your instincts...if you really feel that something else might be going on or if you have any little doubts at all...then do not ever hesitate to get it checked out at your primary or the ER! It's always better to err on the side of caution when in doubt.
Posted 28 October 2009 - 01:58 PM
I have systemic sclero and polymyositis and I don't know which of these diseases are causing this pain and I guess I really don't care as I just wish it would subside. I have accepted the fact that this will be how I have to suffer with this disease, along with the terrible reflux/gerd issues and the lung involvement on top of it.
Good luck to you and warm hugs,
Posted 29 October 2009 - 10:42 AM
Posted 29 October 2009 - 10:56 AM
No hugs - not even gentle ones, just best wishes,
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Posted 29 October 2009 - 08:51 PM
I also would let my doctor know immediately and I would ask for a referral to a pain specialist. It took me months, but finally, I have my pains under pretty good control but it took a pain management specialist to help! They aren't afraid of the drugs that work!!
Good luck to you.
Mary in Texas
Posted 30 October 2009 - 08:46 AM
I hope that by now...you have consulted someone concerning the pain/swelling you are experiencing.
As Shelley spoke to,, we are not doctors and what is going on may well be something that should be addressed.
Being from the medical field, I'm sure you are well aware of what "could be". However,being in the pain you are,
I cannot imagine that you would want to postpone seeing someone about this.
Please let us know how you are doing and what you are able to find out?
Wishing you the best!